Month: April 2022

We went to get my bed on Opening Day. I saw this picture from five years ago in my Facebook memories and I screenshot it to write about it later but you know how it is for me after I leave my house… as it gets further and further away from Opening Day, that picture is irrelevant but not if I talk about baseball!:

I love that picture! Sean keeps telling me that I have turned my back on the Detroit Lions but I told him that I have stayed true to my heart and have followed my man to the Los Angeles Rams. But seriously, I am not so much a baseball fan. In fact, I haven’t really ever been a baseball fan. I have been to a total of two professional baseball games! The first one was in Tiger Stadium and I was pregnant. The second baseball game I went to was just after Comerica Park opened. And it was so sad to learn in its first season that it is completely NOT handicapped accessible! I’m sure that I have written about this event before but I will talk about it again here.

But first let me tell you about my first time going to a baseball game. which I am sure that I have written about this before somewhere in the archives it’s probably in there but that is where my mind is right now. I was newly pregnant and no one knew that I was. Well, I guess a few people. We go to the game and I was so excited to get a corn dog! It was the first time I was at a baseball game, a professional baseball game and I wanted to savor the ambience! I don’t know who they were playing or even who won but I do know that I wanted to buy a box of cracker jacks! If I personally know you, I know you have heard this story, but I was able to buy MYSELF cracker jacks. I didn’t even finish them.

So that was the first time I want to see the Tigers play. So, fast forward a few years and Comerica Park was just built everyone would think that it was so new construction that it would be handicapped accessible but I found out when I went there on my crutches that it was NOT! The guy I went to the game with had front row, left field tickets. I could’ve caught foul balls IF we could’ve gotten down there! I was on crutches then and there was no way for me to get down to our seats. That really bummed me out but I did not cry because my disease had not progressed that far yet. Thinking about it now, it almost makes me want to cry! We didn’t stay for the end of the game, I think we left in the seventh inning because we sat behind Home plate.

So those are my only two experiences going to watch a baseball game. Thanking about it in retrospect, just like this song, “… I don’t care if we ever come back” but then there is the time that the Detroit Tigers made it into the playoffs when Sean was in middle school. I will never forget that day! We were watching the game and the dryer buzzed and I told Sean to grab the clothes out of the dryer and put them on the couch so I can fold them while we watched the game. He was irritated going to get them and told me to tell him what happens. He left just as a batter stepped into the box. when he came back with an armful of clothes and put them on the couch, he asked me what happened and I looked at him straight faced and said, “Nothing. absolutely nothing!” The pitcher hadn’t even pitched anything! It was a short-lived playoff run but that was years ago.

But now, with me and my disease progression, I will NOT attend a live baseball game ever again. But that really doesn’t matter because i’m not such a baseball fan anyway…

I just want to start this blog post off by saying EMPHATICALLY that I can do ANYTHING for three days!!! This is not me saying anything about dealing with having had MS for 21+ years but I think the fact that I can do that, or, I have done that, makes dealing with sleeping in my power chair for three more days before my bed comes a little bit more tolerable.

I was thinking for a long time about how to write this blog post about my sleeping situation last night and I kept thinking that I was going to name it, “A teeter-totter” because that is this song popped into my head and this is exactly what I did last night!:

Let me ‘Splain ya: I originally got my power chair because my knee was injured while I was seated in my manual chair. My meniscus was torn. Because it takes so long for the body to heal after surgery (I had a second knee surgery on the SAME knee) when you have MS, my wheelchair tech suggested that I get a power chair so I can keep my legs elevated and extended at all times. When my knees are bent at 90°, it hurts! I can adjust my wheelchair to have my legs elevated all day long and that helps. But now, let’s think about a body that has had MS for 21+ years…

I can no longer sleep in my bed. It hurts too badly when my Mom, “Yanks me” out of bed. That’s how she explained it to KJ at the furniture store. My NEW bed is arriving on Friday. So last night, I was a teeter totter because I would lay back until my ankles start to hurt and then I would adjust my chair to the sitting position until my knee started hurting. Then I would adjust it back. I think I did that five or six times before I found a spot where it was like Carrie says, “Floating side-by-side.”

I love that song! It reminds me of our second apartment! I was more able-bodied back then and could still drive. I have listened to this song twice as I was gathering the images to post here on my blog. These are the words that made me think of this song and I always love a reason to post songs that I dig!:

Maybe I should listen to this album tonight when I am puzzlin’…