Some kids weren’t wearing their shirts or did not come down to take the pic when the announcement was made but here are most of my kids who supported me. Thanks kids!!!
Some kids weren’t wearing their shirts or did not come down to take the pic when the announcement was made but here are most of my kids who supported me. Thanks kids!!!
I was a bit nervous about my 2 worlds colliding. My personal life (my life with MS) and my professional life (my life as a teacher) have never explicitly crossed paths. But after sitting in on the Q & A with Cheryl and NOT crying; I realized that it wasn’t SO bad! Cheryl helped me get okay with this sharing. MS stops connections from being made between my body and brain. Making these types of #MSConnections is a really good thing!
The students at CCA were given a presentation about MS on Monday. Cheryl Rothe from the MS Society came in to talk with them. Students came to the cafeteria and it started as a power point presentation that morphed into a Q & A session with Cheryl. She was amazed by some of the questions that the students asked.
6th grade MS presentation with Cheryl Rothe.
7th grade presentation with Cheryl Rothe.
8th grade presentation with Cheryl Rothe.
Overall, the students were attentive and well-behaved. I was happy to hear some of the questions being asked.
So yesterday, Phil asked me how I have been feeling as he was stretching me. I was happy to report that despite the weather (AND I AM SICK OF THIS WEATHER!!! iT’S KILLING ME!!!), my legs have been feeling the most normal that they have felt in since I can’t remember when. I was excited to tell Phil this news but then I needed to add, “except in the morning. I feel bad in the morning!” He continued to stretch me out at the Keiser machine and then told me to head over to the table. He moved the table away from the wall again so he could get on both sides. He told me to dangle my feet off of my bed in the morning as I dangled my feet over the side of the table. I told him that they don’t want to dangle in the morning and he told me “but they can” and pointed to my legs and feet. I told him that they FEEL normal and he told me that they LOOK normal.
Driving home, I heard my “Sean and Phil” song TWICE! It ended and I changed the radio station and heard it again. I don’t know that yesterday was “the best day of my life,” but it’s coming! “I feel it in my soul!”
This morning, I woke up and turned my first alarm off. I didn’t want to get out from under my warm covers! I turned the second on off and reluctantly threw my covers back. Man, it was SO cold!!! My legs were all curled up and it took a minute to get them untangled from each other and over the side of my bed. My “poop” leg knew what to do and it just dangled there. My left leg needed some coaxing to “just relax.” It started to and then I had to get up because otherwise I would be SUPER late. I guess tomorrow morning I just have to “suck it up” and get out from under the covers earlier. As I was driving to work, my legs did begin to normalize as I began to thaw from going from the house to the car. Even now, as I write this, they are normalizing and that’s exciting!
“Impossible” Ryan Star
“Girls Chase Boys” Ingrid Michealson
“Peace” O.A.R.
Please don’t judge… I kinda like this too…
“Story of my Life” One Direction
“I Lived” One Republic
“The Mother We Share” Chvrches (EXPLICIT)
“Magic” Coldplay
I woke up yesterday morning at like 2 o’clock and my legs were hurting so badly! I refused to get out of bed and sit in my chair (makes me feel better sometimes) because I still had some time left to sleep until I had to get up to for work. I was miserable from 2 o’clock on. I told Phil about it when I got to Barwis. I told him that throughout the workday my legs started feeling better.
I didn’t have students yesterday so I just was getting work done that I needed to get done so it was quiet. He stretched my legs out and they started to feel even better. My colleague at work asked me if the pain was a “good” pain or a “bad’ pain that I woke up with. I had to think about it. I wasn’t sure. My legs have never awakened me because of being in pain like that but maybe it was a good thing because I was feeling something. Phil told me maybe it was because it was SO cold! I am SO sick of this weather!
Then he stopped stretching me for a bit and my legs remained slightly spread apart and my feet were pointed straight ahead. I felt blood flowing through my legs and feet and I told Phil that my legs feel “normal.”
That “normal” feeling remained with me the entire time we were working. I was able to get into my car by myself. Phil grabbed my fist after we fist bumped and yelled “joystick” but I was okay with that. The “normal” feeling in my legs continued. My Mom called and she asked me and Sean to meet her and my uncle at a restaurant. On my way home, I was hoping to get the tears out of me that I felt were SO close. They didn’t come. I pull up into my driveway and beep for Sean to come out. The “normal” feeling remained with me throughout dinner. I was in the restroom after dinner that the tears finally started to come. I was overwhelmed that this “normal” feeling still continued. I wiped my face and got Sean and got in the car to drive home. And the “normal” feeling was STILL with me. My legs felt good!
Sean reclined his seat and said he was going to sleep for a while as we drove home. So then the tears came. I would like to say that they were “strong, silent tears.” But they weren’t. I could feel the sobs originating in my belly and rattling my chest. I stifled them because my son was sleeping next to me. I have been working SO hard at Barwis that of course this day would eventually come. But I guess I was not ready for it. I debated if I was going to go to bed or not because I knew I would wake up not feeling this way and I wanted to keep the “normal” feeling as long as I could. I remember my Dad telling a story about guys in the Army being on leave and having to go back to Vietnam. They would get really, really, really drunk and some would pass out before leaving and would have to be loaded onto the plane to go back. When they woke up the next day, they were back in Vietnam. They would cry.
I don’t want to be like them. I decided to go to bed with the knowledge that I would wake up feeling badly again. I woke up at 3:35 a.m. and my knees hurt a little bit. I rolled onto my stomach to make them stop hurting. I had that “normal” feeling in my legs for 10 hours. Wow! Even now, as I sit at my table and write this, the “normal” feeling has begun to return to my legs and my feet are straight forward. I thought I would be ready for this. I thought I prepared myself for this. Apparently not. I suppose I will be a “sissy, cry-face baby” like I was last night. But I’m okay with that.
This year, I sold t-shirts to raise money for the MS Society – Michigan Chapter. Purchasers of a shirt (staff and/or student) could wear it and jeans ALL week instead of their uniform or work clothes.
Orange is the national color for MS. This picture is an Aztec Eagle (our school’s mascot).
FRONT
BACK
I sold 144 t-shirts! I am EXTREMELY humbled is the only word I can come up with. I did NOT have any extra shirts after placing the original order and no one had problems with their order. I think I will do this sale again. MS Awareness Week is March 3 through 9 this year. I enjoyed spreading awareness because I knew NOTHING about MS until they told me that I had it.
It has taken 13 years, but now, I am able to acknowledge that I have MS. I can also acknowledge MS Awareness Week. I have been involved with the last 3 MS Walk- Wyandotte’s. My brother’s girlfriend was instrumental in getting me and some of my family and friends involved with these walks. My Mom, Sean, and I have been to numerous informational lectures offered by the MS Society. Finally, this year, I am able to do something for the MS Society and to raise awareness. It’s better late than never I suppose…
My first MS Walk 3 years ago.
This is me with my brother, Steve. I met Patti Radzik from the MS Society-Michigan Chapter at that walk. I cried with her.
I don’t have any pictures from my second MS Walk. There were A LOT more wheelchairs at this walk. I met and talked (and cried) with Cheryl Rothe that year. She also works at the MS Society – Michigan Chapter.
In past years, my school has raised money for the MS Society by having casual dress days. They would pay $1 and wear jeans opposed to wearing their uniform. They would purchase a shoe (I used to wear “Chucks” (Converse All-Stars) ALL THE TIME)! They were paper “Chucks.”
My 3rd MS Walk was last year. Cheryl asked me to speak to kick off the walk. There is video of me speaking (and crying) somewhere on YouTube or Facebook or somewhere. I have never seen it.
Click picture to see the MS Walk – Wyandotte Homepage.
This site is where I looked to get information on MS Awareness Week 2014. It is where I discovered that I’m kind of a celebrity! Me and my boy!
This past summer, my son, my brother, and his girlfriend completed the MuckFest.
About MuckFest MS
MuckFest® MS rallies you and your friends for a mucky romp through mud and obstacles in support of a world free of multiple sclerosis. The run is pure athletic hilarity on a 5K course full of mud, and featuring 15+ outrageous obstacles that will spin, swing and fling you up, down and sideways. The only cramp our muckers get is from laughing too hard.
Afterward, there’s beer (or soda), a tasty pick-me-up treat and music in the MuckFestival area. We operate on “the more, the muckier” principle, so invite your friends and family to join you in the hilarious spills and thrills. To get the most out of your MuckFest MS experience, you should start a team or join a team. When you slosh through the mud or take on one of the outrageous obstacles, you’ll want someone to laugh with and to give you a hand up. Later, you and your team can decide who had the most epic spill of the ay. We even have a specially-designed mucky playlot for the kids called Lil’ Muckers.
After the Muckfest, my son completed the Glow in the Park 5k.
The best way to light up the night! The ultimate party fun run! But most importantly, it’s the freakin’ awesome foam-pits-fluorescent-colors-blacklights-glowing-warpaint-dance-moves night you’ll never forget!
We are now involved with the MS Society. It has taken me a while but I am glad to be at this point in accepting my disease. No matter when I walk (because I WILL walk); I will always have MS.
So I have been on Twitter since February 18 and I’m not going to lie – it’s kind of addicting and a little bit fun. Based on people who follow me; I started following these 2 “people” Motivation&Success@MotSuccess and Book Quotes@BooksBestQuotes. I get all kinds of quotes that I favorite and retweet to my followers. It’s some good stuff! But last night at my alleged “Walking Wednesday” #19 at Barwis, I was forced to LIVE these quotes. If I was going to share them – it was necessary to BELIEVE in them in the face of adversity.
I didn’t even attempt to walk yesterday. Phil grabbed my right leg and was aghast at how tight my calf was. Being without brakes for just those 2 days, I tensed up my legs in an attempt to STOP my chair from moving when teaching on Monday and Tuesday. Yesterday at work, I had to remind myself to engage my brakes because I HAD them now and to relax my legs. My thighs hurt SO badly yesterday! I told a colleague that,”Now I know how Suzanne Somers must have felt!” She laughed. It was true! I remember that infomercial for Thighmaster. Phil stretched me and told me to relax and I was re-harnessed. I asked if we were going to try walking today and he asked, “How are you going to walk when you can’t even straighten this leg?!” (He was talking about my “poop” leg). Okay. Grrr! Defeat! We stood with a harness and then did some single leg extensions on a machine I have not been on since my first day.
I have been favoriting and retweeting these GREAT quotes thinking that I really won’t need them. Turns out I do. I KNOW that walking WILL happen because I watched Chris yesterday WALKING out of the door at Barwis.
Retweeted by Jennifer Rios
“Life is ten percent what happens to you and ninety percent how you respond to it.” — Lou Holtz
Retweeted by Jennifer Rios
“When life gives you a hundred reasons to cry, show life that you have a thousand reasons to smile.” — Unknown
Retweeted by Jennifer Rios
“When you know what you want, and want it bad enough, you will find a way to get it” – Jim Rohn
Retweeted by Jennifer Rios
“We acquire the strength we have overcome.” — Ralph Waldo Emerson
Retweeted by Jennifer Rios
“The gem cannot be polished without friction nor man without trials.” — Confucius
Retweeted by Jennifer Rios
“The difficulties of life are intended to make us better, not bitter.” — Unknown
Retweeted by Jennifer Rios
Retweeted by Jennifer Rios
“Accept challenges, so that you may feel the exhilaration of victory.” — George S. Patton
Retweeted by Jennifer Rios
The 90s Life@The90sLife
This reminds me of my brother Dave!
Retweeted by Jennifer Rios
I just watched the best E:60 ever! I recommend everyone should watch it at least one time #Inspiring @el_mealer
I guess I just have to wait for it…