Category: Uncategorized

Strange

My Mom left to pick up the van because I am getting a bone density scan tomorrow afternoon. I have already checked in online and upon check-in, I need to NOT have vitamins today until after my scan tomorrow. I started taking my regiment of vitamins in the summer of 2007. What I take has changed somewhat through the years, but I have to tell you that not taking anything feels strange! So strange!!!

Back When I Thought that he’d end up More of a Success than he Actually Was…

I shared, I have been sharing that Sheryl Crow song because that’s my jam! I recently looked through her catalog I saw a song where she did that duet with Kid Rock. I forgot about that song! But then that got me thinking.

I wrote my senior thesis to this album, and I don’t even remember what my senior thesis was about:

I do not want to listen to this album again, but it reminds me of a different time in my life. So I was thinking and I found this video and I was in high school back when the MTV video music awards were something big I thought he was so cool!:

that really seems like a lifetime ago…

Neat

So, I am a little bit startled at my disease progression at this point. Probably more than a little bit, but I am already starting to make further accommodations. For example:


I no longer possess hand strength and control enough to apply chapstick in the normal way. I cannot put the cap back on when it is too exposed on the tube. So this is what I do so I can close it now without denting the exposed chapstick. I miss the feeling of the Chapstick conforming to my lips but now I can’t do that anymore because I keep it mostly in the tube now. At least it’s neat, I guess?

NOT a Bust…

So, my dermatology appointment had to be be rescheduled for April 26. That’s really good because I had a dentist appointment in February and an internist appointment in March.

It’s rainy and it’s cold, but today was not a bust because parking was free and in addition, we got a deep dish pizza from Little Caesars! I still can eat that!

Next week, I have a bone density scan. I guess I am taking this Chronic illness Care serious.ly. I will never forget the morning of October 28, 2023 and two months to the day before my 23rd anniversary of having MS, both of my hips felt like they were burning.

How it feels when my knee pops out of its Sacket. The first appointment available I could get was in February. On my brother’s birthday! It’s my brother Jimmy’s birthday! We are also getting our teeth cleaned on my brother Steve’s birthday!

The Eve of “Go-Time”

My Mom picked up the van tonight and tomorrow is “go”Go Time” because I have an appointment tomorrow. It’s a dermatology appointment. I think I’m really starting to get the hang of this whole, “Chronic illness Care” thing!

I never would have thought that my life would be like this, but it is now. I’m OK with that I think. At least, that’s what I tell myself…?

Gutter Mouth

I discovered my first canker sore on January 12. We treated it and it went away. We have already spoken to our dentist and my naturopath.

Well, guess who discovered another canker sore today! It’s me! I am officially a Gutter-mouth! I actually tried to take a picture of it. It’s in the center of my lower lip. I was able to get a picture and I texted it to my Mom.

My Mom was actually napping but I woke her up so we could put medicine on it so it stopped burning. It didn’t hurt again when she applied it to my lip. I don’t think that I like this new development.!!!

It Lingers…

So, I found out that I had a canker sore on the 12th. It’s the 16th and it’s still NOT healing having MS for 23 years, it makes sure that any ailment I get it lingers. I think that it may be weirding my Mom out a little bit that the medicine does not bother me at all when she puts it on the canker sore. Having MS as long as I’ve had it, this canker sore does not compare at all but it’s NOT fun at all!!!

Rando Tune #53

I heard John Legend singing this song in my head few days ago as I was on the verge of falling to sleep in the early hours of the morning. I remember that it was a duet, but I couldn’t remember who it was with.

I thought of that again today, what I hear is John Legend Saying “shoeyou a safe place to land” I just searched it, and the duet is with Sara Bareilles?! Of course it is!!! And here is the song:

17 Years Later

So, I wrote about that Maroon 5 song that I added to my “Daddy” playlist. I hadn’t heard it for a while so I played it last night when I read over my blog post. Well, I lost it!… Again. 17 years later!!!

I turned this song on and as I heard the opening bars, I saw myself driving to the School of Education at U of M Dearborn. It was just off main campus and driving there from my work, seeing that I have lived in Dearborn for my entire life, certain landmarks hold deep memories for me!

I think that I have written about this memory before, but it was just after my Dad died when I was still in school to get my masters degree. The School of Education building is on the way to the Henry Ford dialysis center. I think it had been just months after my Dad had died and I was driving to school after I had to teach for the day.

Something that I have realized now that I no longer work, it was SO BEYOND tiring to work for the 12 years that I did work! So, I was tired and I still needed to go to class. As I was driving to school in a familiar environment, I saw a car that was my Dad’s car! My Dad had stopped driving for a few years before he died but you couldn’t tell me that then when that car turned into the dialysis center.

I gasped and turned into the parking lot of the building where my class was. I always parked in the front in the disabled parking. I pulled into the spot, and I lost it! I told Sean that the other day. I never told him that before. He was only four. but 17 years later, I thought I could handle it, but when I heard the bars, turns out that I can’t!!!:


I chose this video of this song because I think it’s more dramatic and I can’t believe that it affected as much as it did, correction: as much as it DOES! 17 years later?!!!