I woke up mid morning so my Mom can get her hair colored. I had a really great appointment yesterday and it was vindication of everything I have done in choosing to care for my disease for the past 22 years. I sat in my wheelchair just as my Mom was getting my shake and my water together. When she walked back into the living room from the kitchen, I told her, “I should have cried.”
As a tested my water, I told my Mom that I cried a little bit yesterday when she was going to get the van but I should’ve cried more afterward because my body is crazy right now!
She added the lemon drops to my water and handed me my nutrition shake. I told her that I cried just a little bit in anticipation for the day but I had such an excellent appointment that I didn’t cry afterward. I was tired but I felt good that I’m doing the best thing for me and my disease.
So, today, I am just reclined in my wheelchair without my contacts in trying to recover from yesterday. But then here’s the thing…:
Wait. What?! Just as my Mom was leaving the house, she put the air conditioner in the window and turned it on because that was the temperature 12 minutes ago. I am just laying here and I put my winter hat on because having air makes me cold but if we did not have it, I am pretty positive that I would die!