Category: Uncategorized

I know that this really doesn’t matter but thank you!!!:

I should really think about proof-reading!!!

I was reminded of how much I do not like the change of seasons today. There is nothing like waking up to the sound of slick wheels on the asphalt?! it’s terrible! It has been terrible all day! But at least it’s raining and not snowing. My body does not like this at all!

I just wish that it would be a quick transition, but something tells me that it’s not going to be. This morning, I thought, “Oh, yeah!”

It’s a good thing that I have practice with these weather transitions. The thing is though, it’s only getting worse now after 25 years…

I sneezed a bunch during our routine today as my Mom was putting on my socks. She asked me what was going on, and I simply stated, “Change of season.

It’s a really good thing that we have not stopped using that Egyptian miracle on my face and I feel like it will be more chafed this evening!

My Mom counted the stuffing boxes today as well. I have six turkey and 13 chicken. She asked me when I was gonna change out the flavor, and I told her, “Soon.”

I’m currently using the Vanilla Bean chapstick but I think I may feel/smell the change in season when I leave the house on the 18th. I will be 44 then. Now I have to message my doctor. I really cannot believe that my life is this way?! #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…

So, my February appointments are done and now it’s just time for me to settle in. I will not leave the house until March 18. I will be 44 years old then. I have a bunch of things to do regarding my internist appointment and I understand what I need to do. I will make that call on Wednesday. In fact, I will probably write it all in MyChart on Tuesday night.

This year is so much easier than last year! We found out how much can rentals cost last year and it’s a lot. I like that so far, I’ve just had two appointments each month. I had already budgeted for that years ago.

I might have three appointments in August and October but I’ll work that out. After I message Dr. Chamas’ nurse, I’m going to make an appointment for June for my circulatory system. I am settling into doing the same thing every day because that’s what I do. My Mom really does not understand that but it’s true.

I never once expected this to be my life, but it is and it makes sense to me. I’m settling in until March 18th. It has been too cold for too long and it’s doing insane things to my body.!!!

#ItSucksToSuck!!! #MSsucks!!! 😒😒😒…

I had my appointment today. The very first of its kind. It’s interesting. Before I left, I’m going again in August. My appointment was at 2 o’clock. I did not get down to the lobby until 4:28:

I snapped this picture in the hallway because it was my exam room number:

After I did that, my Mom took a picture of the exam room:

Jason and Chelsea prepped me and Dr. K was in the room for about five minutes. I have entered a new realm of dealing with MS now…

With that being said, #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…

I am already thinking about my appointment on Wednesday because my Mom needs to pick up the van Tuesday evening because my appointment on Wednesday is at 2 o’clock. She wouldn’t be able to pick up the van in the morning and get me ready to go to my appointment.

Van rentals are 24 hours periods. My Mom is picking up the van tomorrow just before they close so then she can return it on Wednesday just before they close.

I am thinking about this today because tomorrow, I will set my alarm for 6:30. I am not used to having procedures in the middle of the day at the hospital. This disease progression ain’t no joke and I have never had one of these procedures before so I’m a little bit nervous because the last procedure I had related to this one did not feel good at all for eight days!

My Mom did my taxes last Saturday (I have to get them done early now ever since I was scammed) We figured out how many van rentals I had last year. I did the math and it cost me 4.6% of my income to rent vans. My medical care last year exceeded what I was making my final year teaching. I’m really hoping that this year it calms down a little bit.

I am not so sure about that though… #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…

I love this song! I thought of it today and thought I’d share:

it has for my virtual endocrinology appointment today, I have to have another bone scan. A little bit different than the bone density one but based on that scan, they will see if I need any treatment.

I already can tell you that I will not take treatment from them. I have been treating my Multiple Sclerosis naturally. 25 years in, I am straddled on the line between eastern and western medicine. Eastern medicine is on my left and western is on my right. I am left-handed. At this point, I’m kind of leaning on my left hip because my right hip has osteoporosis.

Mu naturopath constantly tells me to check in with my medical doctors which I regularly do. This year, I’m not going to be able to see him until July because I have appointments with different specialties each month until then.

Today, the endocrinologist told me that I need a different test because it’s a little bit iinconclusive. She told me not to rush it, but the orders are in for it.

so this is how it worked for my virtual endocrinology appointment. Now, she told me that today on February 19. I will have that scan in October. I told Sean about it and he needs to come because it needs to be performed at New Center One and they do not have a hoyer lift team there.

This year, I only had three months available without a doctor appointment. It was June, July, and October because I don’t have appointments in October because we go to the Cider Mill. This year, I am going to have an appointment in October.

Well, my face feels better. My Mom really rubbed the Egyptian Magic on my face last night and it feels better. It was already looking better last night:

The CeraVe arrived today, but I don’t think I’m going to switch horses now. I also am going to order the Jergen’s Sweet Citrus lotion as suggested by my aunt Liss because she is my Dad’s sister and I feel that my skin is going to be a thing for me now.

It really reminded me of my middle school science project by posting these pictures of my face and I’m glad that it took a village and all of your suggestions helped out!!!

I never thought my skin on my face would be so sensitive as it is now but I think this is going to work!!! Thank you, Mrs. Hutcherson and Natalie!!!

My hair is cut and my eyebrows are waxed. I have to wake up tomorrow as well because I have a virtual appointment with an endocrinologist to discuss my bone density scan from last month.

I have to leave the house next week as well to see the urologist for a procedure which I think is not going to be comfortable at all! I’m a little bit nervous about that. Based on their findings, I’ll know when I need to see that doctor again. This disease regression is so much!!! I can’t even say too much because it’s happening!!!