Author: Jen Rios

I saw that the New Zealand women’s rugby team won the gold medal today, and did the Haka. I had never witnessed women doing the Haka before. All I know is that I witnessed something spiritual today! I always cry when I watch people perform the Haka but these women are Olympic Gold Medalists now?!!!!

So, it’s Trains turn. And I am sitting in the parking lot at Wendy’s, eating a single with cheese, no onions, no tomatoes, fries, and a Dr Pepper as I am staring at a tattoo shop. I vaguely remember thinking that I would get a tattoo there but I’m 42 and I don’t have any tattoos. This song was playing:

I first have to share this song because I am 12 years old every time I hear it but 42 year old Jen is different than 12 year-old Jenny and I no longer can sing along because it’s too many words in my mouth. 12-year-old Jenny did not have MS, oh, wait, maybe I did:

I prefer Train songs from the early 2000s. That’s when I found out that Pat Monahan has a harry chest when he was walking around shirtless. For the first time, I didn’t mind it! This is my favorite picture from seeing them live!:

It was necessary for me to restart the three day cinnamon regiment the three times a day for three days and then I can go back to just the maintenance which is once a day.

It was tolerable. Not pleasant, but tolerable. It didn’t taste so much like the brown Mr. Sketch marker more like a mouthful of dirt. I had nine mouthfuls of dirt! On the 21st, I will send another sample to the lab and then I will see if I have to do this for a third time. My condition is chronic!

This song was in my head from the beginning, I saw nothing! I don’t think that I was ready for this just yet…:

So, I’m thinking it’s going to be a multiple post situation as I am trying to sort through my eye doctor visit and my feelings about it…

Sean came over after work on Thursday. I had talked to him on Wednesday on the phone and told him about my appointment. He came in and he gave me a big hug, and I hugged him right back! He even commented, something like, “Wow, mom, that’s a good hug” to which I responded in a whisper by his right shoulder, “I’m going blind.”

I have been thinking about this since last Wednesday. I was so startled when I put my face in the phoropter (that is the name of the funny machine you put your face into to check your eyes) and I saw nothing. Absolutely nothing! I have been going to the eye doctors since second grade, That’s when I first got glasses.

I was so startled at seeing nothing, and I heard that doctor (with the ugly glasses) telling me that I was going to go blind When she told me, I had MS. Dr. Harris changed my prescription and I put contacts in so I could see so much better with them. I still have a lot to think about with this…

Pillaging for me has taken on a little bit more work. I take 33 pills a day now. I also leave my cheat sheet that Yanna gave me last month in the box that has all of my pill bottles so I can remember if I’m taking the pills correctly. It takes me four full rosaries to fill my pillbox! The rosaries keep my mind focused because counting pills is a lot of work!!! That and controlling my hands!!!

Wednesday, I left the house and it was pretty humid. I was shocked to see what my hair looked like. I looked like Bilbo Baggins from The Hobbit.
That fact, kind of made me laugh, and I HAD TO take a selfie to send to my friends and to Sean. I’m not sure that Sean got the reference, but I know that my friends did!:

I had posted a picture years ago now that a school friend had taken of me in high school and this is a picture of how long my hair was growing up:

I never would have thought in 1 million years that my hair would be this short or even that my hair would be curly! I wanted curly hair for my entire life, and now that I have it, I have to cut the curls off. But here we are.