Month: November 2022

For my Soul!!!

Last night, I watched this video. I powered through the ENTIRE 36 minutes! But I HAD to! It was for my soul!

I posted this video late last night onto Facebook but I had to go down the rabbit hole and so I posted this one too:

My mom let me delay her putting me into my bed by letting me watch these videos! I remembered seeing an interview with Kelly Clarkson with his daughter Eve and I could not remember her name but I knew it was crazy long! So I had to search for that video too!:

My trip down the rabbit hole continued because I love Irish accents!!!:

My Mom had to stop me after I watch this one because it was pretty early in the morning!!!

I am writing this blog post with my contacts on and my glasses so I could not see very well and my hand-eye coordination is not good so I posted this weird commercial so I put it at the bottom, you don’t have to watch it! I have no interest in getting a Mercedes!!! Oops!!!

Do You Want the ‘Real Time,’ or the ‘Pretend Time’?

Today started daylight savings time. I have a crystal clear memory of my Mom sitting in the front, passenger’s seat of our station wagon when we were in Texas and my Dad, who was driving, asked her what time it was. She would look at her watch and ask him, “Do you want the ‘real time’ or the ‘pretend time’?”

I remember her saying that often and it was ‘pretend time’ because we are in Texas and the ‘real time’ was in Michigan. I remember my Dad kind of getting irritated by that.

I had talked to my Mom about the time change coming on Sunday and I told her about this meme that I saw:

I told my Mom that I am just going to rely on my cell phone. She agreed with me. She was going to do that too. Until…

Once she gets me out of bed, she goes outside to tend to the leaves. I sit in my house taking my vitamins, drinking my shake, and praying. She was going to come back into the house to help me put my contacts in. She watches me as I put them in. My hands are no longer that steady so sometimes it takes a while.

She came into the house early today by one hour to put my contacts in and I couldn’t understand why she was here early. She had looked at the clock on the stove and I told her that clock is wrong that’s why we have to just rely on our phones, they are magic!

Last night we laughed about her talking about ‘real’ versus ‘pretend’ time and today we laughed about her coming into the house early. Both of our internal clocks are so messed up that we’re not sure how it’s going to affect us now but we will see!

Rando Tune #33

I like how I will hear a song and it’s the perfect song I needed to hear right at that moment! I listen to a lot of music these days because I can hear just fine but my eyes are a little wonky. I heard this one and it was one of my jams! I think it was when we were living in our second apartment and I was still driving. Number 33 was Sean‘s football number when he was 7.

A Successful Pillage & A ‘Poop Face’

I had a successful pillage today! My disease has progressed so much that I had to modify how I do this now. I had to add a table on my left to hold the pillbox as I am getting the pills out of a ramekin on my right. Today took longer but I didn’t drop any pills!:

I felt pretty accomplished, that is until Leia got out of bed and stood where I could see her from my chair. I started to laugh and I had to snap a picture!:

It looks like #MyGirlL had some skills to make sure that I saw the ‘poop face’ she was giving me!!! 😂😂😂

7th Grade Science Class

As I ate my saltine crackers before my Mom had finished making the tortillas, I thought of my seventh grade science class. I think the teacher was Mrs. Novak? She wore Birkenstocks all year with socks and she was a naturalist. The first one I met.

That all does not matter now and we we were talking about chemical changes for our lab, we had to chew saltine crackers and then spit them into a napkin and test it because there was a chemical reaction going on there.

I thought of that lab because I remember some people did not participate but I did not mind spitting out my cracker. I have no idea why I thought about that! Maybe some St. Alphonsus OG can help me out?! I graduated eighth grade in 1996.

I thought about that because chewing a single saltine cracker is extremely difficult. I let my saliva break it down so then it’s easier to gather in my mouth and swallow. I added saltine crackers to my monthly Target list that I get shipped every month. Medical supplies, Atkins shakes, and now saltine crackers.

Faint OR Saltine Crackers

I first met with my nutritionist on October 12. It was a virtual appointment and I see her again the day before Thanksgiving.

I have been drinking two protein shakes for breakfast and lunch for probably a couple years now. Chewing has become so difficult and I can eat some normal food for dinner, but that is pretty much limited to eggs, beans and tortillas.

We specifically talked about this because I have been losing weight and I am not trying. I have been noticing that I have been starting to feel faint before my dinner. We decided to change up one of the protein shakes with overnight oats. My friend Renee, introduced that to me and it seems to be working out well for me given my chewing limitations.

So, today I did not have some ready for lunch so I had two shakes and man, am I faint as my Mom is making dinner! I was able to eat some saltine crackers as I waited.

Now, this is a very foreign occurrence for me! I have been ‘low carbing’ it for most of my adult life! I have known since 2007 that carbs are not my friend but given my dietary limitations, I have to have crackers that gives me just a little bit of energy that I need.

It feels extremely strange to actively consume carbs but I need the energy because this MS fatigue 21+ years ain’t no joke! I never thought that eating would be difficult and I think it’s sad that I am losing weight and I’m not happy about it because I’m not doing it on purpose even though I always did it on purpose for my life before MS…

I am Also ‘Well Aware’!!!

I read this article today and it has really affected me! I couldn’t figure out how to just place the article on here but I think you can get there if you touch the text below:

https://www.yahoo.com/entertainment/christina-applegate-ms-diagnosis-cant-walk-without-cane-gained-40-pounds-213801672.html

So I gasped when I read this part of the article:


In this part of the article is a good segue for what’s going on with me:

I am also well aware of the havoc that MS has reeked on my body for 21+ years! However, my body is reacting a little differently for right now. I’m really not comfortable talking about it but I think that it started in October 2021 or at least where I could notice it.

I think it was in October 2021 where I had my swallow test with my current Speech Pathologist. She asked me that day if I had lost weight without trying. I didn’t really think about what she said. I just said, “There’s always weight to lose but I think I have. I wear a size medium now when I used to be an extra large.”

But now, I no longer chew anything. My diet has become very restricted because the muscles in my jaw are not working. So, I am losing weight but it is NOT comfortable at all!!!