Back when I used to teach, I would wake up at 4:30 in the morning in order to shower before work. When I first started working, I used to be at work at 6:30 in the morning. But then as my disease progressed, I ended up getting to work later and later. I just attributed that to me being a better teacher and not having to do a lot of work before school. In retrospect, my disease was just getting worse.
I think it must have been five or six years into teaching when I got first hour prep. That was helpful and as the years went by, it proved to be extremely helpful! It seemed to take me longer and longer to get ready for the day.
I think it was my last two years of teaching when I stopped driving. The first school year that I stopped teaching, I was still in a normal routine because Sean still got up to go to high school. And I HAD to get up to watch GMFB?!
But, since the beginning of this pandemic, things have shifted. My disease has continued to progress and my days have also begun to shift. For example, I didn’t end up falling to sleep last night till after two in the morning. Therefore, I didn’t wake up until 11 and it took me a while to be in a position to get ready for the day.
Today, things are a little more painful than other days. Getting ready for the day was rough! There were A LOT more groans, grunts, and even a few tears. Today, I really feel that MS is winning. Well, I KNOW that MS is GOING TO win eventually but today is a little bit harder. I kind of want this day to end so maybe I can feel better tomorrow. Since my day has shifted, it’s going to be a while until I make it to bed. Quite honestly, I just finished drinking my protein shake for lunch so I will be up for a while. Hopefully, no more tears but the grunts are still continuing.