12.6.13 Going Until Fatigue

It was in the summer when I first experienced this.  I remember I was with Jesse doing free squats.  I don’t remember how many we did but I remember being SO tired.  Jesse is encouraging me to “c’mon” and I REALLY was trying!  It got to the point where I could not do anymore.  I couldn’t stand up from the squat I was attempting.  My arms and legs gave out at the same time and I found myself collapsing onto the floor.  I felt my cheeks ignite into flames and I was SO BEYOND embarrassed!!!

I think it was Jon who walked over to us clapping his hands.  “Way to go to fatigue!  Way to go to fatigue!  Way to go to fatigue!” I was too embarrassed to look at him as Jesse walked over and picked me up and put me back into my chair.  We were going to rest a little and do some more.  I remember not understanding why they thought me collapsing was a good thing.  Chris talked to me about this just last month (a different Chris but still an intern).  He said it is hard to get people to push themselves to that point.  I told him that it’s embarrassing!  

Then I remembered what Mike told me that first day.  It is in the “overwork” that the muscles will find a way to tell the spine what they are doing.  My original pathways of communication between my spine and muscles are all messed up with scar tissue.  We have to “trick” the body into making new pathways.  I remember thinking as this was explained to me DUH!  I will walk.  If my body can go to level 10, they’re going to push it to level 15.  It is in between that level 10 and 15 that new pathways are being made.   I just have to get to level 15.  It’s not the easiest task and sometimes I “chicken out” but other times I can go until fatigue.  My guys just pick me up and put me back in my chair.  Jesse has done it.  Jon has done it.  Chris has done it.  And now, Phil does it too.  It did take a while for me to get kind of comfortable with this.  I consider myself kind of hefty and I can’t help with the lifting in this instance. 

I texted Phil and asked him if I worked hard at training last night.  He responded “very.” I asked him how so and he said that my stands (I stood for about 1:45) and leg curls and extensions were “good” and we hadn’t done manual leg presses in a while and he said they “weren’t bad.”  He DID have to come over from the other side of the bar to put me back in my chair once.  When he does it like that, I told him that now I know what the sled feels like when lineman have to push it at football practice.

I saw the Instagram video of me walking not too long ago (my son has an account).  I think that my steps now are more steady.  I think my body can go to level 20 now but they still push it to level 25.  My Dad was a sergeant in the Army in Vietnam.  He used to tell me along with the “grabbing my guts” and “being a man about it” that he knew I could do it because “the blood of STRONG Mexicans runs through my veins.” I’ve been thinking about him A LOT and I wear his socks to training often but NOT on Wednesday – that is reserved for my Duck Dynasty camo socks.  But I will continue to try to go until fatigue until I can just do it outright.  In the meantime, Phil will just have to pick me up.

Reflections on 12.4.13 “Walking Wednesday” #9

12.6 otto for Success

This was my thought for today in my Mottos for Success book.  I thought it strange that now that I am ACTIVELY doing something to get myself able to walk again, I am having difficulty seeing it in my mind.  I’ve been dreaming about walking for so long, even if my dream is something mundane like cleaning the bathroom (I miss getting on my hands and knees to scrub the tub now that I can’t do it anymore).  I would say that 99% of my dreams are of me with an able body.  I often dream about running marathons or that I am a ballet dancer.

I remember someone from my parish commenting on me being in a chair and to get out.  That was about 4 years ago.  I thought I will be stuck in this chair for the rest of my life – she just didn’t get it.  Then 2 strangers the following year told me at work that they did not see me being in this chair forever.  Students who I have taught over the years have told me that they have had dreams where I am walking up the stairs at school.  I used to have visions of myself walking across the classroom when I used to teach English.  It is strange that NOW, I am having difficulty seeing it.  Even Dusty at Barwis Methods told me that he sees A LOT of people in wheelchairs (he works at the front desk) and there is something different about me.

I have to believe that it will happen.  Like, REALLY believe!  Even if I am having difficulty seeing it now, I have to work on believing.  Lately, I haven’t had dreams that are as vivid to me the next morning.  All my trainers at Barwis have told me it will happen and that they see it.  I have faith in them; of this I am positive.  I just have to get over the road block in my mind that I am having these days.  When I do this, I will have the “reward greater than I can imagine.”  In the meantime, I will work hard at training tonight.

12.4.13 “Walking Wednesday” #9

It had been 1 week since I was at Barwis last.  With the holiday, I did NOT go to training on Friday and I did NOT go on Monday either.  Sean and I had cleaning appointments at the dentist.  You NEED to have clean teeth!  I could tell me legs felt a bit tight but I figured Phil would “warm it up” like he always does.   He had asked me if my legs felt tight because it was wet outside and I said “yeah,” kind of noncommittally.  I guessed. After he stretched out my legs as I sat in my chair, he told me to stand up.  Standing still felt awkward.  It felt like it did when I first got my crutches 10 years ago.  It feels like someone was standing behind me with their hands on my hips.  As I am trying to stand, they are pushing my hips down toward the floor.  Whoever is standing behind me is pushing my hips down really forcefully!  It is a fight to stand!

Phil had me stand at the Keiser machine and use the bar to help me stand.  We tried that a few times.  Phil sat down facing me to hold me knees in place as I stood.  Standing was extremely difficult!  He had me do a few squats with my wheelchair behind me.  I would not do a full squat, just until my butt hit the chair and then I would stand again.  We tried THAT a few more times. As standing still was difficult, I began to let go of the hope of it being a “Walking Wednesday.”  Phil told me to head over to the table and that we would not walk today.

I will say that it is kind of sad to hear that.  I WANT to walk.  But I have faith in Phil just like I had faith in Jesse.  He knows what he is doing.  The walking will come like everyone has told me.  Mike has told me that there will be ups and downs and it is part of my journey.  It will come.  My Dad used to tell us kids when he called us and we would respond, “I’m coming” very lazily.   My Dad would respond. “I don’t want you coming; I want you here!”  As a kid, I didn’t understand that statement.  How am I going to get there if I am not coming?!  As an adult, I now understand the urgency that my Dad wanted us to be there instead of the lax “coming” reply we were giving him.  So, I don’t want the walking coming.  I want it here!

At the table, we did leg curls and extensions.  Phil worked on the muscles in my hips to loosen them up.  My legs and hips felt better, looser.  Phil told me we’ll work on them more on Friday.  I asked if we’re going to make it a “Walking Friday” then.  He shook his head and told me that we’ll keep the walking for Wednesdays.  He put me in my car when I was done.  As I drove home, it stated to rain.  It was sad.  It was dark and rainy and not even a good radio day in the car.

I wish my journey was linear.  I wish it just got better and better.  I wish my ability would match my desire to obtain it.  I don’t think I am asking too much!  I just want to walk!

All-Time Christmas Faves 2013

It TOTALLY is NOT Christmas without these tunes!!!

“Last Christmas”  Wham!

“I Want a Hippopotamus for Christmas”  Gayla Peevey

“Have Yourself a Merry Little Christmas”  Judy Garland

“Merry Christmas, Darling”  Karen Carpenter

“All I Want For Christmas Is You”  Mariah Carey

Feliz Navidad” Jose Feliciano – DUH!

“Christmas Shoes” Alabama

“Shake Up Christmas”  Train

“Mary, Did You Know?”  Cee Lo Green

“Please Come Home for Christmas”  Bon Jovi

“O, Holy Night”  Jon Secada

“River”  Sarah McLachlan – Parker digs this one so I do now too.

“”Baby, Please Come Home” U2

 

December 2013 Faves

I DON’T normally listen to anything but Christmas music in December but the fm Christmas station is ALWAYS on a commercial and that drives me NUTS!  So I am diggin’ these songs in between Christmas music.

“Human”  Christina Perri

“The Best Day of My Life”  American Authors

Demons”  Imagine Dragons

“Bonfire Heart”  James Blunt

“Safe and Sound”  Capital Cities – I don’t know that I dig this one but my son says it’s his friend’s favorite song and then he (my son) dances like his friend.  He told me that it reminds me of 2 people so I have to post it.  So…

“All of Me”  John Legend

“Love Don’t Die”  The Fray

NOT COOL Stuff #3

I was reminded of this NOT COOL experience TWICE this weekend.  I am aware that this world is NOT fully handicapped accessible.  I get around the best I can in spite of these obstacles and/or barriers.  The NOT COOL part comes when able-bodied people take advantage of the accommodations made for disabled people. 

There is a reason restroom stalls are larger to accommodate wheelchairs or parking spaces are wider to allow for the extra room needed to get in and out of a car and into a wheelchair.  Or even dressing rooms.  They are bigger because wheelchairs need the extra room, not so multiple people can try on clothes together.  If I didn’t need the extra room; I wouldn’t use it.  If I didn’t need to park closer because it is SO hard to get in and out of my car/chair; I wouldn’t.  But I DO.  But I CAN’T when someone who doesn’t NEED TO does.  I don’t like it when there are 9 empty stalls in the restroom and I cannot fit in to any of them but the 1 stall I can fit into is being used by an able-bodied person.  So I have to wait.

The reason these accommodations are made, is so disabled people can use the parking space, the restroom, or the dressing room.  If you are ABLE to use a smaller one, PLEASE do.  I wish I didn’t need the extra space and I am working on NOT needing it.  In the meantime, PLEASE leave the spot available for anyone who does NEED it.

I LOVE Dearborn Police!

Last night, my son and I picked up some A&W.  We chose to eat-in (my son LOVES to ring the bell when we leave).  Our parking was a little bit strange (goes along with my NOT COOL Stuff #3).  My car has a chair topper that houses my wheelchair on top of my car when I drive.  An arm comes down and picks my chair up as I am seated in the drivers seat.  My car is also equipped with hand controls.  Upon getting into the car, we were able to get my chair topper in the down position and then it stopped working.  It would not go up or down with the control switch.  I imagine it was some sort of electrical short but I did what EVERYONE does in situations where they do not know what to do.  I called my Mom.  She was sick and could not help me.  I had already called the after-hours emergency number and left a message.  My Mom suggested calling AAA.  I could not drive my car with the chair topper in the down position; I couldn’t even get out of the car.  The chair topper didn’t allow me to get out of the car or to shut the door.  I was listening to the automated list of what number to dial for AAA when I thought, they really can’t help me.  My car is running.  I just can’t get the chair topper to work.

Then I thought of a conversation I had with my brother this past summer who is a Sergent for the Detroit Police.  He told me to “call the cops, they will come.  You live in Dearborn.”  So, I called the non-emergency phone number for the Dearborn Police.  Two officers showed up and I explained that there is a manual way to engage the chair topper to close it up but I didn’t know how to do it.  I called the after-hours number again.  As these two officers were looking at the chair topper trying to figure it out, another car with two more officers pulled up.

One officer popped my hood because that was were the hand controls are routed through, another officer was google-ing how to work the chair topper manually on his phone, a third officer was shining his light into the chair topper trying to figure out how to work it.  I wasn’t sure where the fourth officer was.  I was sitting in the car with my heat blasting, not sure what to do for work the next day.  The forth officer starts telling the other officers walking them through what to do.  I turn my head and see that he is on the phone.  It sounds like he is talking to someone who knows what to do.  As he is about to hang up the phone, he asks if I got the modifications done to my car at Advantage Mobility.  My eyes light up and I said “yes!”   No wonder Arnie wasn’t answering my calls!  He was talking to this police officer!

The officers were able to get my chair topper closed for me (my son had already stowed my chair in the trunk).  And then we were good to go.  As we drove away, I looked at my son and said, “It pays to live in Dearborn.”  I have lived in Dearborn my entire life.  My parents lived (and my Mom still lives) in East Dearborn.  We moved into our first apartment when Sean was 3 also in Dearborn.  When he was 5, we moved to a larger apartment in the same complex.  We moved to our house in West Dearborn when he was 7.  It’s times like this one when I am reminded why I truly enjoy living in Dearborn.  But I think this whole ordeal happened because this is what I get for cheating!  I’m not supposed to have root beer floats! (Even though it was really good).