Well, the third night of sleeping in my power chair was nice and I completely knew it! Actually, I didn’t know it, I HOPED that it would be but I wasn’t positive because the first night I slept in my chair was comfortable but the second night was terrible!
The first night I slept in my chair, I had to remind my Mom a number of times throughout the day that that was going to happen. When it happened, she has decided to sleep in my bed to be available for me if I need her. The first night, she was extremely uncomfortable and she was stressing me out! I told her that it was bad juju for me to go to sleep with her negativity!
What really stunk about my second night in my chair was the fact that I was not comfortable and I had to move my chair to try to find my comfort zone! I barely found it at all throughout the whole night so I slept terribly! The fact that I was moving my wheelchair in the dark and silence of my bedroom with my mom sleeping next to me also woke her up so she did not sleep well as well.
it was terrible yesterday during the day because I was tired and my Mom was tired all day! My Mom kept asking me if I was going to sleep in my chair or in my bed because I did not sleep well my second night. I had to explain to her that sleeping in my bed is something in the past. It hurts too much for me to continue to sleep there. I still need to talk with, “The Powers that Be” to discuss me sleeping in my chair but that’s where I am now. i’m not even sure who those, “Powers” are exactly!
I really appreciate that I had a good night’s sleep last night and I was completely comfortable. My neck hurt this morning and I told my Mom and she looked kind of excited as if my neck was hurt because I was sleeping in my chair. I wonder how long I will have tell my Mom that it hurts too much because it does! This really upsets me even though this is my reality and this is the progression of my disease.
This morning when I awoke, I did not make the same mistake as yesterday where I tried to move and adjust my chair to be sitting up so my covers got all tangled up with my wheels. It was not an excellent way to wake up! Yesterday, I had to explain to my Mom that it is necessary for me to have such weighted blankets! The weight calms my body enough so I can sleep. I’ve had that comforter since we moved into our second department in 2006. I bought it from JCPenney and actually, my Mom had to pick it up for me when I was at work. It was on sale! It was on sale just for me because it’s my FAVORITE color! Aubergine!!!
I wonder what tonight will be like but unfortunately, there is no going back from here.