Category: Uncategorized

So, I went to see Dr. Clark in July and he changed the dosage of a couple of my supplements and he added colloidal silver. Yana told me before we left that we can get it next month because she knows that both me and my Mom are on fixed income.

“Go time” for me this month consisted of me being Wade from Kim Possible! but my Mom was able to pick it up Yesterday:

I didn’t know what kind my Mom got from Zerbo’s, but this was the actual bottle that Yanna gave Dr. Clark to test on my body. I was tested for 25 drops a day. He told me just to add to my water. I drink about one and a half to two Yeti’s of water a day and my Mom put it in my water this morning.

I felt my eyes get really big the first sip I took this morning after taking my morning vitamins, started my shake, and took Goli. It didn’t taste any differently but once I swallowed it, I looked at my Mom and told her that it tastes “Lighter.”

I don’t know how else to explain it, but it feels different on my teeth. Different in a good way I think! Well, I will have more tomorrow, and for the rest of my life, it seems so I’ll have a lot of time to ponder it

Tomorrow is supposed to be “Go Time,” but I have made the executive to do a switch-a-too instead and this is what I mean:

I have already written about Saturday night smelling hydraulic fluid when I was transferring back into my chair. I had my Mom call NSM on Monday and she was able to get an appointment for Wednesday. Wednesday, I had rented a van to get my haircut, but I’m just going to let my hair grow (the curls will come out now) and my Mom will drive just my chair to get serviced. I will be in my manual chair in the meantime.

I tore my meniscus eight years ago, so I don’t think it’s going to hurt that badly as I am waiting to get back into my power chair. After my Mom comes back here to switch me back to my power chair, she wi then go to Zerbo’s before she takes the van back.

Tonight, I was telling Sean about it and I told him that I will be the guy on Kim Possible! We started to laugh, and I had to look it up, because neither one of us could remember his name. He was like six at the time. I looked it up and his name is Wade:

I laughed when I found out his name! But my Mom sent me pictures that she took last night of the hydraulic fluid leaking. I will enclose two pictures here. I hope it gets fixed!!!:

I am reclined in the chair in this picture, and my Mom crawled beneath my chair and could see the leak. And then she took better picture:

It’s August. August has been a hard month for me since 2006! But, this heat this summer is making it so much worse!!! I feel the tears so close to the surface because I am so uncomfortable and I have been for a prolonged portion of time. I thought I was noticing age spots on my hands so I sent pictures to my brothers to ask if they think that what it was and my brother Steve sent me this:

Seeing his hand completely startled me! So I texted him this:

My text to him said, “You have hands like Daddy too! And once I finished sending both texts, the tears just flowed freely! But he does have hands like my Daddy! ALL of my brothers do!

I saw that the New Zealand women’s rugby team won the gold medal today, and did the Haka. I had never witnessed women doing the Haka before. All I know is that I witnessed something spiritual today! I always cry when I watch people perform the Haka but these women are Olympic Gold Medalists now?!!!!

So, it’s Trains turn. And I am sitting in the parking lot at Wendy’s, eating a single with cheese, no onions, no tomatoes, fries, and a Dr Pepper as I am staring at a tattoo shop. I vaguely remember thinking that I would get a tattoo there but I’m 42 and I don’t have any tattoos. This song was playing:

I first have to share this song because I am 12 years old every time I hear it but 42 year old Jen is different than 12 year-old Jenny and I no longer can sing along because it’s too many words in my mouth. 12-year-old Jenny did not have MS, oh, wait, maybe I did:

I prefer Train songs from the early 2000s. That’s when I found out that Pat Monahan has a harry chest when he was walking around shirtless. For the first time, I didn’t mind it! This is my favorite picture from seeing them live!:

It was necessary for me to restart the three day cinnamon regiment the three times a day for three days and then I can go back to just the maintenance which is once a day.

It was tolerable. Not pleasant, but tolerable. It didn’t taste so much like the brown Mr. Sketch marker more like a mouthful of dirt. I had nine mouthfuls of dirt! On the 21st, I will send another sample to the lab and then I will see if I have to do this for a third time. My condition is chronic!

This song was in my head from the beginning, I saw nothing! I don’t think that I was ready for this just yet…:

So, I’m thinking it’s going to be a multiple post situation as I am trying to sort through my eye doctor visit and my feelings about it…

Sean came over after work on Thursday. I had talked to him on Wednesday on the phone and told him about my appointment. He came in and he gave me a big hug, and I hugged him right back! He even commented, something like, “Wow, mom, that’s a good hug” to which I responded in a whisper by his right shoulder, “I’m going blind.”

I have been thinking about this since last Wednesday. I was so startled when I put my face in the phoropter (that is the name of the funny machine you put your face into to check your eyes) and I saw nothing. Absolutely nothing! I have been going to the eye doctors since second grade, That’s when I first got glasses.

I was so startled at seeing nothing, and I heard that doctor (with the ugly glasses) telling me that I was going to go blind When she told me, I had MS. Dr. Harris changed my prescription and I put contacts in so I could see so much better with them. I still have a lot to think about with this…

Pillaging for me has taken on a little bit more work. I take 33 pills a day now. I also leave my cheat sheet that Yanna gave me last month in the box that has all of my pill bottles so I can remember if I’m taking the pills correctly. It takes me four full rosaries to fill my pillbox! The rosaries keep my mind focused because counting pills is a lot of work!!! That and controlling my hands!!!

Wednesday, I left the house and it was pretty humid. I was shocked to see what my hair looked like. I looked like Bilbo Baggins from The Hobbit.
That fact, kind of made me laugh, and I HAD TO take a selfie to send to my friends and to Sean. I’m not sure that Sean got the reference, but I know that my friends did!:

I had posted a picture years ago now that a school friend had taken of me in high school and this is a picture of how long my hair was growing up:

I never would have thought in 1 million years that my hair would be this short or even that my hair would be curly! I wanted curly hair for my entire life, and now that I have it, I have to cut the curls off. But here we are.