Month: July 2023

Vindicating

I have been thinking about this since Monday. I think it’s a vindicating to hear hear that a reference I made off of the cuff kind of resonates! And resonates with people who know what they’re talking about! Let me ‘splain ya:

Once Dr. Harris came into the room, he asked how my vision is going, and I told him that I no longer see an HD and just SD.

He completely understands that because he is an optometrist, and he explained that reference to my Mom. He also told us that he only pays for the SD Netflix subscription. His kids don’t like it, but he says that’s what he likes!

My ‘bad eye’ this time around was 20/70. He said that my vision will fluctuate, but that is very respectable! I liked hearing that, but my vision is bad and it’s not going to get better. I’m just slowing down the process. With my right eye, I just see the big E but I have three letters to look at with my left eye and I cannot see them clearly all of the time!

My prescription stayed the same for a second year, even though I know I am not seeing as clearly as I used to!!! it’s even blurrier than this without my contacts on:

Let’s NOT be Crazy?!

I had my Mom cancel the van rental for my eye appointment to get readers for her August 23. I thought about this a lot and right after we had my eye appointment, I need to just space out the appointments!

We have been discussing this, and I told my Mom, let’s not be crazy?! This heat is insane for me and I already have it scheduled teeth cleaning on Tuesday! So, we’re getting our teeth cleaned just like Sean and I used to. We get our teeth cleaned at the same time. I have been going to that dentist office forever! I think I was seven when I started!

I just have to double check that my Mom will cancel my appointment with her phone because that’s where she receives the text confirmations because I changed my contact number to her number because I’m not really reliable on the phone anymore. Isn’t that crazy to say?! My Dad used to pay me to NOT talk!!!

My Favorite Song of the Album

I was kind of sad to hear that Sinead O’Connor died and I pulled up her, “I Don’t Want What I Haven’t Got.” album. Once the album started playing, I was taken back to being eight years old when my brother, Steve, who slept in the room beneath me, would listen to that album and I heard it through the floor.

I pulled it up on Wednesday evening, and was completely surprised that I STILL knew all of the words! I started to cry!

I remember that a few years after he left for college and he had started a career. I was in high school and drove to Dearborn Music and bought the used cd! I’ve listened to this album a few times and I think that this has always been my favorite song of the album:

ABSOLUTELY TERRIBLE!!!

Yesterday I did not wear my contacts because I was recovering from leaving the house That’s pretty stressful for me! The world is NOT handicapped accessible at all and my vision is fading so that as another layer of uncertainty, which kind of stinks!!!

Yesterday, my Mom and I were discussing the appointment we made for my readers and we both decided that making it a triple play is not a good idea at all anymore. With my disease progression. She made the appointment for me yesterday for readers for 23 August.

Very recently, I have changed my contact number for all of my doctor clinics and medical supply distributor to my Mom’s phone number. I think year 22 of having MS is ABSOLUTELY TERRIBLE and I am hearing that doctor from when I was diagnosed tell me that “Look, you have MS, you’re going to go blind and then I am going to die.”

My Mom and I told Dr. Harris about that terrible doctor who told me that I had MS and how she did. He couldn’t believe it either, and he told us that we should’ve punched her!

Retrospectively, we probably should have, but we are both too shocked because I was only 18 then and I didn’t know what to expect but it DEFINITELY was not what it is now!!!

Summer Pumpkin

When I awoke today, I saw this when I checked my phone and I smiled and texted it to my son as my ‘pic of the day,’:

I am not sure how these pictures show up in my phone, but I like it a whole lot!!! When my Mom came into my room to get me out of bed, I showed her the picture, and she smiled as well. She commented on how Sean has always had a thing for pumpkins! Because he really has!

I told my Mom how, one year, probably when he was 13 maybe 12, we did NOT go to a Cidermill, and he was concerned that we did not get a pumpkin for him to carve for Halloween! We stopped by a nursery on telegraph Road by our house and he picked one out.

I just remember him smiling as he walked toward the car because I was still driving then. He really does have a thing for pumpkins that he always has! I saw this on Facebook and it made me want to post the picture I sent Sean this morning:

I really can’t wait for this summer to be over with because this weather is killing me!!! Since my year has been planned since April, for all my haircuts and doctor appointments, I made sure to secure a day for us to go to a Cidermill because, duh!!! I hope it doesn’t rain!

Center Piece!

I saw this on Twitter today and I want to explain my answer:

There is no debate. The correct answer is center piece! Brownie making was my thing and I did it all the time for work and to have a container of brownies in my house pretty much all the time!

I want to further explain, that if the only brownie left is an edge piece, I will eat the edge off first, so I trick myself that it’s a center piece.

My MS.

I found out at my optometrist appointment that my neural ophthalmologist is retiring. I first started seeing him 21 years ago when I was pregnant and that was when my right eye was diagnosed with optic neuritis. I saw him again almost a decade later, because my left eye joined the optic neuritis party!

I will say that I am at a little bit of a loss here! First, my neurologist retired, and now my neural ophthalmologist is retiring. I am going to a specialist on August 18 and I was looking at the appointment in MyChart. I am labeled as a ‘new patient’?!

Unfortunately, NO part of MS at this point constitutes me being a ‘new patient’ because I have been dealing with it for way too long and it’s starting to get serious! I bet this new doctor is young and I will have to school him about MY MS!!!

Readers?!

I saw my optometrist today. My eyes were a little bit better in terms of my vision. My right one I was 20/70 which last year was 20/80. Dr. Harris took his time with us because my Mom comes with me to all of my doctors appointments now. Dr. Harris said that my vision will fluctuate but he’s going to keep me in a negative 7 contact.

I have contacts for a couple months still. But I had to make another appointment! The reason I had to was because my eyes were already dilated before he came to see me. He asked me how old I was and then I told him that I am 41, he said that I am just a little bit younger than him and I am going to go back in August to be fitted for readers?!

I have to go to the eye doctor for that because I need a prism in my right eye in addition to readers. Let’s just see how much all of this will cost?! We made the appointment with Sydney, his assistant, just after my appointment.

Next month, instead of the two-fer, I am going to have a triple play. That makes me a little bit nervous, but I can do it… I think!