Last night, as we were getting ready for bed, my Mom let me know that she had an idea! She was thinking about washing my feet last night. She told me that when she takes my socks off, it rips the scab off, she suggested that we loosen the scab a bit by putting a wet, warm compress on the outside of my socks.
I will say that it definitely hurts a whole lot when the socks come off of my heels so I was okay with trying that out. So that is what she did last night.
There are a couple of tweaks that we need to enact tonight. She only kept as a warm compress on my ankle for maybe like five minutes. It’s soften the scab a little bit but it still hurt the same amount! But instead of my feet looking like they did yesterday, it changed to this:
I am not sure that I ever will eat a tortellini noodle again. My Mom doesn’t think that’s a good comparison but I do! It lets me be removed from how much it actually hurts because it is excruciating and taking its sweet time healing!!!
I saw a post that my cousin had posted that wished my uncle Bob a Happy Father’s Day. I wished my uncle Bob a happy Father’s Day and right after I did that I had a crystal clear memory of driving back home from college with my cousin, Melissa. She is the reason I went there and both of our boyfriends were staying closer to our house so we made that drive often. We would switch off who would drive and we had a great conversation on the way.
I was driving and Cheese (my cousin) was sleeping in the passenger seat. She had already told me that she did not like the new Nelly Furtado song which I absolutely loved and would hear it all the time at the rec center!
So, she is sleeping and it comes on the radio. Every time I heard that song, I HAD TO jam to it! So I slowly turned it up one notch at a time. Her eyes were still closed and she just turned over a little bit and she told me, “I hear that.”
I remember watching this video in my room in my dorm and this bothered me but I thought the numbers were in white:
This song has been in my head since I wished my uncle a happy Father’s Day:
A few nights ago was really bad! When my Mom took my compression socks off, my heels bled! And it hurt a whole lot! It absolutely scared me! I have known about this ‘direct conflict’ I have with having a staff infection and having to wear compression socks all of the time.
That’s was crazy and I wasn’t sure what to do! My Mom told me that I have holes in my feet. It feels like I do! I was extremely concerned for the next night!
My Mom rethought our strategy and she soaped my heels up while I still was wearing my compression socks to loosen everything up. That made her removing my socks a lot easier! I would say that my bloody heels were at like a 15 and removing my socks a couple days ago was probably at about a 4.
We did the same thing again last night and it seems to be working because it was like at a 3 yesterday. Cautiously, I think that we may have turned a corner but it takes so long for my body to heal! This is so difficult and it is killing both of us!!!
This morning, after my Mom washed my feet, she started to put my socks back on and she looked at me and told me that, “I hate to see you cry.“
Tears come so easily now! I think it’s good that I no longer wear make up because that would be a mess but this hurts so badly! My Mom left to get more antibiotic because I only have one more pill. The ER doctor from last Thursday gave us the script because I’m sure he can tell how far from healing my feet are!
Even though my Mom tells me that my feet are getting better, they still hurt the same and I can’t see past it right now! At this point, I will tell anyone who has MS to make sure that they get an antibiotic immediately if there are sores of any kind.
And more importantly, be forceful about it! My Mom talked about getting me in an anti-biotic on April 19 to 2 different doctors and now, it is June 23 and I have two holes in my feet and all the pain and tears that accompany them!
I saw this post on Facebook today and I wanted to share it here because this post made me think of my Dad.
My Mom and I were talking a few weeks ago. She was putting clothes into the wash and I was sitting in the living room where I normally sit in my wheelchair. I’m not even sure how this conversation started but she was telling me about going grocery shopping with my Dad. She told me that she only went shopping with him once and then decided that they would shop individually after that experience. She told me that he is very particular about putting the items into the cart in an orderly fashion where as she just throws them in.
I have witnessed my Mom loading up the grocery cart and everything is all willy-nilly! She finished putting the clothes in the wash and then walked over to the kitchen. That’s when she told me about their differences with loading the dish drainer. It was here where I had to stop her!!!
I very calmly let her know that I side with my Dad both times! It has become more apparent to me now that my Mom is staying with me how much I am like him! It is more than just loading up the grocery cart or filling the dish drainer!
I realized another similarity between us recently. When my Mom and me were leaving the emergency room last Thursday, I commented that I wished I would have been admitted because then I could have gotten Lorna Doones! I said that because I have only eaten Lorna Doone cookies at the hospital.
The first multiple day stay I had at a hospital was when I was diagnosed with MS 21 years ago. That was when I first was offered Lorna Doones. I liked it well enough and I remember when I was staying at the hospital after having Sean that I had some more.
Well, my Mom is the BEST caregiver in the entire world! So guess who picked some up for me at the grocery store not too long ago?! My Mom did and I was eating some yesterday!
It wasn’t until we were talking about it today then she commented about my Dad opening them very meticulously. she told me yesterday that I, “Looked just like Daddy!”
Today was the day when she expounding on the meticulousness of my Dad opening wrappers and we both laughed because I told her that is EXACTLY how it should be done!
So, here is a picture of the Lorna Doones and they NEED to be opened very meticulously! I just looked at her and this got another mutual laugh when I told her that, “I AM his daughter!!!
My Mom told me this morning when she tame into to my room to put my socks on that my feet are healing! She told me that they looked good! It was really exciting to hear that and she sent me a picture. I have been on anabiotic‘s for two weeks so maybe it’s really working.
So, I thought.
She sent me a picture of them.
I’m not sure if I cringed first or I gasped first but it looks terrible!
I told her that my feet look like they are raw meat!
She continued putting my socks on and just replied, ”Because it is!
I awoke to tingling feet. I hate that! I haven’t felt my feet in over 21 years but that is what wakes me up and it’s just a tingle for a little while and then the tingle turns into a burn!
I have to let my Mom know that I am awake and then she will wash my feet while they are burning. This morning, I kind of slept in a little bit and she needed to drink coffee to avoid a headache so I let her do that.
I laid in my bed and I turned to my left and I saw the light streaming through the windows and then I turn to my right and I see my wheelchair blinking because it is still plugged in.
I stared at the ceiling as I waited, I immediately thought of this song. I’m sure there have been so many songs but I can’t see past my pain right now but this morning, I thought of this song so maybe that’s an improvement. My feet burn right nw though!!!: :
That is the last of my summer flavor pack of Chapstick that I bought probably two years ago (maybe three). The watermelon tasted too waxy so I threw it out after I had used about half of it.
I told Sean today that because it Saturday, I am using my Strawberry Sorbet so I won’t start working on that bag of Chapstick until tomorrow. Hopefully I will finish that bag soon! That always makes me think of EXTREMELY fond memories of teaching and that student coming up with that name for my lotion. I remember that it made me laugh so much!
Once I finish this bag of Chapstick, I will go to my REAL Summer Flavor pack:
And now after this bag of Chapstick is finished, I think I have all of my seasonal flavors set! Man, when I think about it, that is a whole lot of wax on my lips!!!
Well, it has finally happened! Both my Mom and I did not go to sleep until six this morning. Our clock is totally backward because of these feet!!! I am over exhausted and tears have been leaking/streaming out of my eyes all day long! These feet will be the death of both of us!
I am just trying to gear up for a neurology appointment that I have tomorrow so maybe I’ll write about it afterward…
My neurologist almost did not see me today because we were just a little bit late. She seemed irritated but saw me because it was 3:45 and my appointment was at 3:30. She saw me and ordered another MRI for me in August and she said that if my brain activity is showing no new lesions that I can wait for a year to see her. Otherwise it’s lots of bloodwork and stuff.
I will have to call tomorrow to schedule an MRI and hopefully that will be my last one because I have Secondary Progressive Multiple Sclerosis (SPMS) Because I have had MS for over 10 years, When you enter into SPMS, your brain scans do not change but your symptoms worsen. Something to look forward too I guess!
But, that is not even the important part of this blog post! It is summer time! It is warm outside! But that also means that they have Girl Scout cookie blizzard‘s at Dairy Queen! I saw commercials for it a while ago and told my Mom and yesterday Sean was here and I told him to get me a Mini (I call it a ‘baby’) Thin Mint blizzard whenever he remembers. He just kind of smirked and said, “Noted.”
So, I got one today and it was just as good as I remember it!
