Category: Uncategorized

I have been using my Fall flavors since September 6. It has been crazy that it has been 80° outside. I am most comfortable using my fall flavored chapsticks:

I thought it was going to feel like Fall sooner than it has been. It has been 80° all week long and I’m rocking my A/C. Today it’s raining and I don’t LOVE that so I looked at what next week forecast will be because I am leaving the house twice:

I’m leaving the house on Tuesday to get our teeth cleaned and then I am leaving again on Friday to go to the pain clinic for the first time at Henry ford health system because I need a new tens unit and then I am going to get my flu shot. I am really hoping that I will feel the Fall breeze either Tuesday or Friday.

But even if I don’t, come October 1st, it’s Pumpkin Spice because I will have a movie to watch after I go to my Visual Field Test appointment (I haven’t had one for a while and I’m a little nervous what it will show).

I woke this afternoon to this email:

I am so groggy in the morning. I thought I could just answer the prompts in my email to appeal my suspension! Yeah, that wasn’t going to happen. I even showed my Mom and thought she could talk me through it. It was not happening!

I thought I could do it after I pillaged as well. Yeah, that’s still not happening! It’s not really a big deal though if I think about it. I have only been on Facebook for seven years I think, and now, the only things I share are my inspirational thought for the day that I get emailed and memes for encouragement to get me through the day! I also wish people Happy Birthday, but Now, I’m not even getting alerts on the day so I am wishing people a happy belated birthday.

But, I share my blog posts on Facebook, and I think my Facebook friends are pretty much the only ones reading them. I guess I will have to fix it, but I don’t think that’s going to happen today! To use one of my oldest brother’s phrases, I DEFINITELY feel attacked!!!

This morning, for the first time since probably 2011, I had, “Naked water.” I have been drinking lemon infused water since probably 2011. I remember writing about DoTerra when I first started my blog. That’s the company where I get my OnGuard essential oil toothpaste and lemon essential oil in a little bottle.

We ordered it a couple weeks ago I think when my Mom got paid but it still has not come. It usually takes a week to come. My Mom called this morning and it should be here tomorrow. It is the weirdest thing in the world to drink, “Naked Water!”

My first Yeti has lemon in it as well as silver. My next Yeti is just naked water. I drink roughly 2 30oz Yeti cups of water a day. It was startling to start off with naked water this morning for sure!

The woman said that it’s supposed to come tomorrow. Tomorrow is ‘go time’ so we’ll see. I appreciate having the silver in my water as well because that makes my teeth tingle. I am getting ‘dosed’ for a number of things tomorrow. Three or four things. I wonder when this disease progression will slow down… if it ever will?!

I saw this and shared it on Facebook and it absolutely made me laugh:

That is exactly how I feel! I cannot wait until October 1. But I have NOT left my house since July 21. I am hoping that when I leave my house on September 18 for my haircut, I will smell Fall!!!:

Sean told me today that he heard that the 2023 summer was the highest on record only to be surpassed by the 2024 summer heat! I told him that it’s definitely a lot more unbearable than last year and last year was a little bit tough.

I have been living in my memories for eight years now. Since I stopped working. My Mom and I didn’t find out that I am”Homebound” until December of 2023. I was going to be accepted into the HAP Senior Plus insurance plan because I have been disabled for so long. I no longer make my own memories and just look back into the catalog of my more able bodied times.

I had a doozy of a memory this morning as I was sitting in my bed waiting for my Mom to transfer me out of it!!! it was complete with a soundtrack!!! I heard the opening bars of this song as I saw in my head this scene:

And this is the song that played in my head as I was sitting in my bed waiting to be transferred:

Well, this song was released in 2015. I was still working in 2015! I was the Reading Specialist already for the school. I was still actively working out at Barwis Methods back then! I saw that scene in my head but my memory of that book is different.

I was teaching in my last classroom at that time, a converted closet off of the cafeteria as the Reading Specialist, I always would let my students catch me reading (something I learned specifically in college). I would read between classes. As students would come in, they would see me reading.

I remember that I specifically bought this book because the movie was coming out and this is the actual version of the book that I have:

I was reading the specific part where they go to the horse races, and he is in his power chair, and I knew it was going to be a disaster! As I was reading the words, my eyes started welling with tears but the bell hadn’t rung yet and I had to finish the paragraph.

The memory I had of this song, and this movie was about the book I read and cried in front of my students! They were so concerned, and they asked, “Miss, are you OK?” I remember wiping my eyes and telling them that, “You know that it’s good writing when it emotes emotion!” I was not embarrassed to cry in front of them at all, but one thing that this movie points out is the fact that disability is for the rich!!! I do not have a stable to convert to an handicapped accessible apartment!

Waking up is very difficult for me now, but I’m so happy that I had such a vivid memory to focus on to help me wake up! I am not sure that I will rewatch that movie for a while because it’s kind of tough as a person in a power chair and I am absolutely NOT rich!!!

Well, we have entered into that strange part of the season between seasons so I had the AC on today and a couple days ago. I had the space heater in my bedroom. I was actually sitting with a space heater blowing on my face, because I no longer can control my body temperature! I just can breathe easier now, but I wonder when I will start to freeze, because that will happen much sooner than I wanted to, but it will!

I heard this song yesterday and it made me want to watch Bridget Jones’ Diary. The first one. She doesn’t even look like that anymore but I’m going to watch it sometime after Christmas, I think!:

Well, I pillaged today as I do every Saturday and there is a new development. This is something that I am still grappling with and trying to wrap my head around:

I am a person who likes, “same ol’, same ol.’” As a homebound person now, my life is completely routine. I’ve been talking about that with my Mom and I don’t think I’m upset about it but I think this new change is a little bit of upsetting…

I listen to rosaries on my phone so I can concentrate. I have gone from three rosaries to four because my dosage for my supplements changed in February I think. So, I fill one supplement for the week and then take a swig of my nutrition shake. (On pillage day, that’s my dinner).

But, here is what happened today, I was filling my pillbox with one supplement that I take 10 a day and that’s for my urinary tract health and just on the last day of distributing it, I felt my hands were becoming difficult to control.

After I finished distributing that supplement, I started thinking because the next supplement was 21 pills a week and then the one after that was 28 pills a week. I could still distribute all the pills for the week without my hands feeling strange. The next pill I distribute is a tablet not a capsule and I take 36th of those a week. That one’s for my bones. And my teeth. (Which, when you think about it, that’s the same thing because teeth are bones).

That is where I made the executive decision to stop distributing my pills for Tuesday, take another swig of my infusion shake, and then on Saturday I did the same thing.

But, I think this is what is so startling about what I did today. As I was telling my Mom about it, I asked her if she remembered about that doctor appointment we had in Livonia to prove that I was disabled. I asked her about quarters on the tissue, and she remembered that as well. I told her that is what I thought of and I saw myself actually doing it just before I was approved for Disability.

I think I’m just startled at how difficult everything is now. I don’t think this heat is helping at all but my disease IS progressing and I can’t believe that I can’t do things for too long without reinforcement of nutrition and that kind of stinks…

So, yesterday. It was terrible, right?! At 95° outside, tears just streamed down my face all day long! I was so uncomfortable that’s just what happened! If I was not crying, I was just sobbing silently with my shoulders shaking because it was miserable!!! I talked to Sean yesterday and he agreed with me that it was so hot because he was working in it and he was concerned about me. I was very concerned about how much longer I would have to take it and I saw this meme on Facebook today:

I added this comment to my repost:

This is the last of my Spring/Summer, chapstick. I used all four tubes!!! (I have no idea how I did that with the picture by the way!) I was just telling my Mom today that I can no longer control my hands even more so and it’s a little bit startling!

AnyWho, I think I have about six or seven days to use the rest of this chapstick before I pull out my Fall box. It’s sitting in the box with my remote controls right now.

I really cannot believe that I used all four tubes but this heat was insane and the fact that I am homebound, I think my chapstick addiction has come out! I read that some years ago about people being addicted to chapstick, but I think my body hurts so much all the time that I need a little bit of a reprieve from that so I smear chapstick on my lips constantly and rub the softness of them together A LOT so it seems?!