Month: June 2022

Rando Tune #15

I was wondering which song would be my quinceañera song! Oh my Mom gave me the answer last night! I laughed hysterically when she told me that!

We were talking about Sonya and the fact that she’s coming back tomorrow. I don’t remember what my Mom said or what we were talking about but somehow she asked me some thing and then said because that will put us under a lot of,”Pressure!“

I started to laugh and tried to sing the beat but I couldn’t because I was laughing too hard but here it is. I love this song!:

So, OF COURSE I’m Excited!!!

Yesterday morning, a Facebook friend tagged me in this post:

I got so excited seeing this and I am so excited for this Halloween! Actually, I’m excited for September 30 AND THEN Halloween!

Having my Hocus Pocus marathon every Halloween season gives me purpose. And I like feeling like an 11-year-old girl every October 1 and that stays pretty much all month!

I have been tagged and messaged by so many of my Facebook friends so it just goes to show that I’m consistent!
here are a couple of the messages I have received:



Someone I went to high school with messaged me this picture and told me they thought of me and then wondered why and it’s probably the 45 times and watch it every October.

And another Facebook friend who I have known since I was in kindergarten sent with this video:

I am so beyond excited but I will have to wait for three WHOLE months until all of this happens! So, OF COURSE I’m excited!!!

My Wound Care Nurse

My wound care nurse came to my house today at 11. She called my Mom this morning and they set it up because I was sleeping! My Mom came into my room and called my name and when I opened my eyes, she shoved a mask into my face and told me to put it on.

I heard a voice who sounded like somebody I knew when I was a child, she was my babysitter, I heard my Mom‘s murmuring as they were talking and it lulled me back to sleep.

I was so glad that I told my Mom to take point because I was having difficulty waking up this morning but then when she came into my room and I talked with her, she sounds like my aunt Iris! I say that because while she was here, I didn’t have my contacts in. She took pictures of my wounds and told me she was going to come back on Friday.

I didn’t even know her name until after she left and my Mom told me that it is Sonya. I think it will be a good thing! And I think that I am vibin’ with her. Because it doesn’t seem like these wounds are going anywhere anytime soon…

I’m Just the Feet

I have been in constant communication with the dermatologist on my case for my feet. It’s been a lot of red tape! It’s quite frustrating and it makes me a little sad about the state of our medical affairs.

I have been dealing with this since April 19. That was my first dermatologist appointment. Then I saw another dermatologist when my pressure sores surfaced! Remember that my Mom asked for an antibiotic at both of those appointments because she knew that I am a slow healer and at that point of my June appointment, I already had open wounds. but again, red tape!

She wanted to catch the infection before it got out of control. But, alas, here we are! And does it hurt!!!

But I still have persisted in conversing with the doctor in hopes of getting a home care nurse to come to my house. Well, on June 28, all of this red tape has finally been cut through and a home care nurse called me this morning. She is going to call tomorrow morning to set up a time to come out to my house.

I told my Mom today that she is running point for this appointment because she’s doing everything and I am just the feet.

Noted.

My neurologist almost did not see me today because we were just a little bit late. She seemed irritated but saw me because it was 3:45 and my appointment was at 3:30. She saw me and ordered another MRI for me in August and she said that if my brain activity is showing no new lesions that I can wait for a year to see her. Otherwise it’s lots of bloodwork and stuff.

I will have to call tomorrow to schedule an MRI and hopefully that will be my last one because I have Secondary Progressive Multiple Sclerosis (SPMS) Because I have had MS for over 10 years, When you enter into SPMS, your brain scans do not change but your symptoms worsen. Something to look forward too I guess!

But, that is not even the important part of this blog post! It is summer time! It is warm outside! But that also means that they have Girl Scout cookie blizzard‘s at Dairy Queen! I saw commercials for it a while ago and told my Mom and yesterday Sean was here and I told him to get me a Mini (I call it a ‘baby’) Thin Mint blizzard whenever he remembers. He just kind of smirked and said, “Noted.”

So, I got one today and it was just as good as I remember it!

These Feet

Well, it has finally happened! Both my Mom and I did not go to sleep until six this morning. Our clock is totally backward because of these feet!!! I am over exhausted and tears have been leaking/streaming out of my eyes all day long! These feet will be the death of both of us!

I am just trying to gear up for a neurology appointment that I have tomorrow so maybe I’ll write about it afterward…

A Whole Lot of Wax!!!

So this happened on Friday:

That is the last of my summer flavor pack of Chapstick that I bought probably two years ago (maybe three). The watermelon tasted too waxy so I threw it out after I had used about half of it.

I told Sean today that because it Saturday, I am using my Strawberry Sorbet so I won’t start working on that bag of Chapstick until tomorrow. Hopefully I will finish that bag soon! That always makes me think of EXTREMELY fond memories of teaching and that student coming up with that name for my lotion. I remember that it made me laugh so much!

Once I finish this bag of Chapstick, I will go to my REAL Summer Flavor pack:

And now after this bag of Chapstick is finished, I think I have all of my seasonal flavors set! Man, when I think about it, that is a whole lot of wax on my lips!!!

Burn

I awoke to tingling feet. I hate that! I haven’t felt my feet in over 21 years but that is what wakes me up and it’s just a tingle for a little while and then the tingle turns into a burn!

I have to let my Mom know that I am awake and then she will wash my feet while they are burning. This morning, I kind of slept in a little bit and she needed to drink coffee to avoid a headache so I let her do that.

I laid in my bed and I turned to my left and I saw the light streaming through the windows and then I turn to my right and I see my wheelchair blinking because it is still plugged in.

I stared at the ceiling as I waited, I immediately thought of this song. I’m sure there have been so many songs but I can’t see past my pain right now but this morning, I thought of this song so maybe that’s an improvement. My feet burn right nw though!!!: :

Raw Meat

My Mom told me this morning when she tame into to my room to put my socks on that my feet are healing! She told me that they looked good! It was really exciting to hear that and she sent me a picture. I have been on anabiotic‘s for two weeks so maybe it’s really working.

So, I thought.

She sent me a picture of them.

I’m not sure if I cringed first or I gasped first but it looks terrible!

I told her that my feet look like they are raw meat!

She continued putting my socks on and just replied, ”Because it is!