I will have been diagnosed with having MS going on 19 years at the end of next month. I will have had it more than half of my life because I was 18 when I was diagnosed. I belong to many MS support groups both on Twitter and Facebook. When I first joined my first group, originally, I wasn’t comfortable with everyone calling themselves a, “Warrior.” Frankly, I thought it was a little bit cheesy if I am being honest.
Now that I am almost 19 years in and have a graduated from Relapsing Remitting Multiple Sclerosis to Secondary Progressive Multiple Sclerosis; I don’t think that it’s cheesy anymore. Now that I no longer work, I have time to realize how difficult every single day actually is!
For example, I went to my son’s Ring Day ceremony/mass on Friday and because I had rented a van for me to be in my motorized chair at the mass, my Mom and I went to the movies afterward. I am still trying to recover from that day out. It was really nice and I hope to chronicle it in my blog soon, once I feel better. I haven’t even watched football at all this weekend! I’m just not up to it. Michigan won and the Lions lost.
I am in pain 100% of the time. About 10% of the time, I can, “Suck it up” enough to socialize and possibly interact with people. Now, when I say 10% of the time, it’s really like 4 or 5% of the time. Maybe even 2 or 3%. It depends on the weather outside.