I opened my eyes this morning, and I was exhausted! I couldn’t figure out why until I got my morning vitamins, and realized that I forgot to take my night vitamins AGAIN last night! Grrr!!!
got me thinking all day today that I really need that many vitamins a day so it just points to my disease progression which kind of stinks…
I remembered to take my night vitamins last night! I really think that I like my new pillbox. I think it is strange that I take vitamins four times a day and it’s kind of a lot of vitamins. They are called supplements, but I think I’m more comfortable calling them vitamins.
I am slowly learning my pillbox! At first, I didn’t even know how to open it, but now, I realize it’s made for older people who take vitamins four times a day. I didn’t understand how to open it and all I need to do is press the heel of my palm on the top of the box, and then the latch releases quite easily!
I also have figured out what my pillbox reminds me of. It’s the movie Passengers. I didn’t realize this at first, but it’s totally what it looks like! Here’s my pillbox.
I don’t even really like the movie! I didn’t see it in theaters, but my Mom likes it and I watch it with her. It took me a minute to figure it out, but I thought back to when Chris Pratt was looking through all of the manuals, trying to figure out how to wake up Jennifer Lawrence. I watched this clip yesterday, and when I saw it, that’s my pillbox! At least that’s what I think:
At least, that’s what I see as I’m kind of fumbling with my pillbox at this point. I can’t control my hands anymore but it’s a little bit easier. #MSsucks!!! 😒😒😒…
I can clearly see my disease progression. It took me four rosaries to fill my pillbox today. Going from 20 pills a day to 31 pills a day constitutes a little bit more time!
I’ve gone from this:
To this:
I now take supplements four times a day. I am at a loss! I never expected it to be like this! This is difficult!
so, this happened yesterday:
We watched Peanut Butter Falcon today and afterward I saw this on Facebook and this is by far my FAVORITE Mother’s Day post!!!:
I laughed out loud when I saw this from a Facebook friend from high school! I was a Junior when this song came out! It was my jam!!!
The ENTIRE time I played this song in my car, watched it on TV in my Parents living room on MTV, and heard it playing in the mall while I was shopping with my friends, I NEVER once thought that I would ACTUALLY be a ‘baby mama’ one day. But alas, here we are!
I watched this video just after I saw this post and I was back in my Parents’ living room and they had beige carpet back then. My Mom has hardwood floors now.
Yesterday, I had to change my visual field test that was scheduled for July 3 to August 13. That’s my life or now. Doctors appointments. But I’m OK with that. I saw the change in MyChart and then I saw that I will meet my endocrinologist in nine days.
I heard the sound of slick wheels driving down the road and I cringed. This weather is terrible for my body!
But, I was taken back to my very first Target run at WMU. It was with Marissa, my wall mate and Tonya who lived down the hall. Marissa had shotgun and I told her she was in charge of the radio. This song came on, and she started singing it so loudly, and she said to us in the car, “Oh, you know the words!” we all laughed and started singing, and that was the icebreaking moment at WMU for me.
Thinking about this day, I can STILL see it so clearly, it made me smile.
Maroon 5 came on my Apple Music playlist all of the time when I just played one song. I was listening to this song a lot because my soul hurts:
The weather is getting warmer and that means that I am uncomfortable. I only listen to two Maroon 5 albums. They are in my playlist. It’s just their first two albums Songs about Jane and It Won’t be Soon Before Long.
Sadly, they sold out after that. at least that’s what I think. Those two albums are my fave. I’m posting songs from their sophomore album here now:
And I have to start with this song. My dad‘s birthday is coming up:
My blood pressure started running low very soon after I was diagnosed with MS in December 2000. I think it had to be 2003 because my Dad was still alive because I left Sean him but my Mom took me to my Neurology appointment. I am not sure why she took me but I remember my blood pressure reading. It was 90/50 and my Mom was very surprised and asked me why I was not dead?! The nurse who took my blood pressure reading told her that some people run low.
I think that was because of the MS diagnosis. Fast forward to the ambulance ride to the hospital after my meniscus was torn in 2016, the EMT took it and told me that it was normal. 135/80 or something like that. I told him that I normally run 90/50 and then he noted that. chart and told me that my blood pressure is really high right now! I was just injured! Of course it was!
My blood pressure on Friday was 106/65 but there seems to be a new development when I get my blood pressure read:
I think that I am becoming so sensitive now that I seem to get hickeys from blood pressure cuffs each time! I took this picture on Sunday night and my blood pressure was read Friday afternoon.
So today was technically a, “Recovery Day,” I had to put my contacts in today because I needed to Pillage!:
This picture will ALWAYS remind me of putting the newspapers in the recycle bin after I read the comics so I may as well put it here!
My Dad always read the paper and he told us kids to do the same. I’m thinking about him a lot lately… I am still trying to digest my appointment yesterday. It went well, but I think I need to remind people that. #DPM2!!! The hallways and doors were TOO narrow and it was so difficult for me. My Mom told me that no one would think that by looking at me, but I was COMPLETELY on edge the entire time! I’m too tired to write about it now, but I will think about it more and write about it tomorrow.
So, I became aware of my hips a few days ago. It was not necessarily hurting, but just a little odd. But now, I have gone from awareness to a moan. It’s just a moan because it doesn’t hurt So much but something is moving. I have to be ginger with it! My Mom will get a little exasperated, and I have to remind her that I have osteoporosis and my bones are getting thin!
I don’t see my endocrinologist until May 16. I did looked it up. It’s a woman and she is a fellow, first year fellow. I told my Mom that I think I may be like a deer in headlights at this appointment so she should take point. I think. I will see her two months before I see Dr. Skatf’s replacement, because he retired as well.
I think I was aware of my hips for a few days but now I’ve started moaning and I wonder when it will turn into a groan and when it will really hurt whenever I move!