Month: February 2024

Now, it’s a Two-Day-er?!

I blame my eyes 23 years after diagnosis! I think it’s either that or disease progression. When I really think about it, it’s disease progression but my eyes can’t handle watching TV for to long!

we did this a couple weeks ago and we watched The Sound of Music. Well, actually, we started watching The Sound of Music and my Mom went to sleep. I enjoyed when the captain and Maria were dancing and I wanted to see it again before intermission but here is where disease progression takes the cake!

I could not control my hands enough to properly give the commands to rewind it just a little bit so then I just gave up, took my contacts out and decided that we would finish the movie tomorrow! I was having difficulty seeing on the TV to understand the commands. I’ve said before that my hands are just ‘for show’ and now it’s pretty much that’s the way things are All of the time!

My taxes are finished, and my Mom is going to drive to H&R Block tomorrow to sign for them because I no longer can sign. I didn’t sign for my wheelchair when we got it in December so I think that’s not a thing for me anymore.

But back to my eyes! Yesterday, we finished this movie, which was just as epic as I remember, when I was a child!!!:


it IS Lent, so it just seemed fitting! I’ve accepted that my eyes can’t watch a three hour and 42 minute movie and be okay! It kind of stinks that now, it’s a two day-er to watch any movie with an intermission. But all of these epic movies are from my childhood have an intermission so I will HAVE TO be okay with a two day-er. I wonder how many times I will see this movie this year before Easter?!

I was Wondering…

Today is the first Friday of Lent. I was trying to remember, but I think I started going to stations of the process every Friday When Sean was in third grade? I went by myself his freshman year, and I want to say one Friday, he came with me.

I was wondering how I would react to seeing Jesus Christ Superstar since it has been a while since I saw it last. Well, it affects me just the same! I cried when the lepers are pleading with Jesus and I could feel myself making a face when he was talking with God and singing.

I think this movie will ALWAYS affect me…

2 Months and a Day

When my Mom and I went to pick up my new power chair, we asked both Diane and Dave if the joystick was fixed and both of them with the quickness, let us know that it’s NOT! I was making a conscious effort not to let the rubber on the joystick fall off. But, Dave and Diane were correct! It only took two months and a day because I got this chair on December 14 and on February 15, this happened:

This is stinky!!! I will have this chair for the next four years and 10 months?!!!!

Flying By…

Tomorrow I will put out my vitamin bottles for me to Pillage on Saturday. I was just about to take my dinner vitamins today when I realized how these days are flying by so quickly!!!;

I just took my Thursday dinner vitamins, and my Monday through Wednesday vitamin boxes are empty but I really can’t remember taking them! I know that I did! I have to! But this is crazy, these days are flying by for sure!!!

It’s STILL There

I was wondering if the feeling I had yesterday and the day before yesterday would go away. I don’t feel well today but I must let you know that it’s STILL there! That awesome feeling of wonder! God is still here! My house was totally protected! I am going to try to put the video that shows how close that car was to my gate but if that doesn’t work out, I will post a picture because I think I have one of those too:

Video is too big, but here are pictures from my wonderful photo journalist, I just took screenshots of her video:




I thought about it for a moment that if my gate was hit, it would be replaced because it needs to be replaced anyway, because Leia gets out from there. But I much rather prefer that my house was completely protected!!!

Whilst I Slept

Yesterday, in preparation of Lent, I was given confession, anointing of the sick (to help me with my osteoporosis diagnosis that I have just received but I will see my naturopath on February 21 and we’ll go to the endocrinologist on May 16th) and first communion by a priest from Divine Child, Fr. Jeremy.

I felt extremely blessed yesterday, and I felt God’s presence in my house because I have NOT had communion in years. I have been a member of the Virtual Front Pew with Fr. Mike schmitz on YouTube since week 17 of ordinary time 2021. It felt really good because I was ready for Lent!

But then this happened to my house today whilst I slept. I didn’t know what had happened at all until it was way over. My Mom came into my room and explained it to me. I was just waking up but it was so huge of a story that I told her I had to see the pictures!

I sent these pictures to two of my friends, but I prefaced it by saying that I am going to send the ‘after’ pictures first. I will do that here as well. My Mom is an excellent photographic journalist!:


She is also an excellent videographer, which I will show you right now. My body feels like there’s electricity surging through it! I told my Mom that I didn’t think that I would feel God anymore than I did yesterday but then today is today!:

I tried posting the video here, but it’s too large so I took a bunch of screenshots to give you the gist of what happened:







These next two are so dramatic in the video!!!:


The car was smoking!!!:


I couldn’t believe it when I saw this! My property is completely unscathed!!! The driver of that white car was 17 and he was coming out of Edsel Ford and driving Eastward on Rotunda. There was a red truck that T-boned him as they were turning onto Pelham and this is what happened.

He was still in the car when my Mom videoed everything. When he got out, she said that he was completely dazed and she told him to get checked out in the hospital. He thought that she was going to yell at him, but anyone who knows my Mom knows that that’s not how she is!!!

He came back here and knocked on the door after he got out of the hospital and my Mom talked with him in his friend‘s car. He was extremely apologetic and said he would fix the grass but my Mom told him that it’s winter it probably will flatten itself out in the spring when grass starts to grow.

I talked with Sean and he explained that it is because of, “Paula’s tree” that the house is fine. Paula was my neighbor before the current neighbor and she moved probably 10 years ago and before she moved, she put in two poplar trees. I don’t like them at all. but Sean, let me know that that tree took a beating, and it saved our house!!!:

I guess that he is right I think it’s insane how I feel right now! I have never experienced the Glory of God like I am experiencing right now!!! And all of this whilst I slept?!

Rando Tune #56

This was my last year teaching English. I heard a colleague talk about this song with another colleague. They were both on my seventh grade team. I was just about to start teaching Reading. I heard it the other day after I listened to Sheryl Crow and I listened to the entire song!:

After Toby Keith‘s death, I really have been thinking about my short stent in the country music scene!!!

A New Accommodation

I pillaged today like I do every Saturday:

I don’t think that I was prepared for my life to be as small as it is now. But here we are. I’ve had to make a new accommodation in terms of applying Chapstick. I no longer have enough hand control to put the cap of the chapstick back on the tube very easily. This is what I do now:


I have to push the plunger all the way down, so as not to get chapstick everywhere. And this is what it looks like when I put it on:


I don’t apply chapstick like a normal person anymore. I apply at first on my lower lip by just smearing it on, three times. I start on my left and go all the way to my right and back and one more time. I still, however, use the Chapstick in the center of my upper lip, and I go to my left and then I start back in the center again and go to my right. But after I do that, I have to push the plunger all the way down.

What seems to be happening now, is that the days between my pillaging are getting shorter. I’ve never seen my chapstick look like that before, but that’s how it is now I guess.