Author: Jen Rios

September’s ‘go time’ was a success, but just barely… it hasn’t felt this difficult since March but recovering today, I’m realizing a few things. I didn’t put my contacts in NOT because I didn’t want to but because I couldn’t.

This is the first ‘go time’ recovery where I am a little bit concerned about how things are progressing… This is the first time where ‘I can’t.’ it takes a minute for my brain to warm up now and when I am asked questions, I just stare at my Mom unable to answer. That’s been happening lately…

I bought my Mom and I matching shirts a couple Christmases ago and I had bought myself a version of the shirt in a different color before I bought us, the same colored shirts and today, before my Mom took Leia for a walk, noticed that we were matchers sort of…

I convinced her to take a picture with me before she left, but this was the second day of ‘go time’ so just look at my face?!:

Our shirts say ‘Grace’ with a little heart as a period after it. I thought it was cute and my Mom likes hearts, so that’s why I got us matching shirts. As I love that kind of thing!!!

I finished ‘go time’ for September but at my appointment, she told me that I have to make my next mammogram sooner rather than later. So it looks like I’m having another appointment this year! I jinxed myself!!!

My brother just took my Mom to pick up the van for our ‘go-time’ this month. I am sitting in my living room in silence going through my final walk-through for the year in my head. I still have scheduled van rentals for October, November, December. I have to keep my short haircut up and. I have to go to a Cidermill in October! Duh?!

Naturopath and haircut tomorrow and a weight and bloodwork on Thursday. I do not have any more scheduled doctors appointment for the year. Now, I know that there could be an emergency at any point, but I really feel like I am getting into ‘cruise control’ mode with this mean disease! I will write more about this after ‘go-time.’

I think that I will call Margaret at Creative Mobility to schedule my appointments for next year. I will know my March date in 2024 because I will need to schedule my next appointment with Dr. Chamas on Thursday.

I had this year scheduled, but not until April because I had to wait for schedules to open up to see my neurologist. I will get a jump on 2024, but I think I have tomorrow set in my head. I never thought that my life would be like this, ONLY this…; but it is. I can schedule appointments and rent vans and I will probably start on Monday for 2024.

I almost forgot to write about the new development that I discovered yesterday! Here’s the deal, at my last dental cleaning appointment, I talked to the dentist about my jaw locking. It has been happening more lately.

She asked me if I had a bite splint and I told her that I did. I got fitted for it about 15 years before in this office. When I was still teaching. She suggested me wearing it longer during the day or she could refer me to an oral surgeon.

Dr. Elias told me years ago that my body cannot handle any more surgery! Seeing how the pain in my knee persists this much six years later, , he knows what he’s talking about.

So here’s the new development, as I was pillaging on Saturday, I couldn’t understand why my jaw was hurting so much. It’s because I was grinding my teeth! I had to stop pillaging and ask my Mom to give me my mouthguard! So now, I need a mouthguard as a Pillage. This sucks!

I pillaged and it looked really busy today!!!

Busy and expensive. But the supplements make me feel so much better when in fact, it is so much worse because this change of seasons is seriously killing me!!! I am only on six different supplements, but I had to change out the bottle this week for four different supplements:

I got up this morning and into my chair and I forgot how terrible the change of seasons is! It felt like this last year, changing from spring to fall and from fall to winter but MS is a progressive disease, so… today is the first day that I have realized that my movements and transfers are, “Groanier.”