I clearly remember going to the infectious disease clinic at Henry Ford downtown. I somehow felt like I was in the 15th century or something. But we spoke with Jen the nurse practitioner, and she is the one who treated me for my pressure sores on my heels. Those stores lasted in my feet from April till November. I think we saw her in June and July.
I ended up seeing her twice in clinic and the second time we saw her, she gave me two wedges and a transfer sheet. Well, it was called something like that. My Mom and I called it, My “Ninja Turtle” because it is green with brown padding, so it looks like a ninja turtle!
My Mom told her that we do not need that yet, but she just calmly said, “You will,” and urged us to take it. I used it last night! I never would have thought that it would get this bad for me with this disease, but two months[to the day] shy of my 23rd anniversary,
This is where I am. I am grossly reclined in my chair to keep my hips from hurting. I’ve definitely dealt with a lot of pain these past 22 years of having MS but this pain is so new and so different today that it has me seriously scared right now…