We did three things that I needed to get done today. I am exhausted! I’ll ‘’splain ya tomorrow I think… EVERYTHING IS SO DIFFICULT NOW?!!!
Author: Jen Rios
#DiseaseProgression
This is the first time on the eve of ‘go time’ that I have totally changed my appointments for tomorrow.
Instead of getting haircuts, I am going to the optometrist to change my out my contacts because my eyes get really itchy and they dry my eyes out. #DiseaseProgression
I hope these new contacts fit well and are not so expensive! Either way, I have to pay for it! Then we’re going to see about shoes…
“Meeting of the Minds”
I am currently having issues with my feet. My big toes are hurting! I was at a loss and did not know what to do but then I thought for a moment and decided to commence a ‘meeting of the minds’
My Facebook friend, Ashley started this group a number of years ago, and it consists of people who have had MS for a long time.
I decided to ask them and I posted that ‘I am a homebound, chair bound person and what kind of shoes do you use? Which works best for you?’ I got responses! And I still am getting them! Over 20 people have commented on the shoes they use and it’s so enlightening and I have a lot of ideas.
That’s really good because I canceled my hair appointment on Wednesday:

I have no idea what’s going on with my phone. It’s not letting me pictures but it’s not.
So, for this month, I will forgo my haircut to go to Optimize to get new contacts and then wherever we’re going to end up, going to to get new shoes. nedical shoes I think. This really scares me!
#ItSucksToSuck #MSsucks!!! 😒😒😒…
Rando Tune #76
I haven’t heard this song in so long!!! Definitely a throwback! I heard this all throughout high school but I think I started hearing it in eighth grade?:
We Laughed!!!
I read on Facebook on Saturday that today was 35th anniversary of Home Alone release date. I arranged for Sean to pick up Roman Village and bring it here so we could watch it.
It had been about three or four years since I saw this movie so I knew that we would laugh! And did we laugh?!!!! My Mom laughed especially and I loved hearing it!
Before Sean came over, we talked on the phone andhe asked me what my favorite part was, and I told him this part:
It’s still my favorite part!!!
I had too much bread, but it was from Roman Village and with each piece, I stated that it felt like I was back at CCA. We used to get Roman Village for the staff for Parent-Teacher conferences constantly!
Here is the deal with me, I have been on the SouthBeach diet pretty much since I had Sean. While I was working at CCA, I would say that I don’t break my diet, but I WILL for Roman Village bread! I had A LOT of Roman Villiage’s bread today while it was hot! Can I pay for it tomorrow but it was worth it because we laughed so much and I loved hearing it!!!
My 4th Christmas Commercial 2025
The same commercials are on loop on Hallmark Channel and I don’t mind it! I laughed out loud at this commercial each time I saw it! I’m so cheesy!:
“Oh no! Gross!” 😂😂😂😂😂
My 3rd Christmas Commercial 2025
There was something about this song that I really dug!!!:
It kind of reminds me of that movie, Happiness for Beginners.
My 2nd Christmas Commercial 2025
Today, I watched the Hallmark Channel as my Mom went to get her hair done. There’s something going on with my eyes that’s kind of scaring me a little bit. On Wednesday, I go to my optometrist and get a different kind of contact lenses.
My Accessibility remote control is not fully synced to my TV so I not really use it. My mom just put the Hallmark Channel on because it’s Christmas time. I saw a few commercials though! Here is my second one!:
Denny’s reminds me of going to Texas when I was seven with my family. I haven’t seen those Christmas movies in forever! Too bad we can’t get them now because they aren’t available without subscriptions to stream.
Rando Tune #75
This song started playing after my chosen Sara Bareilles song finished and I am driving to work on Dix and I’ve stopped at the stoplight to turn onto Goldsmith to my school. It was a cold, snowy, winter day that I decided that I really liked this song! I was younger than 34. I can’t forget that moment! This was back when I thought that I would get married someday:
Rando Tune #74
I heard this song on Apple Music:
This is one of the last times that I could belt this song out!!! Sean was with his dad and I was doing laundry. Sean was due home and I had left my front door open of our second apartment because I was busy.
I remember when Sean opened the door with his dad right behind him and I was belting this song out full-force and I wasn’t even embarrassed to be caught! I haven’t thought about that day in a long time… I miss being able to sing… A LOT!!! #ItSucksToSuck #MSsucks!!! 😒😒😒…