This is Why…

So, we went to the dermatologist on Monday regarding my feet. I have been on medication for ringworm since April. I have known for a long time that my body takes an extremely long time to heal.

Tuesday, we made an appointment with the wound clinic that we were referred to. We are going there on July 11th. My Mom has been taking excellent care of my feet and it has been holy Thursday since Easter (she washes them twice daily). It’s definitely taking its toll on both of us!

My Mom was tending my feet and we called the wound clinic and made an appointment. The confirmation I got when we made the appointment was that it is with the infectious disease clinic.

It is extremely startling to see that I am going to the the doctor called infectious disease! I felt like a leper! What is this, 1800 and I have the Spanish flu, or I felt like a muddy soldier in a fox hole in Vietnam. I absolutely despise doing any Internet researching but I had to know how I got a staph infection!

I found two very important pieces of information that is the reason I have a staff infection! I only have two doses of medication in me now so my feet still hurt a whole lot but here are my findings and I wanted to share it here to let you all know that I am not dirty or unsanitary. These are the reasons I have a staph infection:

Well, I eat pretty cleanly but now, I’m not eating but drinking my nutrition so that could be some thing. My ringworm turned into pressure sores so this next one made sense as well:

We both are still tired and there is more things to say but I have to stop now because I am tired so I just need to rest now.

Not 1, but 2!!!

It was not too long ago when Sean commenting on the fact that I have a, “Bag of Chapstick.” He made fun of me and said that I am so bougie about some things but I have my Chapstick it is a Ziploc bag!

I explained to him that when you get that low on the Chapstick the little plunger will fall out so that’s why I put it in a bag until I finish it. He told me that he did not know that because he has never finished a tube of Chapstick and he usually loses it first.

Well now, hold up just a minute! I may be a little ghetto with my Ziploc bag of Chapstick but let me just clarify that right now it is not one, but two bags of Chapstick!!!:

Phew!!!

So, I called my shot a while ago when I threw out the watermelon Chapstick and retired the pomegranate Chapstick for the season so it is a two-man race. I said that strawberry was going to win and I got a little bit nervous for a second but I just want to say that this happened Saturday night for strawberr, phew!!!:

Spent.

Tomorrow is the final day of our three day van excursion! I am beyond exhausted! I was able to order us dinner tonight from Sabina ’s so I had to buy beetsoup for my sister-in-law and me to try! Today, I am spent!!!

Incomplete Pass

So, today started my first adventure with my three day van rental. Today, it was an incomplete pass! Here’s what happened, I have procured the prescription for new compression socks that are much needed. My dental hygienist quit unexpectedly and the office was figuring out how they were going to squeeze both me and my Mom in at the same time like they have been doing for years. Like me and Sean used to. So it was a bunch of finagling but I figured it out like this and I laid out a game plan for my Mom:

Monday: compression sack fitting

Tuesday: teeth cleaning

Wednesday: Haircut and wax

So here’s what happened, Brian who we called before hand to make sure we had the correct directions sent us to the wrong place so we were out in Canton and my Mom was upset! I, however, what is unfazed. It was okay.

We passed a Jet‘s Pizza and we ordered a pie and cinnamon sticks. We ate in the car. I told my Mom that it was okay and tomorrow will just have a doubleheader. Well go get fitted for my socks before we go for our teeth cleaning. The dentist office was able to schedule us on Tuesday when we were supposed to go on Monday but they were able to get us in Tuesday. What can I say?!, it pays to have the same dentist for over 50 years for my Mom and over 35 years for me.

i’m not sure where all of these sports analogies are coming from but I did used to play double headers in high school when I was a catcher for the softball team. I’m a little nervous for tomorrow but it will get done. I’m just having a difficult time right now because I am in somewhat of a sugar coma/Carb overload right now… just call me Olaf!!!

I never got into the l craze because Sean is a boy but I feel that way about cinnamon sticks! They remind me of Elephant ears which are my favorite but difficult to eat as an adult but not when you’re a kid and don’t care that you get sugar all over your face!

My Morning Puzzlin’ Routine

So, we had to change my morning routine because of my feet. Remember that my body does not heal quickly. So, she cleans them at night and tends to them and then she has to put my socks back on because my body can’t handle NOT having compression on them for very long. And then, in the morning, she tends to them some more. It’s completely a process that’s killing us both! My Mom more so! We have figured it out to where I do not wake her up in the middle of the night but it’s quite involved at night before I go to sleep and in the morning as well!

I had messaged my neurologist’s office in MyChart a few days before regarding a prescription for new compression socks. And she had just sent over a prescription yesterday morning. The nurse suggested a different medical supply place that was close to my house. But when my Mom called there, they do NOT carry the brand of socks that I wear.

i’ve said before that I am NOT a guinea pig and this far into my disease, I have figured out what works for me and what does NOT! It has taken an extremely long time to figure that out and LOTS of trial and error.

So, my Mom called the place I normally get my socks from and we emailed the prescription there. We will be picking them up when we are getting our teeth cleaned because we will have rented a van. As she was on the phone handling all of this business, because it’s way too early in the morning for me to talk on the phone, I completed two puzzles instead. I just want to say that they were free and I did them for my Mom!

I chose the one on the right because that is my Mom‘s favorite color and I liked the flowers but she did not like that puzzle but I completed it anyway! I chose this one because she loves shredded wheat and I think that’s disgusting! We both laughed when I showed her my completed puzzle!:


This morning, she was talking to my aunt Linda and I just let her talk because she knows what she’s doing and I just have to sit there. I completed two other puzzles as she was tending to my feet and getting me ready to get out of bed:

My Mom has asked me how many puzzles I have completed and I have no idea but it relaxes me and distracts me from my pain enough to make the day bearable.

May 2022 Faves

A day late but…

So, eI’ve been in the funk with the problems I’ve been having with my feet and I’m trying to get myself out of it. This song allows me to focus because I remember that girl and I really do miss her!!!:

But then I started listening to my, “Daddy Mix” and I just…

His birthday is coming at the end of the month and he would be 71. I’ve been really listening to these two specific songs I think that will always evoke emotion from me:

A ‘Bead Counter’?!

I have just finished filling my pill box for this coming next week. Currently, I am taking 21 pills a day. I bought myself the 21 dosage pillbox A couple years ago. I fill it on Saturdays after I have had my first two doses for the day. It takes me three rosaries to fill it. But today, I really started thinking about when I had that doctor appointment to get approval for Social Security/Disability.

I remember going to the place to get evaluated by a doctor. I was not nervous at all because I had already known that my working days were over at this point. I remember that it was cold. Not snowing but cold. I don’t even remember when I went for that appointment. I always seem to not remember specific dates about extremely important things. Maybe I do that on purpose or ‘on accident/on purpose.’ I don’t know!

I had already stopped driving because my vision and depth perception had already begun to diminish. When I was called over to complete the vision test, I was not embarrassed or surprised that all I could read were the first three lines. That was five years ago and I’m pretty sure that I could read even less now! I have since began wearing glasses with a prism over my right eye. I still wear my contacts (-7 prescription) but without my glasses and that prism on, I begin to see cross eyed.

When we first came in, the woman who was evaluating me before I went back and spoke with the doctor had me sit at a table where they were two napkins and a pile of quarters. I think that there may have been four or five. I don’t really remember. She told me to pick up one of the quarters and place it on one of the napkins. I was surprised at how difficult it was but I successfully completed it with a lot of effort!

I thought about this today because I have a routine of filling my vitamin box. I still use two of the ramekins that I got when I bought a complete Pyrex set for my first apartment. when my Mom came over that first day, she looked at all my Pyrex and told me that she would, “Have it.” I remember being surprised at that statement but I’ll let her leave with the box when she left our apartment. Sean and I went back to Target the next day and bought another box.

I keep those two ramekins on top of my pillbox with my therapy putty placed inside the smaller one. It’s really good that I gave her a complete set when I moved in to my first apartment in 2005 because just recently, I hit the table that has my pillbox and ramekins on top fell over and broke when I hit the table with my power chair. I was completely bummed until my Mom brought another set over from her house! It was from the box she told me that she would “Have” from my first department in 2005! And now, almost 17 years later, it is back in my possession.

Today, as I filled my pillbox, it became quite apparent to me that my abilities have diminished greatly. I pour one of my vitamins from the bottle into the bigger ramekin and then I take two fingers and pick one up to put in my box. I noticed today that I have slowed down a lot in doing this because I can’t really control my hands as much as I used to so it takes a while. I have to be deliberate in my movements.

As I watched my fingers move very slowly, I remember my Parents joking with each other as my Dad‘s vision started to go. They would joke and my Dad would say that he is just going to be a, “Bead counter” I did not understand that reference and I asked them about it and they told me about a Sidney Poitier movie, A Patch of Blue. I just recently saw that movie and I thought it was horrible! I can’t believe that people actually treated blind people like that! I’m glad that I didn’t become disabled until after the ADA was established!

I’m not blind… yet. And my hand-eye coordination is definitely subpar! I appreciated thinking about my Parents laughing together and that warmed my heart. I don’t think I could be a a very good ‘bead counter’ anyway…