Every single day, with MS at this point is a completely different experience!
Case in point:
I tried to hold onto the good feeling from yesterday, but today, it’s raining, ALL. DAY. LONG, and my body sure feels it! It’s one of those days where too many tears are leaking out of my eyes as I am silently pillaging. But I know that it is story time, regardless of how I feel so here goes:
I will begin this story with a 23 year old memory of me being admitted to the hospital because I was having neurological problems. The details are hazy, but I remember my Mom coming into my room after the doctors had left from doing the rounds. She walked into my room, and kind of was aghast, “The doctors came, and I wasn’t even here?! Did you ask this, this, and this?”
I just looked back at her calmly, and said, “Yes, and I asked this, this, and that!” When I told my Mom that, she just kind of nodded and said, “Well, okay then.”
That was in December 2000. I have been in the SAME neurology clinic since then! I have stayed with the same neurology clinic the entire 22 years! I have done all of the tests! All of my hospital records are at the same hospital, the one I was born into, and the one I was diagnosed with MS in.
My original neurologist, and his nurse have both retired. Dr. Elias handed me over to Dr. Cerghet which is my current neurologist. I emailed with Suzanne, Dr. Elias’s nurse often! She really had a handle on my case!
Let’s fast forward to today where I have had MS for 22+ years. I have a handle on what I am doing!
it is, by far, not easy at all, but I’m hanging in!
I was still teaching when I was fitted for a custom manual wheelchair and the same occupational therapist fit me for my first power chair.
Christie has left so Dave is my new wheelchair tech and he was with Diane to fit me for my new powerChair. I got fitted at RIM (Rehabilitation Institute of Michigan) in Detroit they are affiliated with the DMC.
My sleep schedule is completely messed up now, so I changed over my contact phone number to my MIchart to my Mom’s phone number because I sleep most of the morning!
So, yesterday, my Mom came into my room just when I awakened to tell me about Dr. Cerghet’s nurse called her to tell her that I need to reschedule my Neurology appointment because I need to get fitted for a new wheelchair.
But here’s the thing, I got my powerChair through the DMC because I had my second knee surgery at the DMC because I was working out at Barwis at the time, and Mike Barwis hooked me up! My second surgeon was the Pistons doctor at the time, Dr. Frush.
When I was injured, I called Henry Ford but they were making me wait weeks or something to talk to orthopedics, whereas Mike Barwis had me an appointment within two days. I could have gotten it the next day, but that was at the clinic he worked at far away, but then he was in West Bloomfield the following day.
So, my Mom received a phone call yesterday about me getting fitted for a wheelchair, but I have already done that, I did that back in June. I just need her to sign the prescription!
My August 4 virtual appointment that Dr. Cerghet wants to change is just my annual appointment. I’ve already done everything for my wheelchair! I told my mom to let her know that it took them 2 1/2 hours to fit me for my new chair!
My Mom tried to call Neurology back on Friday, but she was not able to get through so she will call on Monday to set the record straight! I am confident that my Mom will straighten it all out!
The woman said that we were confused, and my Mom responded, “We are NOT confused! She told the woman that I made the appointment back in April and I have already taken care of my wheelchair.
I’m kind of startled that in the past 22+ years, I have not experienced any red tape like I am now!!!
So yesterday when my Mom told me about that phone call, I thought of Beyoncé because this woman doesn’t know about me, but she also doesn’t know about my Mom either and my Mom will handle it!!!
Wow! Recounting all of that stressed me out and with the rain it makes it even worse so I guess I have to be reminded of Beyoncé again right now!!!!: