Month: November 2019

4 Or 5%

I will have been diagnosed with having MS going on 19 years at the end of next month. I will have had it more than half of my life because I was 18 when I was diagnosed. I belong to many MS support groups both on Twitter and Facebook. When I first joined my first group, originally, I wasn’t comfortable with everyone calling themselves a, “Warrior.” Frankly, I thought it was a little bit cheesy if I am being honest.

Now that I am almost 19 years in and have a graduated from Relapsing Remitting Multiple Sclerosis to Secondary Progressive Multiple Sclerosis; I don’t think that it’s cheesy anymore. Now that I no longer work, I have time to realize how difficult every single day actually is!

For example, I went to my son’s Ring Day ceremony/mass on Friday and because I had rented a van for me to be in my motorized chair at the mass, my Mom and I went to the movies afterward. I am still trying to recover from that day out. It was really nice and I hope to chronicle it in my blog soon, once I feel better. I haven’t even watched football at all this weekend! I’m just not up to it. Michigan won and the Lions lost.

I am in pain 100% of the time. About 10% of the time, I can, “Suck it up” enough to socialize and possibly interact with people. Now, when I say 10% of the time, it’s really like 4 or 5% of the time. Maybe even 2 or 3%. It depends on the weather outside.

An Elephant Ear

I haven’t had an Elephant ear in years! I remember having that cinnamon sugary goodness on the ride home from Cedar Point when I was young. And Sean got me one from the Dearborn Homecoming a few years ago.

I have a thing for elephants and I am NOT talking about the cinnamon-sugar kind! I recently saw Holiday in the Wild at my Mom’s so suggestion and I really dug it! It got me thinking and I saw an elephant hallmark Christmas ornament. When I placed my order this year that ornament was one of the ornaments I ordered!

The ornaments arrived yesterday and Sean was home to receive them. When he opened them up though, the elephant ornament was missing an elephant ear! Today, after my Mom and I finished our morning routine, it was apparent that talking was not going to be an easy thing for me today.

Sean agreed to call the number to get the ornament replaced. I sound like I am drunk and I can’t even get the words out of my mouth very easily! My Mom and I told Sean that this was, “Adult Stuff” to try to get him to make the phone call. He didn’t really buy it but he made the phone call for me anyway.

I just received an email saying that my order has been processed. Sean needed to email a picture of the broken ornament:

As you can see, it is missing an elephant ear! I’m so glad that I will receive an unbroken ornament before Christmas this year!

ALMOST Forgotten Tune #66 + Random Songs in My YouTube Feed #18

I watched, A Milliin Little Things yesterday. That’s my show now that I stopped watching This Is Us once I saw that Randall and Beth‘s relationship was not going to last. The Vietnam footage was hard for me to watch and I told my Mom not to watch the episode when Jack died. But I am Diggin this show so far. It’s only the second season and it has proved to have a good soundtrack!

Yesterday, they played this song at the end of the show when dramatic things were happening and today it showed up in my YouTube feed;

The song fit really well in the happenings in the show and I was happy to see a live version of it in my YouTube feed! I’ve had a busy day with Sean’s Ring Day and then because I had rented a van to be able to attend the mass, my Mom and I went to the movies afterward.

I had a really long day out and I am exhausted but I wanted to post something and absentmindedly scrolling through my YouTube feed, I found this. It is another almost forgotten tune AND a random tune in my YouTube feed.

Howard Stern + The Black Crowes

So, sleep has not been coming easily to me for a while now. I guess I have entered into another phase of my secondary progressive multiple sclerosis. (SPMS). I haven’t been to a concert in years but I still love live music! These videos showed up in my YouTube feed and I shared them on Facebook but I want to chronicle them here on my blog. Now, I will include four videos out of order on how I saw them but I put them in here in the order they should be Watched.

The Black Crowes just got back together and they are guests on the Howard Stern show. I apologize that Howard Stern is a potty mouth but he’s a fan just like I am! No, I have to be a fan from a distance and I no longer sing on long but I can appreciate that I feel the music in my soul!

I think it was last month’s Faves that I shared some of these Black Crowes songs, because Sean listens to my music on our Apple Music app. I think I will post about the other album he talked about this coming month. This first one is my jam!

I love this one too and it’s like I’m at an intimate concert. I really dig it! Please excuse the cussing!

I saw this one today and I was able to put the videos in order somewhat.

When I am not feeling well, I absentmindedly scroll through my YouTube feed and I really dig the random songs I find there!

ALMOST Forgotten Tune #65 + Random Songs in My YouTube Feed #17

So I guess it’s a duel category for me these days. Random songs show up on my YouTube feed but then they are also almost forgotten tunes! I can’t just say they’re almost forgotten tunes because I saw the video I am a YouTube feed. This one showed up and it reminded me of more able-bodied days!

I no longer sing-along when I hear a good songs because I don’t have the strength to muster and get the air out of my lungs and sound out of my mouth. I think that most people I know now don’t know that I used to be able to sing but now I can’t.

This live version showed up in my YouTube feed so that’s why I am sharing here but it makes me think of other things I recently posted on Facebook.

ALMOST Forgotten Tune #64 + Random Songs in My YouTube Feed #16

I get my eyebrows waxed and hair cut yesterday because Sean’s Ring Day is tomorrow. I heard this song last night on my ride home. It made me think of my time at WMU. Bon Jovi will always remind me of my friend, Tonya, who lived on my floor, down the hall. I’m trying not to be overwhelmed at the fact that I will see Sean for the first time in his gown at mass. I think that may be pretty overwhelming for me and I’m not gonna lie about it! I most likely will cry!

Given the weather today, I paid for my shirt time out of the house yesterday because I feel absolutely terrible but I had to have clean eyebrows for tomorrow. Regardless of how I feel though, I NEED to be there tomorrow to see my Beeb in his graduation regalia. It will be good to see all of the kids, some of them home I have known since they were in preschool!

I heard this song last night and wanted to remember it so I could put it on my blog but then, it showed up in my YouTube feed anyway! I really do dig this song!:

Phase 4 = Completed.

Well, it’s taken nine days but my favorite phase is finally completed. I was completely OK with that because I put my tree up too early anyway! I also ordered my Hallmark ornaments for this year today. They should be here by Friday. Friday is Sean’s Ring Day.

Only two more phases to go!

The Voice Rabbit Hole

This morning, I checked my YouTube feed and I guess I am going down The Voice rabbit hole. I clicked on this video and was amazed! I thought of these songs all day! I don’t even watch The Voice really, I don’t even know how old this video is but:

It took me a minute to find a clean version of this song but I found it!

I’m not a Harry Styles fan but I wanted to keep this in line with the original video and so this song is in there.

But then there is this one which I ABSOLUTELY LOVE!!!

I dig this song too!




Found!

I posted on my blog on Saturday and I spoke of going to Florida for treatment with Sean and my Mom when he was little. Here’s what I wrote in part:

“I thought of that random conversation because this song came out the summer after my first year teaching. It’s the summer I went to Florida for treatment. I’m sure I have pictures of Sean from then. He was really little back then. I will have to find them.”

I was speaking about this song:

Well, I found them! Actually, Sean found them in a collage he made in kindergarten. He brought it up to me to show me and I told him that I was just speaking of these specific pictures and when we went to Florida for me to get treatment:

That was me when I was getting treatment but this next picture is the picture I was thinking of:

I can still remember taking that picture! Sean really was SO little!