It was necessary for me to restart the three day cinnamon regiment the three times a day for three days and then I can go back to just the maintenance which is once a day.
It was tolerable. Not pleasant, but tolerable. It didn’t taste so much like the brown Mr. Sketch marker more like a mouthful of dirt. I had nine mouthfuls of dirt! On the 21st, I will send another sample to the lab and then I will see if I have to do this for a third time. My condition is chronic!
This song was in my head from the beginning, I saw nothing! I don’t think that I was ready for this just yet…:
So, I’m thinking it’s going to be a multiple post situation as I am trying to sort through my eye doctor visit and my feelings about it…
Sean came over after work on Thursday. I had talked to him on Wednesday on the phone and told him about my appointment. He came in and he gave me a big hug, and I hugged him right back! He even commented, something like, “Wow, mom, that’s a good hug” to which I responded in a whisper by his right shoulder, “I’m going blind.”
I have been thinking about this since last Wednesday. I was so startled when I put my face in the phoropter (that is the name of the funny machine you put your face into to check your eyes) and I saw nothing. Absolutely nothing! I have been going to the eye doctors since second grade, That’s when I first got glasses.
I was so startled at seeing nothing, and I heard that doctor (with the ugly glasses) telling me that I was going to go blind When she told me, I had MS. Dr. Harris changed my prescription and I put contacts in so I could see so much better with them. I still have a lot to think about with this…
Pillaging for me has taken on a little bit more work. I take 33 pills a day now. I also leave my cheat sheet that Yanna gave me last month in the box that has all of my pill bottles so I can remember if I’m taking the pills correctly. It takes me four full rosaries to fill my pillbox! The rosaries keep my mind focused because counting pills is a lot of work!!! That and controlling my hands!!!
Wednesday, I left the house and it was pretty humid. I was shocked to see what my hair looked like. I looked like Bilbo Baggins from The Hobbit.
That fact, kind of made me laugh, and I HAD TO take a selfie to send to my friends and to Sean. I’m not sure that Sean got the reference, but I know that my friends did!:
I had posted a picture years ago now that a school friend had taken of me in high school and this is a picture of how long my hair was growing up:
I never would have thought in 1 million years that my hair would be this short or even that my hair would be curly! I wanted curly hair for my entire life, and now that I have it, I have to cut the curls off. But here we are.
I am leaving the house tomorrow to go to my naturopath and to get a haircut. We also are dropping a sample off to the lab. I was nervous about this ‘go time’ all month long! But it looks like I am going to have a little bit of a reprieve:
My appointment with my naturopath is at 3 o’clock and our haircuts are at 5:30. Looking at the forecast, 82° is a lot better than 89°! I have been drinking two shakes each day because when the temperature is over 85°, that’s WAY TOO HOT for me to eat food! That’s too difficult! So it looks like I got a little bit of a break, not at 82° or 83° is comfortable at all but I can handle that better than 89°!!!
I have taken a total of five doses of Ceylon cinnamon. I still have four to go, and I will be done tomorrow. I must say that ingesting 3 teaspoons of cinnamon is INTENSE!!! I spent yesterday a bit startled and kind of stupefied because I was stuck in a “Cinnamon Haze.”
Each time I gingerly blew my nose, I smelled cinnamon. I didn’t blow it really hard because I didn’t want a powder keg explosion in my nose again! As I drank my morning shake yesterday, it tasted different, because I had remnants of cinnamon dust in my mouth. Chewing gum afterward was also a COMPLETELY new experience!!! I liked how it tasted!
Because I was so inundated with the cinnamon smell I thought back to working at Fairlane mall at Superstars. Cinnabon was located the floor below us across from where we were situated in the mall. I could smell Cinnabon ALL DAY LONG! Subsequently, I gained 15 pounds while I worked there. But I only worked there from after basketball season to before softball season. Five or six months?
I really like that today was the second day of taking this Ceylon cinnamon, and it already is “less!” What I mean is that it is it’s less abrasive to take this cinnamon. Oh, it’s still HOT for sure, but it just feels a little bit “less.” And therefore a little bit more tolerable which is good, because I will have to do this for the rest of my life!
Today, when I opened my eyes, and I decided to sit up in my bed, it was SO brutal!!! This heat is insane!!! This definitely is NOT sustainable!!! But it has to be sustained! I have to get through it! It’s only early July?!
I called out the big guns today and I said God three times before my eyes started well.
I saw a post on Facebook from a Facebook friend who I met on Twitter in our MS chats and we mutually followed each other there and also on Facebook when I got on once I stopped working. It was exactly how I feel:
I like seeing her say this and another MS warrior commented. Looks like we are all going through this as well!!! The tears are so close to the surface every single day that I am this miserable! Somehow, I think they are more acceptable that they are silent. My mom never says much and I wonder how badly that affects her…?
So now that we are firmly into July, I am listening to my Gavin DeGraw playlist and I heard this gem!!! Man, how times have changed?! This song has my favorite line that I used to rewind in the car just a little bit to hear it two or three times each time I heard this song in the car. The line that I would rewind is, “Now that I love you I wish we never met.”
Forgive me, that’s just melodramatic Jen who thought that I would have a happy story instead of the difficult one I am currently living. But here’s this song I still dig it!:
So, I went to the doctor on June 25 and just now I can talk about it. I was extremely startled when we got to the doctor’s office in the intake nurse was taking my blood pressure. We were just exchanging pleasantries when she saw that my blood pressure was coming on the monitor at 146/70.
She saw that I was not in distress and told me that we will take another reading and told me to take a few breaths and to relax. I did just that and what she does now is she puts the pediatric blood pressure cuff around my forearm because otherwise I get hickeys on my upper arm and that kind of hurts!
She came back in just as the doctor came in and told me the new reading was 122/67. My Mom just looked at me quizzically. I had my appointment and I had referrals for two different specialties. I still am collecting doctors!
My Mom and I started talking after my appointment. My blood pressure at 122/67 is NOT that good! I have been doing blood pressure readings so many times and for so many years. My normal range is 90/50 or 100/60. I just told my Mom that this heat is intense!!!
I am so happy that I called one of the specialties the doctor referred me for and I’m waiting until January to do the second referral because I have other appointments for the rest of the year!
But that’s just how my brain thinks! I already have the first third of next year planned in my head but schedules don’t open until December so I won’t make next year’s appointments until then. I never thought that my life would be like this in 1 million years but it is! And I can do this!