“I Do Not Understand!” OR Heavier

So, my face hurts. High School Musical has been playing in my head and reminding me of my teaching days when I showed this video before we started reading The Outsiders.
We were talking about cliques in schools. That was a precursor lesson to discussions about the Greasers and the Socs.

What has been playing in my head is Sharpay saying that she doesn’t understand at the end of the song:

I thought that the Egyptian Magic cream/oil would make my face feel better, but it didn’t. It felt heavier than the coconut oil which felt like toner, but the Egyptian Magic felt like cream, but I think my skin is too sensitive for that now. I ordered CeraVe and it is coming tomorrow so I am wearing the Egyptian miracle tonight as well. Heavier is better. I really don’t understand what’s going on with my face!

My cheeks and my nose are not as red as they were with the coconut oil. I’m actually looking forward to the CeraVe and hopefully I’ll get a little more relief. #ItSucksToSuck!!! #MSsucks!!! 😒😒😒,..

T-30

I was thinking about the fact that next week is ‘go time.’ I’m already thinking about what bills I need to pay and the monthly necessities I need to order once my check is deposited.

I really can’t believe my life is like this now but it is. I more clearly thought about what my vaccine schedules should be. I can’t get my second shingles shot in May because I am getting my Covid shot. I get that every six months. I am more clearly seeing the doctors that I need to see as well. I’m hoping to add the vascular surgeon for June. That’s the doctor to handle the circulatory system.

My Mom asked me the date today and when I told her, I said, “Hey, my birthday is in a month.” She asked me how I feel about that and I didn’t have an answer. I thought about it for a while, and my answer is, “Eh.”

I, historically would love my birthday, and start an countdownuntil the day. Since it is February 12, which is Bobby Garrigan’s birthday, my birthday is in one month. T-30; but, given my current situation and it will be this way until I die. it’s whatever, I think.

100%

Well, it’s here.

I guess that I have never really about it.

But, sadly it’s here. My life is 100% MS.

I pillaged today and it is getting so difficult to distribute the pills.

I was thinking about my vaccine schedule and I think that I should get my first shingles shot in March when I see Dr. Chamas. That way, it will be in the Henry ford health system and then I can get my second shot downtown after my neural ophthalmologist appointment.

That will be one day after two months from my first shot. I’m going to ask Savannah in March before my appointment with Dr. Chamas about getting a shingles shot.

Meijer pharmacy already said that I was approved and they have that information in the MICR record of vaccinations in Michigan. I don’t anticipate a problem, but I will go to Meijer if it is.

This is all my mind thinks about now.. I never expected this, but this is how it is now. #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…

A Prednisone Dog

So, Leia come to us in April 2020. It took a few months, but we found out that she has really bad skin! We tried a lot of things, but it did not work for her at all.

it was decided that she would just become a prednisone dog. The vet told us it would shorten her life, but it is the only thing that helped with the itching.

Well, it’s been a few years and we have decided to take her off prednisone. It was affecting her organs too much.

So, if anyone has any suggestions how to help with her itching, I would love ideas!!! #MyGirlL he’s kind of a mess right now and it’s a little bit scary… please be specific. Pictures would be great.

A Sean Bowl

Sean came over today and we watched the Rams Bears game. It was a good time and I’m glad that they won! It sets up a Sean Bowl next weekend and I’m kind of excited. I’m sure that Sean McVay will be victorious; at least that’s what I hope!

Creamy Chocolate Fudge

I had a chocolate shake today. I only have two more of them until it’s all Sweet Vanilla Bean.

This is an example of how similar it looks to the Iced Mocha Café flavor:

Screenshot

No wonder my Mom gave me the coffee one. They look the same! But having the coffee one first made the chocolate one not taste so terrible so now for January, I am going to order two chocolate 12 packs. And one 12 pack of Strawberries and Cream because I want to try that out. I know that I will handle it if I don’t like it!

I’m just going with the changes (and there are SO MANY changes) and I need the nutrition so…

Involuntary Moans

Well, I have had MS for 25 years and three days. What I can tell you is that now, 25 years of having MS is filled with involuntary moans. It totally surprised me when it started happening, but it has not stopped in these past three days. My bones hurt! It hurts to move! I am having another bone density scan on January 22.

It’s made me a little bit nervous that I am going to see the podiatrist on January 20. I did that last January, had to make additional appointments off the cuff and 2025 was ABSOLUTELY TERRIBLE and my credit card is still recovering!

I just hope these moans are NOT an everyday thing, but it has been for the past three days so I’m not looking forward to days ahead…

Blowing my Mind!

I shared this meme on what was yesterday now because it is 12:05 am:

I know exactly what day it is! It was December 27. That was Sean’s due date. I told him that today and he was surprised and said, “My birthday was a long time ago!” I told him that I knew.

It also is my childhood friend’s birthday. Now it 12:09 am. I still feel like it’s the 27th but when I wake up, it will be 25 years that I have been diagnosed with MS.

That fact is completely blowing my mind and I never would have thought that I would be as disabled as I am right now! My head still is swimming, but I’m just going with it. Tomorrow I will be quiet. I always am.

#ItSucksToSuck!!! and #MSsucks!!! 😒😒😒…

4 Blog Posts

I woke up today in the late morning and my head felt clearer than it did yesterday. I am so relieved that I have nowhere to go until January 20. This past year has been absolutely brutal!!!

I did not feel well at all yesterday and I read four blog posts that have stayed in my mind, crystal clearly, for 25 years. In nine days, it will be 25 years. I can’t believe that at all!

I am going to repost those four blog posts because in reading them, I can see everything in my mind still!!! I never imagined that my MS would be where it is today… #ItSucksToSuck #MSsucks!!! 😒😒😒…