T-6 OR A Sad Commentary on Our Times

Okay, I had my MRI in the beginning of the week. It has taken me until today to process it enough to write about. Bear with me because it’s a little bit difficult and I may ramble a little.

So, my MRI was finished and my Mom had successfully let me know that there is, “No Espace” between us. The tech directed us to the elevators and told us what floor to get off on because we were in the basement. When the doors opened, my Mom stepped out of the elevator and looked down the hall to the left and then to the right. We were in another long hallway and I had no idea where we were.

My Mom took a few steps to the right and then told me that she knew where we were. I followed her for a couple turns and then I saw the chapel and I gasped.

I gasped because it became apparent to me why my Mom knew exactly where she was! My Dad spent so much time there! My brothers and I would refer to my Dad staying in the hospital as, “[Him] going to the spa” because he had so many short stays there.

I continue following my Mom and then we made another turn and were at the hallway between the west entrance and the main entrance. I looked at the floor and specifically the tiles. The tile work is 20 years old. I know it’s 20 years old because I had Sean when it was being completed.

I went to the emergency room downtown because I did not feel okay and when I called Saint Mary’s Hospital where I was supposed to have Sean, they told me since I was only 32 weeks pregnant that they were not equipped to care for me and the baby if necessary.

I was admitted to the hospital downtown early on November 1 and I had Sean on November 2, 2001. I stayed in the hospital with him for a few days and then I was discharged but he was not discharged until December 3rd.

My Mom would drop me off in the morning on her way to work at about 7:15 in the morning and my Dad would pick me up after his work at about 430. I would go home (to my parents’ house), eat dinner, and then go back up to the hospital with Sean‘s dad until about midnight. I spent the entire time rocking and glider in the NICU across from Sean‘s incubator. I was only allowed to hold him for 20 minutes a day. I never held Sean in the morning and kept the time for when his dad came up to the hospital. After a while, the nursing staff saw that I was so dedicated that they told me that I could hold Sean as long as I, “ kangaroo cared.” After they told me that, I would do that until I got hungry.

I utilized the west entrance when being dropped off or picked up because I still was not able to drive that soon after my C-section. I would see that hallway everyday and watched the man slowly and meticulously put the tiles down. He was still doing it when Sean left for the final time in December. I remember that when I would see him carefully putting each tile down I thought of a movie from my childhood:


I remember those little things fixing the tiles to the apartment entrance. They placed each tile one at a time like that man did 20 years ago at Henry Ford Hospital.

So, all of these memories were brought the forefront of my mind. I had my MRI on T -10 and today is T- 6. In six days, it will be 15 years since my Dad‘s death. I was quiet and quite contemplative on the ride home. When I got into my house, I took my sweatshirt off and saw the cotton ball and tape they put on my arm after they injected me with the dye for contrast for my MRI. I Took the tape off, saw my arm, and I started to cry.

Sean and I were recently talking about The fact that he always used to take my Dad‘s bandage off of him when he came home from dialysis. They would work together and my aDad would tell Sean to take off the bandage slowly. I was shocked that Sean remembered that Because he was so young back then!

When I awoke the next day this is what my arm looked like sis, which is a sad commentary on our times:

I thought of how many MRIs they give a day and they can’t even afford higher quality tape?! I have to go back to the hospital in a couple weeks for my Swallow test. I’m a little nervous about that one!

A Refresh

It’s been a minute but I think my YouTube feed refreshed and I was able to see this video:

Maybe that’s what it’s doing, just posting videos that I have never seen before of songs that I love so I get to enjoy them! At least, that’s what I’m telling myself! I love you so much, Bono!!!

Further Proof of, “No Espace”

So, I had my latest MRI on Tuesday. It was a neck and brain MRI. I had never had an MRI in the downtown hospital so that was a new experience for me. It was in the basement. We were told where to go and after we wound through a bunch of hallways, we reached Bay 1 where my MRI was going to take place.

Laila told us to wait for a moment because somebody was using the machine. So I’ve written before that my Mom comes with me to ALL of myself medical appointments. Tuesday evening, I completely remembered why that is!!!!

We were directed to a room well I was going to have my MRI. There was a small gurney where I would lay down to be pushed into the machine. Two young women technicians were there as my Mom and I came into the room. When we entered the room, my Mom surveyed the situation as one of the technicians asked very politely, “ how can we help?“ I looked at my Mom and she made one statement. She said, “Just stand there and watch.”

I immediately heard Bruno Mars in my head:

I think the women were a little bit shocked but they didn’t say anything and marveled at how well my Mom transferred to me. This was further proves that there is no espace between me and my Mom! The MRI lasted almost 2 hours and when I came out of the machine, two young guys were there and Laila who is running the machine was there as well.

My Mom easily put me back into my wheelchair. There were two male technicians when she did this and because I was laying on a sheet and would slip off the gurney easily, she told them that I have no core strength and to hold me which they did!

I have more to say about my MRI experience but I’m still processing that but I thought I would share that my Mom is the best in the world! One of the men holding me in place on the gurney said something about how well my Mom transferred me and she responded that she does this every day! Because she does! Multiple times!

Oh, Shan!!!

Just now, nestled deep in my YouTube feed, I saw this video and immediately thought of my cousinT, Shannon!!!
💜💜💜💜💜💜💜💜💜

This song will FOREVER be special to me and remind me of her and our, “Super Binges” BEFORE those were a thing!

Both.

I had an MRI last night and I’m still processing evenys from that time before I can write about it. But, one thing I can write about pretty easily is that as I was going down the long hallway that I have been using so many times over the years. She was on the opposite end of the hallway and as I was coming down the hallway and we approached each other, she smiled and asked me a question.

I was wearing my Michigan sweatshirt (The one without the bleach stain on the arm) and she smiled at me and asked, “Is that football or basketball?” as we passed teach other. She was referring to my sweatshirt and I kind of laughed and gave her the best and most honest answer I that could. I called to her over my shoulder and just said one word, “Both.”

“She’s Gone”

I am quiet as I am getting ready for my MRI tonight at Henry Ford Hospital Downtown. This song is in my head and I miss the person I used to be before MS, doctor’s appointments, and medical testing:

I feel strange but it’s NOT like they are going to tell me I have MS or anything…

My 5 Senses

I had a fond memory this afternoon when I put my chapstick on for the first time today. The memory came about so quickly and I think that I can explain it using pretty much all of my senses! I am wearing the pomegranate flavor for my chapstick today:

In order to use up my summer flavors, I have used a different flavor for each day of the week. Thursday, however, is reserved for cucumber mint because that is my favorite!

The memory was sparked immediately when I opened the chapstick cap and a very small amount of chapstick that was left to be used fell out of the tube. I was able to catch the little plunger as it fell out of the chapstick tube. As I was putting it back in, I smelled the pomegranate chapstick and I thought of Barwis. I wore the pomegranate chapstick in the early days of working out at Barwis and I remember smelling that the day my cousinT, Shannon, came with me.

So, my sense of smell is in use in this memory because of the pomegranate chapstick but if I’m going to talk about Barwis, I cannot forget the overwhelming smell of a turfed football field! That’s what it smells like!:

These pictures were not from the day my cousinT came to Barwis with me but it’s from that first summer I’ve trained at Barwis! Back before the current renovations were completed. Jesse stretched me out similar to this each time we tried to get steps off.

So, with my senses engaged, I have sight, smell, taste, (I’m chewing my peppermint five gum then and now) and touch taken care. It only leaves hearing. I love that I thought of this particular day with my cousinT, Shannon coming with me to Barwis. I naïvely thought that it would be a lateral progression to me walking. I did not think about all of the variables and how it would ebb and flow.

But back then, the summer of 2013, I had recently heard and decided on my, “Walking Song” on the radio. I remember that day with my cousinT about how that song would be my Walking Song”:

So, I loved the video when I first heard this song and I wanted to be able to dance again one day. Jesse told me that would be a long way off but back then I was so motivated and I stupidly believed that I would walk again.

No Espace

So, it’s common knowledge that I like to watch the same movies over and over again which I think is a trait I learned from my Mom. It has worked out with her staying with me throughout this pandemic because we have a very similar taste in movies. A few weeks ago, we saw, Spanglish, and my Mom and I have quoted it often! Last night as I was drying my hands, I was clearly reminded exactly why we “it!

The quote we say from the movie is toward the end and it is when the mom speaks to the daughter. The mom does not speak English very well and the daughter is growing up in the United States. She tells her that she needs space from her mom and turns away from her. The mom looks at her, grabs her shoulder, and tells her that,There is no espace between us.”

Last night, as we were completing our routine to get me ready for bed, I was staring off into space and drying my hands when I said with a far away look in my eye, I said, “I wish…” and a good deal regret in my voice as I thought of all of my limitations that have come about in the past five years. But before I could finish that statement, my Mom simply said, “Me too.

I looked at her and we met eyes and in those moments without speaking so much, we realized, (REALLY I realized) that there REALLY is no espace between us.

Random Tune #76 in my YouTube Feed

I took notice yesterday that a lot of Sara Bareilles songs were showing up in my YouTube feed because I posted my faves for August and they’re all her songs. I never saw this video and I watched it in its entirety.:

I was never a great dancer but I could keep time but what I really wish is that I still had freedom of movement like that now!