This category is full of randomness that really doesn’t fit nicely into any of the categories having to do with my road to walking.
So, this happened yesterday:
This was bad news because after my haircut yesterday, I had a doctor appointment to meet my new primary care physician. I dig her!
After the mishap last night, THIANK GOD FOR AMAZON!!!:
I took my contacts out already so I don’t have to wear the broken glasses. My Mom agreed to affix the prism onto the glasses tomorrow because without the prism, even with my contacts, I cannot see!
So, I had my ‘2 fer’’ for September but I have another appointment next week for my pressure sores. But with the steady progression of my disease, these two days of getting out of my house are starting to take its toll!
I am kind of reeling still as I write this! I feel like I am Bono just as he is pushed out of the van. I hope I feel better soon…:
Football has taken a backseat to my health problems right now but I am a Twitter football fan. I just catch the highlights! That makes me feel badly but I will tune in for the playoffs and the Super Bowl! I saw this tweet today and it took me back to my time at Barwis:
Adam was my trainer back then and there was a man training for the combine. Adam asked him which team he would want to play for in the NFL? He thought about it for a moment and he decided on the Saints. I remember that Adam was startled by his answer and I chimed in, “Because their uniforms are sweeet!!!”
I remember both of them laughing and I liked being part of that football conversation. I will watch the game on Sunday or at least check out the highlights because they will really look SWEET!!!
I realized this fact late last night and I was immediately saddened when I realized this fact. I did a little bit of ‘research’ and it confirmed the fact for me which kind of made me even more sad!
I looked at this picture because I wanted to see the faces that go along with the number. My new number is just what I suspected! I have lived with a pain level of four for about a decade but year 21 is definitely a doozy! Looking at these pictures, my assessment is that I am at a solid six all of the time! That was an extremely sad realization yesterday but I spoke with Meira my Speech Pathologist and we are working through some things as well.
I first heard this song randomly as I was playing my match game and it took me back to our second apartment I actually had to research this because I was remembering it being snowy outside in my second apartment and driving to work.
Last night, I searched for the release date of this album and yeah, I was correct.
The release date for this album was November 20, 2007. I had immersed myself in the album for a few months as I always do when I get a new CD. Some thing I have noticed in the past few days is that I really Love thinking about music from when I was living in our apartment. I was more able-bodied back then and I still can’t drive! Things are so different now! But I really liked hearing this Song, I probably will listen to it again today:
I have my return appointment to the dermatologist who has been treating my pressure sores. They are still there! Although both of them are closed, they are still so tender! I am reminded of the excerpt in Fhe Hunger Games and I am reminded of the description of the raw new skin and how much it hurt to the touch! It’s the same thing!
I was only able to get an appointment at 11:15 in the morning tomorrow. That is the day that Hocus Pocus 2 comes out on Disney+! Sean is going to come over to watch it with me and my Mom so I am so excited because my, “2 Sacreds” are going to see this movie with me!!!
So, I have to leave the house early tomorrow to go to the doctor and then the new Hocus Pocus is coming out I am trying to control myself so I do not poop out! Wish me luck!!!
Today, I had to leave my house pretty early in the day. I made this appointment in July so I needed to keep it. After just having not very good sleep, I rubbed the sleep out of my eyes to get them to stop burning as I took my vitamins, drank my water and my shake. Protein shakes always need chasers!!!
I was up and sitting in my chair by 730. I haven’t awakened that early in years! But yesterday, my Mom called Medicare to see if my ‘medical nutrition therapy‘ appointment would be covered and when we found out that it would be covered, I called them this morning! I was able to make a virtual appointment for October 12.
when we got to my dermatology appointment, Dr. Rambatlah commented on my sweatshirt. She said that was her alma mater. I smiled and I said that it was mine too and she asked me if I had a masters degree and it sounds good to answer that in the affirmative!
After my appointment where I found out that the skin on my heels looks beautiful but may possibly remain pink like they are now.
My AMon is in Meijer right now to pick up my prescription from last week and she’s getting groceries. So I am sitting here thinking and all I can say is that I killed it!
Nutritionist appointment: check, dermatology appointment: check, blood work done :
check, picking up my prescription for my pain pills because my feet still hurt terribly!: Check! I most likely will pass out in the car until my Mom gets back because I need to regain some strength for tonight because I don’t want to poop out for the Hocus Pocus 2 Premier!
I crashed pretty hard yesterday and I think I will need an extra day for recovery but I know my obligations!!!
I started the movie late but I was able to see this:
So, on Saturday night, well actually, Sunday morning at 2:35 AM, my blog web hosting expired! When that happens, all of the data in my blog will possibly be lost!
I started my blog on November 11, 2013. That’s almost 9 years of writing ! That’s a lot! I started my blog to let Parker know how I was doing at Barwis. I added music in one thread. Now, after my last knee surgery, I am no longer working out at Barwis and my thoughts of walking pretty much gone which is sad.
My blog now is a way for me to keep my sanity because I no longer work and I live in my memories so I love to write them out. Actually, dictate them because I never could type!
The biggest concern I have is how long it had taken me to recover from ONE doctor appointment! I have been having my ’2 fees’ since June but I added a second doctor appointment and maybe that’s too much; it took the entire weekend to recover and Sunday, I just had my first double feature of the Hocus Pocus movies so I could just sit and be entertained.
With my disease progressing, this really has me concerned! !!
I went to see the dermatologist on Friday and I had my first ever academic conversation and it startled me! It both startled and pleased to me!
I have written before about wearing my Michigan sweatshirt downtown to my MRIs. I was downtown at the New Center One location to have a follow up with my dermatologist who was following my pressure sores. My sores are closed but still so tender! She had me ask my PCP for a referral to the wound care clinic regarding future sores which is a possibility for me now.
It all started when she opened the door after she knocked. I called to her to come in and as she walked in she saw me sitting in my wheelchair in my Michigan sweatshirt. She said, “That’s my alma mater!” To which I responded by smiling and placing both of my hands on the letters of my sweatshirt and I said, “Mine too!”
She even had a follow up question as she came in. She asked if I have a masters degree which I responded smiling again, ”I do.” She thought that my Mom has done an excellent job with my feet and they are healing beautifully! She told me to have my PCP refer me to the wound care clinic which I did today but I was not able to leave a message so I will call again tomorrow.
Because I am 40 now, I am starting to get skin tags on my neck. That is problematic because I wear a medical device around my neck and it gets caught on the skin tags and it hurts. I have been wearing it for a couple years now. We had a mishap when I was alone so my mom called to get me a medical device that day. I mentioned that to my new PCP and she told me to tell my dermatologist that I was seeing in a week. That was my appointment on Friday!
Dr. Rambatla told me that because it is hurting me because of my medical device around my neck, she is able to remove them. Otherwise, it would be considered cosmetic! I thought that was a little crazy but was glad she was going to take them off. And she came toward me with her tweezers and scissors she asked me what my masters degree is in.
I really haven’t talked about my degrees very much. Everyone who I worked with knew what my degrees were so I didn’t have to talk about it but I appreciated being able to say that to a complete stranger. A complete stranger who is now a kindred spirit because we are fellow alumns!
I think it was last March madness where Sean and I were talking and he said that it must be nice that I always have a team to root for! I smiled and kind of laughed and sad, “It is!” I Thought of that after my appointment. I have such a long road with doctors and MS I’d like to escape that fact for a minute to think about college. My Mom and I were speaking and somehow we talked about the fact that I have a 20 year old son which very much amazed her! I have told you that I look a lot younger in medical situations!