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So, I had my neurology appointment on Friday and she told me that she signed everything that I needed her to and if nothing changes, I won’t see her again until next year.

I know that nothing will change before our appointment next year! I’m sure my symptoms will get worse throughout the year but I will just deal with it. I’ve been dealing with this for WAY TOO LONG!!!

I was thinking about how I used to walk down the hallway at the clinic and Dr. Elias (who is now retired along with his nurse) used to watch me check my gait. I didn’t think much of not walking down the hall anymore and just running my heel down the opposite shin. It wasn’t until I could not do that anymore when I really started to realize that it’s getting serious!

But I guess my life with MS has always been serious. I got pregnant with Sean four months after I was diagnosed and was in college. Once I had him, it was a race to finish my degree and get a job! We got our first apartment August 1, 2005. I was a teacher, and therefore could only afford to see my neurologist once a year because that is a specialist appointment and therefore more expensive! I’m a single mom!

It was at my second to last speech pathology appointment, where Meira suggested that I go virtual for my appointments because it will be easier for me because we won’t need to rent a van.

I can do that for my Neurology appointment because they are not going to give me a cure but I need to see my internist twice a year to get blood work in a weight, so those will NOT be virtual. My optometrist in my neuro ophthalmologist have to see my eyeballs, so those are NOT virtual either.

But I guess this kind of makes me feel 21st-century, because I will see my neurologist annually just virtually from my living room.

Today marks the first day that I have NOT worn my compression socks since having my pressure sores. I woke up too late in the day and I need to wake up to early tomorrow for my virtual neurology appointment. feelsI weird! But I must say, I am pretty sure that this will be a one time thing. My legs feel so weird!

I was thinking about when I lived in our first apartment, we were going back to school for my second year teaching And I really have to put Gavin on here, but I can’t stop thinking about Sinead O’Connor so:

I constantly think about the fact that I could have gone to see Gavin Degraw at Saint Andrews Hall in Detroit! That was before he had really made it big and it would’ve been a pretty cool intimate setting! I was too concerned about work the next morning! Retrospectively, I have seen him perform, but that was at DTE, I. should’ve gone to the concert in 2006!!!:

I had my Mom cancel the van rental for my eye appointment to get readers for her August 23. I thought about this a lot and right after we had my eye appointment, I need to just space out the appointments!

We have been discussing this, and I told my Mom, let’s not be crazy?! This heat is insane for me and I already have it scheduled teeth cleaning on Tuesday! So, we’re getting our teeth cleaned just like Sean and I used to. We get our teeth cleaned at the same time. I have been going to that dentist office forever! I think I was seven when I started!

I just have to double check that my Mom will cancel my appointment with her phone because that’s where she receives the text confirmations because I changed my contact number to her number because I’m not really reliable on the phone anymore. Isn’t that crazy to say?! My Dad used to pay me to NOT talk!!!

Yesterday I did not wear my contacts because I was recovering from leaving the house That’s pretty stressful for me! The world is NOT handicapped accessible at all and my vision is fading so that as another layer of uncertainty, which kind of stinks!!!

Yesterday, my Mom and I were discussing the appointment we made for my readers and we both decided that making it a triple play is not a good idea at all anymore. With my disease progression. She made the appointment for me yesterday for readers for 23 August.

Very recently, I have changed my contact number for all of my doctor clinics and medical supply distributor to my Mom’s phone number. I think year 22 of having MS is ABSOLUTELY TERRIBLE and I am hearing that doctor from when I was diagnosed tell me that “Look, you have MS, you’re going to go blind and then I am going to die.”

My Mom and I told Dr. Harris about that terrible doctor who told me that I had MS and how she did. He couldn’t believe it either, and he told us that we should’ve punched her!

Retrospectively, we probably should have, but we are both too shocked because I was only 18 then and I didn’t know what to expect but it DEFINITELY was not what it is now!!!

When I awoke today, I saw this when I checked my phone and I smiled and texted it to my son as my ‘pic of the day,’:

I am not sure how these pictures show up in my phone, but I like it a whole lot!!! When my Mom came into my room to get me out of bed, I showed her the picture, and she smiled as well. She commented on how Sean has always had a thing for pumpkins! Because he really has!

I told my Mom how, one year, probably when he was 13 maybe 12, we did NOT go to a Cidermill, and he was concerned that we did not get a pumpkin for him to carve for Halloween! We stopped by a nursery on telegraph Road by our house and he picked one out.

I just remember him smiling as he walked toward the car because I was still driving then. He really does have a thing for pumpkins that he always has! I saw this on Facebook and it made me want to post the picture I sent Sean this morning:

I really can’t wait for this summer to be over with because this weather is killing me!!! Since my year has been planned since April, for all my haircuts and doctor appointments, I made sure to secure a day for us to go to a Cidermill because, duh!!! I hope it doesn’t rain!

I saw this on Twitter today and I want to explain my answer:

There is no debate. The correct answer is center piece! Brownie making was my thing and I did it all the time for work and to have a container of brownies in my house pretty much all the time!

I want to further explain, that if the only brownie left is an edge piece, I will eat the edge off first, so I trick myself that it’s a center piece.

I am gearing up for tomorrow, because tomorrow is the second half of ‘go time.’ I had to separate it like this because I had to wait until it was one full year since I had gone to the doctor. It’s my optometrist. I always get just a little bit nervous before I leave my house…

My Mom and I watched High School Musical 2 today. And I was remembering living in our second apartment because that is when that movie came out.

That is the memory I am choosing to live in today. I called Sean and reminded him when he was six and he liked that movie. We both liked it!

I have changed over my soundtracks. I was listening to Sara Bareilles but now because on August 1 it will be 17 years that I moved out of my Parents’ house so Gavin is fitting for that!!!

This was my Sara song for July:

I haven’t chosen my Gavin songs that I will listen to thinking about moving into our first apartment in 2005. But this memory showed up on Facebook and it warmed my heart! That was so much fun!!! Now, I will move from Sara to Gavin:

That was my very last concert that I went to! That I will ever be able to go to! I love that I went to it with my cousinT!!!

Today is recovery day #1. I did not put my contacts in today at all, so I watched, Laws of Attraction because I can practically say that movie verbatim and I love the Irish scenery!

Just after the movie ended, I know that I have written a blog post regarding this specific song, but I couldn’t so I searched in YouTube. I found this montage, and I really, really liked it because I really dig this song!: