This category is full of randomness that really doesn’t fit nicely into any of the categories having to do with my road to walking.
We are still feeding Leia band food. She finished her medication to stop her from throwing up and she has not thrown up since. She has been pretty listless but today, she walked up to me with her pool toy in her mouth:
She looked like she wanted to play. I grabbed one end and learned that she didn’t have a strong grab so I just shook my hand and a little bit and she bit down harder and played for just a teeny, tiny bit. I am focusing on the progress but she is not better yet…
I saw this song not too long ago in my YouTube feed. Of course, I had to share it on Facebook and tag my brother because I remember sitting in the bleachers of Sean’s football game with the Dearborn Lions. We just Heard the introductory bars and I completely called this song! My brother and I have a pretty rich history with U2 songs!:
So my wonkiness is continuing for a second day. I didn’t even get my hair washed because I don’t feel well. I just put it up in a ponytail because I have one of those now.
It started yesterday when I sat in my chair in and out of sleep and I listened to Sara Bareilles. I used to sing along with her for all of her songs but I no longer can carry a tune like that but rest assured that I am singing along in my head!!! This song has been in my hand for two days now. I have never shared it before on my blog but here it is:
The garbage feeling continues today. My eyelids hurt and I can’t control my body temperature. 😒😒😒
Oh, man! My eyes hurt!!! Thought of this song as I recline in my chair with my eyes closed:
It was a rough start this morning but I told myself that I refused to succumb to, “MS-y Day 4!” I could hear my Dad‘s voice in my head and I grabbed my guts!!! It was that easy I know but I saw this on Facebook and I had to live it today!:
I look forward to being even stronger tomorrow because I have a lot of blogs to post!
This morning, I wasn’t feeling it. I didn’t feel well but then my friend and our grocery shopper dropped the groceries on the porch and got me this:
I haven’t really eaten donuts for years but she knows these are my favorite! (It was Chocolate Dip) And today’s Thursday! That IS my favorite day of the week! So, with this whole quarantine thing, I ate it. It was delicious!
After I ate the donut, my Mom and I got me ready for the day. When we were just about finished, she got a phone call from her former coworker, Miss Michelle. She works at the Dearborn Early Learning Center. She called and told my Mom that she and Miss Jennifer got me something and she left it on the porch.
Both Miss Michelle and Miss Jennifer worked in the Dearborn Early Learning Center when Sean was a student there in preschool. She told my Mom that they wanted to let me know that I did a good job.
My Mom started working there when Sean was a student in kindergarten there. Both of these women watched Sean grow up over the years. My Mom brought the present to me and I cried! I pushed some things aside from the desk that is under my television so I could look at it for the rest of the day:
I made this picture of my temporary profile picture on Facebook and my profile picture on Twitter. This is what our life is like right now! I ABSOLUTELY loved getting this picture in a frame today so I can have it forever!!! Thank you Miss Michelle and Miss Jennifer!!!
Well now, this was an excellent Thursday! It’s not my FAVORITE day for nothing!
I realized yesterday why I have short hair. Not having had a haircut since February, (because I canceled my March appointment which was the very beginning of the pandemic) my hair has gotten pretty long! It’s really uncomfortable having hair on my neck and shoulders and I don’t like it. A couple weeks ago, I was finally able to put it back into a ponytail.
I put my hair up in a haphazard ponytail when I was half awake yesterday. By the time my Mom and I finished our routine, I combed my hair and could not raise my arms to put a new ponytail in my hair. I looked at my Mom and gingerly asked her if she could put my hair in a ponytail for me.
She hasn’t done that for me for almost 30 years! So, she combed my hair and gathered it up to make a ponytail. As she combed my hair, I was taken back to being a little girl. Then she asked me, “Do you want a high pony or low pony?” I laughed because she used to ask me that when I was a child. I always picked a, “High pony” when I was young but yesterday, I told her, “Low pony” because I am a woman now.
Today was the same thing because #MSsucks and she gave me another, “Low pony.”
So, the storage my phone is full because I am still rocking my iPhone 7s. I’ve been clearing out emails all day and so I decided to delete some photos in my camera roll. I came across a few pictures that I wanted to write a blog post about but I didn’t. I guess I’ll do that soon, when my storage is cleared out enough to post pictures…
Last night, I found out that Sean‘s friend Who he has known and going to school with since preschool’s grandpa died. Of course that saddened me because I know them and have for a long time as the boys grew.
Then, this morning, I found out that, “My family priest” died in a boating accident. The accident happened last night and his body was found this morning.
These things have made me extremely sad! Today, my face started to hurt from crying so much. I was reminded of how my face felt when my Dad died. It REALLY hurt then and I almost passed out in church twice and the once at the mausoleum. Then, I was devastated and it felt as if my world had cracked. I was completely overwrought!
I have been crying on and off all day today at hearing my Mom talk with my brother about why he is to me, “My family priest.” He came to my Parents’ house and gave my Dad last rites, heard his final confession, and presided over his funeral mass.
Before he did that, I searched him out to have them baptize Sean. I always remember that when I told him what I named him, he asked me how I spelled it. I told him and his response was, “That’s correct” because I spell Sean‘s name the proper Gaelic way.
Just after the funeral mass, we had a picture taken at Sean’s baptism of my family up to that point. (My Parents, my brothers, and the five grandchildren who are alive at the time). Because that picture was our entire family at the time, my Mom asked me if we could put it in my dance coffin that would ultimately be cremated.
I agreed but somehow, today, I wish I had that picture to look at. So, yes, I have been crying on and off all day thinking of these two deaths. I most definitely am saddened but I am not overwrought like when my Dad died. Instead, I am wrought.