Dave and Sean

Okay, so, yesterday was ‘go time’ and I had my third teeth cleaning appointment. My Mom called the day before just to check on my appointment time. Well, get this!:

My dentist sold his practice. a dentist who I have been going to since I was seven. Sean was three when he started going there as well so he has been going there for 20 years! But I think my Mom takes the cake because she has been going there for 52 years?! Dr. Fox has done all of her dental work as well as mine but I just have had a cap when I was I 16 because I tried opening a bottle of water with my teeth and that wasn’t a good idea.

It was such a good idea that she called because in selling his practice, my hygienist no longer works there and that’s why we didn’t receive the postcard about my appointment. When she called, they only had a 1 or 2 o’clock appointment. We took the 2 o’clock! Man, was that super difficult but we did it!

I noticed changes when we got into the waiting room because the water feature that my dentist has had for probably 20 years was gone. The woman cleaning my teeth was a temp and her name was Keisha. She was lovely and’s she reminded of me of my childhood hygienist because she was so gentle!

We told Sean about Dr. Fox selling out and he said that may be the end of the Mom and Pop shops! I didn’t think he was wrong. My Mom made my return appointment with my previous hygienist for July because there was no availability in June on the dates that I needed.

But then, we left the dentist. I have gone to the SAME dentist for so many years and it has been the SAME for many of those years!!! But I have changed, my disease has progressed!!! I don’t even get out of my power chair when I go to get my teeth cleaned anymore. I am falling into this homebound-ness routine and I really don’t like it but there is nothing to do. Sean and my Mom told me that it was getting warm, but yesterday, I did not feel warm at all!!!

I will be wearing my Vanilla Bean chapstick, at least until the next time we leave the house which will be March 19 and I’m pretty sure that there will not be any snow on the ground then!

Because, let me tell you what happened to me because there was snow on the ground. Namely, the parking lot was cleared, and all the snow was pushed into a mound in the blue area of the disabled section. You know, the place where power chairs need to go to get into a van that has a ramp!

When there is snow on the ground, it throws my vision off, and I am not sure if I under it or over shot it, but I got stuck getting into the van on the ramp! The chair got stuck with me in it halfway up the ramp! An elderly man was coming out of the dentist and offered to help and when he and my Mom couldn’t do it together, my Mom told me to use my device. I wear my Medical Guardian device every time I leave the house now.

My Mom thanked the man for his help and she spoke to the people on my from Medical Guardian. My Mom told them that we did not need a firetruck and just needed people to help because my chair was stuck. Well, they came in a firetruck, but they did not have the sirens and the lights on, I think.

Enter Dave and Sean. The two EMTs who came out of their truck to assist. I was beside myself, and I just sat there, pretty much speechless. Dave took lead, and he assessed my chair and asked to put it in neutral, and I didn’t know what he was saying. He looked at my chair a while. Then he released the yellow. tabs at the bottom. I remember my Mom doing that once!

Then he told Sean that they were both going to tilt my chair back and lift it off the ramp! They did just that with all over 500 pounds of me!!! (The chair itself weighs 400 pounds and I am losing weight but I am over 100 pounds!)

I don’t even know if this is how Sean spells his name, but it is how I spell the name Sean, both originally, when I named him and all the time since! When I was able to get back into the van, Dave commented on how well I moved in the chair! That is completely why I can’t understand how this happened?!

But then there is the icing on the cake of this horrible ordeal! I get out of the van and I’m rolling to my porch up the walkway after I come off the sidewalk but when I turned my chair to go up my walkway, I felt myself begin to sink, and I knew there was only one reason why I was sinking, and that was in the wet ground!!!

I yelled, “SH*T!” at the top of my lungs, as I reversed my chair. The weather was miserable and I didn’t know what else to do. I was looking for a puddle to roll in, but my Mom said to just come in and she cleaned up my chair after I got into the house.

My Mom and I talked about what happened and I think when the ground is wet, she should take lead. At least, don’t park by sitting snow because that’s terrible because I cannot even see! We know that now! But I don’t think I’ll need to think of snow until next year.

SH*T!: an Explanation.

So let me ‘Splain ya a little bit:

My Mom showed these pictures to me yesterday and I couldn’t understand what they were at first… But then it dawned on me!!!:

That is how my wheelchair got stuck! There is snow on the right of me and I could not make sense of what I needed to do. So that happened! My Mom explained it to Sean today and the fact that we were both silent. We didn’t yell or get upset with each other, but just try to figure it out in silence and we waited for the firetruck.

And she showed me this picture, and I looked at it and raised both my fists up on the sides of my head and I yelled, “Sh*t!”:

I could feel myself sinking into the grass all over again! I guess that’s a thing around Easter. Tire tracks on my lawn!

Right after I backed up and saw the new indentation from my wheel I glanced over to my left and could see the tire tracks from the last year. I think I’m going to look for that post now to share!

Befuddled

I am so grateful that I did NOT hear that Alanis Morissette song when the Westland fire department came to my aid:

My Mom said that sirens were not necessary and they listened. I was surprised when I looked to my left and they were getting out of the truck.

My Mom and I talked today and we said that we should always park where the firetruck parked because the lot is big enough. Regardless, if there’s snow, we need to make our own parking spot.

I’m really not ready for this disease progression but it seems to be here now, and I’m quite befuddled by the whole thing!!!

NOT Recovered

Today is Sunday and I am NOT recovered! I am a bit startled by this fact, and maybe it’s just because I’ve had MS for so long…

This happened Friday:

I was able to fill my winter chapstick container so once this bag-o-chapstick is gone, I have two other tubes of Vanilla Bean and I will just wait for the weather to change. It’s starting to feel weird now!

Beyond Startling

I originally posted, in jest, that it would take me a whole week to recover from the fiasco of the fire department helping me in the parking lot.

Well, turns out that is true! I had no idea that would happen! The fact that it is, is beyond startling! This morning, well, this afternoon, when I got up; I looked at my Mom coming out of my room after putting laundry on just after I had a awakened and my eyes were wide and then they started to sting. I didn’t trust that sting but I started saying, “This MS – I could really feel the sting, so I just mouthed the words, “Is kicking my butt!”

Because it really is now! I can’t get over the fact that it really IS kicking my butt! That fact makes me a little bit afraid because I saw myself still working and driving and throwing my manual chair in the trunk of my car when I was 65. All of that was not a thing when I was 35.

I never imagined this in 1 million years!!! #MSsucks!!! 😒😒😒…

50° of “Miserable!”

so, my Mom has been messing with the thermostat as of late because she tells me that it is 50°. I let her know that 50° is NOT warm! I looked at the forecast for today and into the evening, and it was rain all night! I looked at that and told my Mom, “Yeah, it’s 50° of miserable!

The weather can always be a horrible thing for me, but now that it is the ‘change of season,’ that is also horrible for me as well!!! Not to mention that I am still recovering! I am thinking that I am just this sick now. Today wasn’t much different waking up this morning. I hope tomorrow is better but today wasn’t.

I was reminded of me living in our first apartment with my Mom messing with the thermostat. Once I moved into our apartment and turned the heat on when it got cold, our apartment was a balmy 72°! I lived in an apartment building that had four units so the heat was divided between our four units.

My Mom laughed when my heat was set at 72° and once I got billed for it, I changed it to 70°. And then the second bill came and I said out loud to really myself, “69° and wear a sweater!!!”

Now, I am 24 years in of having MS and staring at a quarter of a century in 10 months; I have to have my heat set at 72° because I can’t keep my body temperature at a good place anymore.

It’s not springtime yet for me and I’m not leaving the house until March 19. That day, I will decide if I will change my chapstick because I’m still cold and I have two new Vanilla Bean chapstick tubes because 50° is really miserable for me!!!