Category: Uncategorized

Today is Saturday and that is my Pillage day:

I discovered today, that all of this red tape that we are dealing with has taken it’s toll on me! I forgot to take my lunchtime vitamins yesterday! What?! I have NEVER forgotten to take my vitamins! Or, at least, when I do, I take it at night before I go to bed. I shake the individual day’s vitamins to see if there’s anything in it but I guess I didn’t do that last night.

We have been on the phone for two weeks regarding all of the stuff! But I have a wheelchair coming. I should have gotten a new chair on July 18 but I did not. I am beyond frustrated. But Monday thinks might be different…

Discovering that I forgot to take my vitamins yesterday kind of reminded me when I got a B+ in grad school. That was absolutely devastating to me!!! That was the first time I had gotten a B+ my ENTIRE time at the University of Michigan-Dearborn!!!

The only solace I got from that B+ was the fact that I got an A+ in a class the semester before, so I rationalized it to myself that if I average it out, it’s an A-, NOT a B+!!! Not that that matters at all in the grand scheme of things!!!

It will only be this complicated for a little while…:

But let me just tell you right now, if I’m still using those bags-o chapstick when it is time to go to the Cider mill, I will break ranks and connect from the box.

Today is Recovery Day from yesterday. I did not wear my contacts today. Yesterday was very difficult!!!

I am not out of the woods yet, I am befuddled that there is so much red tape, 22 years into this disease… 😒😒😒

Today it was October 1, which is a big mile stone day for me! That is the day when I begin watching Hocus Pocus and it is when I change my chapstick to my fall box. I was reminded right off the bat, how complicated this ‘changing of the guard’ will be for me:

I was hoping to finish my Pomegranate chapstick before today, but I did not so I have to keep that in my remote control box until next Spring.

I changed over to Pumpkin Spice today and I knew that there wasn’t much Chapstick left in the tube so I checked it out I got stuck so now I have two bags of Chapstick. I am not using pumpkin spice tomorrow though so that one will just wait for a few more days.

I am well aware that my chapstick habits DO NOT matter at all, but it keeps my mind occupied and I have a feeling of accomplishment every time I finish a chapstick tube in its entirety!!!

I am sitting here just gearing up for this coming week. It’s ‘go-time’ on Wednesday and I have a doctor’s appointment on Thursday for bloodwork and a weight. But tomorrow, my Mom has a dentist appointment and that changes our routine. The service technician is coming to service my bed on Tuesday. So right now, I am just sitting here in silence going through each day, because I know it is going to be difficult!

So here’s the thing, I have figured out that having MS for 22 years breaks the temperature gauge in my body! I realized it was broken last winter and my Mom is having a crazy time living in this house with me!!!

Yesterday was my oldest brother’s birthday, and therefore it was six months to the day until my birthday! we are exactly 9 1/2 years to the day apart! I have just been wearing a T-shirt and shorts in the house but yesterday I noticed that my body started feeling weird!

It wasn’t until about 3 o’clock in the morning when I realized that it’s the weather change that’s making my body feel so wonky! When my Mom got me out of bed this morning, I told her I would like a sweatshirt.

I’ve been wearing my Michigan sweatshirt most of the day, I took it off for about a half hour, because I got a little warm but now I know it is completely sweater weather!!!

So, I started wearing a sweatshirt on September 13 and I wonder when the hats are going to make an appearance! I am prepared so I have both my indoor and outdoor hats ready to go! I almost forgot, how comfortable wearing a sweatshirt is!!!

Today, I woke up and my Mom was taking Leia for a walk up to CVS. I had just awakened, so I didn’t want to move at all. My Mom asked me if I wanted her to unplug my bed because it gets pretty loud in the morning! I told her not yet because I wanted the freedom of movement in case I wanted to adjust the bed.

The tech is not coming out until next Tuesday to address the motor at my feet. Today was the first full day that we have had heat. My body cannot handle this weather change at all!!! at least I’m over the nose bleeds now..,

I’m pretty startled at how I am feeling right now but I was thinking it’s the fact that I am staring down the barrel of 23 years and that’s kind of tripping me out a little bit… Or A LOT! I never would have thought that MS would get this bad!!! But this is where I am right now, and I just have to deal with it! 😒😒😒…

So, I absolutely love my bed! It works the best for me and my needs at this point! My Parents got it for me. We went and picked it out on April 8, 2022 and it was delivered on tax day 2022. I found that out yesterday as I overheard my Mom talking about it.

Let me ‘splain ya:

The motor that controls the vibration in my feet is broken. When I say it is broken, I mean that it’s a dull vibration all of the time. That’s not good, and I have only had my bed for less than a year and a half!

When my bed was purchased, we got a 10 year warranty from the store. I discovered that that was happening two days before my Mom called the store yesterday. So I figured that I was going to get a new bed. as it has only been a little over a year so it would be replaced. At least that’s what the salesman told us…

That turned out to be erroneous information that we just found out yesterday after my Mom was on the phone for a long time! Technicians from the store would not come out without paying for service! What was the warranty for?!

My Mom was on the phone so long yesterday, but she actually was able to speak with the Tempur-pedic people. They saw that I have a warranty and they are coming out on the 19th.

The woman my Mom spoke to from Tempur-pedic was named Priscilla and she told us where the actual Tempur-pedic stores are to purchase a bed. They are at 12 Oaks and Somerset! But I don’t need to buy a new bed, I will just need to get it serviced directly from Tempur-pedic. We need to call the store we bought the bed from to find out what the warranty is for?!

My Mom took Leia out tonight when it was raining pretty hard outside! My Mom took her in her raincoat and my Mom had an umbrella.

My Mom told me there was a loud crack of thunder and Leia crouched down and jumped back because she’s never seen or been in that before!

My Mom and I both laughed about it,and she showed me what lad did! What a scaredy baby!!! We love her so much!!!

absent mindedly playing word games on my phone and this song comes on and I so loved hearing it right now!!!: