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My blood pressure started running low very soon after I was diagnosed with MS in December 2000. I think it had to be 2003 because my Dad was still alive because I left Sean him but my Mom took me to my Neurology appointment. I am not sure why she took me but I remember my blood pressure reading. It was 90/50 and my Mom was very surprised and asked me why I was not dead?! The nurse who took my blood pressure reading told her that some people run low.

I think that was because of the MS diagnosis. Fast forward to the ambulance ride to the hospital after my meniscus was torn in 2016, the EMT took it and told me that it was normal. 135/80 or something like that. I told him that I normally run 90/50 and then he noted that. chart and told me that my blood pressure is really high right now! I was just injured! Of course it was!

My blood pressure on Friday was 106/65 but there seems to be a new development when I get my blood pressure read:

I think that I am becoming so sensitive now that I seem to get hickeys from blood pressure cuffs each time! I took this picture on Sunday night and my blood pressure was read Friday afternoon.

So today was technically a, “Recovery Day,” I had to put my contacts in today because I needed to Pillage!:

This picture will ALWAYS remind me of putting the newspapers in the recycle bin after I read the comics so I may as well put it here!

My Dad always read the paper and he told us kids to do the same. I’m thinking about him a lot lately… I am still trying to digest my appointment yesterday. It went well, but I think I need to remind people that. #DPM2!!! The hallways and doors were TOO narrow and it was so difficult for me. My Mom told me that no one would think that by looking at me, but I was COMPLETELY on edge the entire time! I’m too tired to write about it now, but I will think about it more and write about it tomorrow.

So, I became aware of my hips a few days ago. It was not necessarily hurting, but just a little odd. But now, I have gone from awareness to a moan. It’s just a moan because it doesn’t hurt So much but something is moving. I have to be ginger with it! My Mom will get a little exasperated, and I have to remind her that I have osteoporosis and my bones are getting thin!

I don’t see my endocrinologist until May 16. I did looked it up. It’s a woman and she is a fellow, first year fellow. I told my Mom that I think I may be like a deer in headlights at this appointment so she should take point. I think. I will see her two months before I see Dr. Skatf’s replacement, because he retired as well.

I think I was aware of my hips for a few days but now I’ve started moaning and I wonder when it will turn into a groan and when it will really hurt whenever I move!

I heard this song last night while I was playing Traffic Escape!. I hadn’t heard it in a long time and I think it’s crazy how times change!!! I decided to put the clean version here:

My Mom went to get her hair colored today and then she is going to see my aunt Linda because she will be close to her house for her appointment. I was thinking that I was going to watch Me Before You:

Of course, I cried when I watched it! I took a breath, and then I searched another movie. The Upside:

And, I cried at this one as well! These two movies prove the point that “Disability is for the Rich.” I am NOT rich! I think that I just wanted to watch these movies because both of those actors in power chairs are NOT disabled and I AM and I am IN a power chair! I winced at the horse races scene in You Before Me and I groaned when Lily was eating dinner with Philip. I knew that it would be cathartic for me to see both of these movies. I’m glad I watched them but it was kind of difficult today!

I awakened this morning to the smell of my Mom making apple pie! The smell of apple pie baking is a glorious smell to wake up to!!! This is the third year that I ever smelled her making pies!

Now that I am an adult, I realize how much work she puts into those pies and it is so much!!! With my Mom being here since March 13, 2020 I have smelled smells in my house that I never would’ve thought would’ve been the case!!!

With the progression of my MS, I tell my Mom that eating is no longer easy or enjoyable! That is the truth! I think it is a little bit sad, but it’s true. But I ABSOLUTELY LOVE the smells of my Mom making food that I can no longer eat because I grew up smelling these smells!

“Go Time” had a slight change of plan this month. Instead of having two doubleheaders, one today and one on Friday, today I just got my haircut. My doctor was injured so he was out of the office today. I just ordered supplements from them instead.

I like that I was able to place all of my orders! I think I will crash tonight because I am a little tired and then I will twilight sleep on Thursday night because that “Go Time” is a bit intense to say the least!

I’m glad that all of these appointments are in the same exact building because I have a specialist appointment at 2:30 and then an appointment at 4:10 with my internist. I have already spoken to her and she ordered bloodwork for me to get done between appointments.

I am just a little bit nervous about this one! But after Friday, I can crash big time and then the next day out is April 17.

So, today is St. Patrick’s Day, and I’m rocking my shirt! I took this picture last year and my hair is shorter now, but;

I clearly remember that day, it’s when I got my state ID renewed, and I was trying too hard to handle it myself! That was a really rough day, but it got done! Today, I did nothing! I am just gearing up for my two doubleheaders next week!

Since it’s St. Patrick’s Day, I always wanted red hair when I was a child! I sent this real to my brother. If you have Facebook, you can watch it yourself:

https://www.facebook.com/share/r/Q9FGi8VcW3KiyLvQ/?mibextid=UalRPS

We watched, Darby o’Gill, and the little people because today is today!

We just watched the second half of Ben Hur. That movie gets me every time, especially because I’m an adult now! The second half is the chariot race and when Judah gets his sister from the leper colony. I bought this movie when Sean was 10. We watched it for the first time together. It’s our Easter staple! I’ve already seen it three times this year… It was made in 1959, but I absolutely love it and still think it is Epic!!! I still have two more weeks of Lent to watch it!

This song keeps popping into my head, and because I am into country music right now, I have a memory of pulling out of my carport and going over the speed bumps leaving our apartment complex as this song is playing. I was still driving with my feet then, I think: