Category: A Bit Of Randomness

This category is full of randomness that really doesn’t fit nicely into any of the categories having to do with my road to walking.

Rubble.

I had just gotten into bed last night when my Mom told me that she drove by St. Al’s and she took pictures. I laid there under my covers and just kind of grunted. She asked me if I wanted to see the pictures and I told her that I didn’t.

I didn’t think I could handle it because I knew that it’s going to be sad. I asked her what it looked like and she just said, “Rubble.” I let that word sink in for a moment and then I told her that I HAD TO see the pictures and she gave me her phone:

Once I looked at the picture, I gasped! I couldn’t even say anything. Mom was right, it’s rubble. Just as I was handing her the phone, I asked her to send the picture to me. Then I asked a rhetorical question. “Do you know how many memories I have on this plot of land?!”

My ENTIRE education is in that plot of land from kindergarten to 12th grade. The biggest thing that got me though was the fact that you can see the church in the back on the right. I received all of my sacraments in that church and my Dad was buried out of that church. I have seen the grade and I school for my entire life and now it is no longer there!

Handled.

This whole thing has taken me a couple days to get my thoughts together in order to write about them. But after my scheduled appointment with the specialist, a phone call from my medical supply company, and then my mom needed to speak with them, it’s all handled. Let me ‘splain ya:

So me and my Mom started noticing that I was having problems with some of my medical supplies. We thought about it for a little bit and then I messaged my PCP for her input on what was going on with me. The next morning I received the number that I needed to call. I had already written about the day. I spoke with Kiara and I was able to get an appointment three weeks from the day I called to make the appointment.

I was prepared to have an appointment six months out because that’s how it works. All the doctors I need to see, are specialists and it is extremely difficult to get in to see them.

We went to see that doctor last Friday, I explained to my Mom what was going to happen because I have had MS for so long, and I have been in this hospital system for equally as long! There was a problem after I signed in, so we had to wait to see the doctor, but we saw him.

I was not nervous at all and I just told him what I needed and he did that. Actually, he said that the nurse would do that after we left. My Mom called my medical supply company on Monday to see if my prescription was amended. They told my Mom that their nurse would be calling her back.

I need to first explain that how things are going now and it is very new to me! But I will explain it by what happened on Tuesday afternoon. My Mom had gone to her house to do some work and I was sleeping. I was going to call her when I woke up. Waking up for me now is a ‘stutter start.’ I had kind of awakened, but I still felt groggy so I put on an audio rosary to either fall back asleep, or wake up. As I was listening to the rosary, my phone started buzzing.

I picked up my phone as it was buzzing and looked at the display. It’s said, ‘J&B Medical Supply.’ That is my medical supply company. I think they have been my medical supply company for about a decade. How I was feeling, I could not even form any words in my mouth because I was not awake yet. I just let my phone buzz.

I actually let my rosary finish before I sat up in my bed, and I texted my Mom. After a little while, I thought to call her in case she missed the text. She answered, and said that she was on the phone with J &B.

There is no longer is any ‘Espace’ between me and my Mom and she answered all of the medical questions they needed because she knows it all even though we weren’t even in the same room! We talked when she got back to my house and we both agreed that I have been on this ride for a long time and after all that, it is handled.

One of these Things is NOT Like the Other

Today was the day to finally start my new Fall flavor package:

I am using my spring/summer box until my Fall flavor box gets used up. Let me ‘splain ya:

My Fall flavored box won’t come out until October 1 when I start watching Hocus Pocus! I am in the middle of finishing my chapstick from last fall., So, I put my four pack of Fall flavors in my spring box because the only chapstick I have left in there is one Strawberry Sorbet that I only use on Saturdays. I didn’t really like it but I’m not going to waste it so that’s taking a little time to get used up!

This box, which is my Fall flavor box will not come out until October 1. I have an extra tube of Salted Caramel, which I really don’t like but it came with my Christmas flavors so I have to use that up as well.

I will only use the Pomegranate flavor until October 1. The rest are sealed until my Fall flavors really come out! In the meantime, one of these things are not like the other!:

Grateful

As I was pillaging today, I got this over whelming feeling of gratitude!

I was beyond grateful for the fact that my Mom is helping me pay for my vitamins, because they are making me feel so much better when in reality, I am feeling so much worse!

Since going back to my naturopath, I really feel better!!! My Mom is the one who called and made the appointment! I am so grateful! Nothing with this disease is easy at all, but I really feel that I have carved out a good plan that works for me! It’s NOT easy AT ALL and it hurts but I think I figured it out and I’m grateful for that!!!

Rando Tune #49

I was scrolling through my phone last night, and I saw a short of Mariah Carey singing “My All.” Of course I had to click on it, and then I stopped halfway through because it was a live video and it wasn’t that great of a performance so I decided to wait until I got into bed so I could give it justice as I listened!

I was a Sophomore in high school again, and I liked thinking about that! I still know all of the words, but I no longer can sing them. I’ll just put the video here:

Happiness for Beginners

My Mom suggested this movie yesterday and we watched it and I thought it was hilarious!

Today, I had my solo encore presentation just to get whatever I missed yesterday and to continue to laugh at all of their banter! Hugh was my fave!!!

I think I may make it a triple play because I think there are things that I was still missing. I will watch it without my contacts on on my phone. Optic Neuritis is not like what’s going on with Jake but I think it’s a bit close. May be a little too close for comfort…

The progression of my Optic Neuritis, although it started when I was pregnant in my right eye and my left eye joined the optic neuritis party when Sean was maybe 10? He’s 21 now so it has progressed but I get the gist of everything I see so it’s okay I think…

Besides, I love this song!:

THIS Change of Season…

I told my Mom this afternoon that I am closer to having had MS for 23 years then I am from having it for 22 years. My able-bodied self is such a distant memory but right now, I am faced with the changing of the seasons. That has progressively gotten worse, but I think THIS change of season he’s kind of proving to be a little too much… Let me ‘splain ya:

Last Tuesday night, it was too cold, so I had to turn the heat on. My nose was cold and I was hiccuping! I finally fell asleep when it got warmer and then Wednesday morning, I sat up in my bed, and was trying to orient myself to being awake. I was looking down at my phone to text my Mom that I just sat up. It takes me about 30 minutes to wake up.

I sent that text and I could feel my nose was starting to run so I put my phone down and reached over to grab a roll of toilet paper. That’s on the table to my left. I thought that I was a little bit slow and grabbing the toilet paper, but what I thought was snot hit my lip! I was totally grossed out and then I got some tissue. When I wiped my lip, it wasn’t snot, it was blood!!!

When I saw that, I started freaking out a little bit and started sopping it up. I didn’t want to blow my nose because I wasn’t sure if it was done bleeding and I didn’t want to irritate it!

I woke up Thursday morning to a lessened bloody nose and on Friday I didn’t bleed at all. But what concerns me now is the fact that it is warm today:

I’m keeping the air on all night and all day tomorrow because it’s going to be a hot one and in the back of my mind, I just wonder if I’m going to have to deal with more nose bleeds when I turn the heat on for real, for real.

A Headache

Last night, after I had dinner and I had just brushed my teeth, I started to get a headache. I NEVER get headaches and my Mom said that. I just told her that I am glad it’s not in my eye, that’s where that usually happens!

It was an ache on the right side of my head, like the crown of my head, and then it slowly went toward the back of my head behind my ear. I only have experienced headaches when I had sugar withdrawal when I first started doing the South Beach Diet.

I got transferred into bed, and once I was situated, I pressed the heel of my right hand to my right eyeball. “Never mind,” I told my Mom. The ache was FULLY inside my right eyeball!

Once I was fully covered, and my room was dark, I started to feel nauseous a little bit. I was a little bit concerned because I remember my brother would get migraines and he would throw up and I really didn’t want to do that. I was neatly tucked into my bed!

Luckily, when I awoke, I found that I did NOT throw up, so it was NOT a migraine. I really never experienced a headache as a normal symptom before, but I am now!