Man, I am exhausted!!! I have one more day though. I am getting a bone density scan tomorrow at 3:30. I’m pretty sure that I have osteoporosis in my left hip as well now. I’ll find out tomorrow and I will speak to the Endocrinologist about it next month.
I heard these two songs while waiting to get my haircut nd I really dug them! It’s from past life and one that is kind of difficult for me to remember. I used to be able to carry a tune!?!…
This first one I was in college, undergrad. I think I was smoking around this time for a short bit:
I got all 3 doctors appointments done. This was so difficult!!!! I have to ‘splain ya about my bone density test, once I am recovered. But it got done!
I got all three appointments done! I talked to the podiatrist for the first time and that’s interesting. I met virtually with the pain clinic so hopefully my leads and tens unit batteries will keep coming as per my lawsuit settlement, and I had my bone density scan. I don’t have to leave the house until February 18. I’m hearing Dave right now:
I feel the crash and I am so excited to sleep!!!!!!!!!
This past three days have been really rough and the cold is not helping at all! But I just figured out right now at this moment that my pain level is at a 7 all the time now.
I’m hoping that it’s just from the cold that it hurts as much but I don’t think that 25 years is helping either.
I saw this meme on Facebook today and the fact that I’m recovering from a 3-fer and this weather is absolutely horrible and all of the snow is just awful; it got me thinking about how much I have grieved in the past 25 years. I am still grieving and today it’s more than a little bit hard!!!
I realized today because I’m having a really hard time at 25 years with MS and it got me thinking that I don’t think that I recover anymore. There are no recovery days. I just feel this terrible all the time!
I thought to change the title page of my blog to ‘Hangin’ In’ because that’s pretty much what I do now. It pains me to say it, but, I absolutely am spinning my wheels at this point.
I started my blog in November 2013, with disease progression and everything, I can’t even remember how to change it!?! I was going to change the picture that had me in my manual wheelchair back when I was still working:
Screenshot
That’s not me anymore. I am homebound now and I just exist between doctor appointments. I have been saying that a bunch and I’m trying to get used to it. Just like it is easy for me to say, “Eating is no longer easy or enjoyable” now. Here’s the picture I should change it to:
I changed the Bio on my title page on January 10. I took this picture on January 1. My Christmas tree was still up! I tried to smile a little bit, but I think that it’s gone now for the most part.
So, I had appointment with a podiatrist because my toes were having a problem. My Mom did NOT want them to turn in to sores. I made the appointment because even after I changed my shoes, my big toes were still hurting!
Me seeing a podiatrist, makes the 13th doctor that I have seen. Lucky 13! I told my Mom that I am THAT sick. She disagreed, but then I asked her, “How many people do you know who see an endocrinologist? Because I’m seeing one next month.”
I am seeing the endocrinologist virtually so I don’t have to pay for a van rental. I know the appointment isn’t going to be much so I can just do it virtually. I am a ‘rule follower’ and I had my bone density scan done and we’re going to talk about that on February 19.
But, seeing this podiatrist, he was running so late and I did not like that at all! I remember a urologist made me wait over an hour, almost 2 I think. That one wasn’t that long but he told me I should just see him ‘as needed.’
We were at the doctors office late because he was running late. There was a traffic jam in the hallway as I was coming out of the exam room. A woman with a walker was trying to leave her exam room as I was in the hallway, so I just moved myself to the front desk and I just waited by the side as my Mom got ‘combobulated’ (that is still a word from Sean, I think he was five?) in my exam room.
There was no one in the waiting room so I struck up a conversation with the receptionist about this freezing cold! I told her that I am homebound and I only leave my house for doctor appointments and I had to have a doctor appointment today?! We both talked about how cold it was, but I was happy that I got it done in spite of this temperature:
I messaged my new podiatrist over the weekend for some type of topical cream for neuropathic pain. My right heel is starting to feel weird.
So, get this, he told me I should talk to my neurologist about a ‘Lumbar radiculopathy L5-S1’ whatever that means?! I messaged him back and asked him if that information could be gotten from my recent bone density scan or if I need to make another appointment? I sent him that message after 5 o’clock so maybe he’ll message me tomorrow because I have a podiatrist because I am that sick now.
This is a lot for me to deal with to say the least?!!!! #ItSucksToSuck!!! #MSsucksAfterTwentyFiveYears!!! 😒😒😒…
It’s a very January movie to watch (because of the turkey curry buffet) and I tried watching it, but it was not available anywhere unless I bought it so, maybe next year. But I really liked hearing this song!!!
So, I saw my podiatrist on January 20 and he told me that I was not having a problem with my toes at that point and he said just to see him on an ‘as needed basis’
I started feeling neuropathic pain on my right heel and it made me nervous! I messaged him about something topical that I can use for neuropathy pain. I sent that message on the weekend after I saw him. He responded Monday before I had awakened.
He told me that I may have been experiencing some problems due to my MS and I should speak to my neurologist and ask about getting a Lumbar Radiculopathy L5-S1.
Whatever that means. It got me thinking I talked with my Mom about it as well. I have decided that I think I will just keep that information in my back pocket for the time being.
I messaged him on Monday night to ask if my bone density scan that I had on January 22 would cover that image he was looking for. He responded today and told me that it did not.
It’s not hurting that badly… yet. But I think it’s good to know that I have a doctor who responds quickly in my back pocket for when I need something. I’m most likely will need something down the road and that’s so scary for me!!! #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…
