“Delicate”

I awoke this morning and my hips felt a little bit, “delicate.” As I sat up in bed from ‘zero gravity’ because that’s how I sleep; the sounds that I was making were FAR from, ‘delicate.’

I spent the morning kind of reclining in my chair. My Mom seemed more concerned about it than me but I reminded her that I don’t move at all and I have osteoporosis in my right hip. I go for another bone density scan in January of 2026.

I messaged the pain clinic doctor about my x-ray. I had gotten that x-ray when we went to the cider mill. I had forgotten about it and I couldn’t fully understand the findings.

Another doctor confirmed what I thought it said. I have osteoarthritis in my right knee now. Yeah. I just need to sit with that for a little bit…

Aware

When I awakened in the morning, as soon as I opened my eyes, I am very aware of my hips as of late! But when I awaken, I have to sit up in my bed.

That ‘awareness’ becomes pain as soon as I’m starting to sit up in my bed. I moaned and grunted with the best of them this morning as well as I did yesterday morning.

I said the other day that my hips were ‘delicate,’ but I think we’ve gone from ‘delicate’ to ‘fragile!’ I don’t go for another bone density scan until January 2026. But I don’t move at all anymore. I have read so much that bones don’t like NOT moving but that’s what’s happening with me.

Wednesday night, it rained all throughout the night, and the only reason I know that is because I could not sleep at all because my knee was throbbing!!! This was the first time that I experienced pain at this level regarding my knee!!!

I tore my right ACL playing a basketball game my senior year and had surgery in the beginning of January 2000. My meniscus was torn in my right knee on October 21st 2016 at work. I think it was a combination of both those injuries and subsequent surgeries that made it hurt so badly!!!

All I could think of was the drumbeats in Jumanji, but this was just a slow throb! I usually drift off to sleep with the daily Bible reading or a rosary. Wednesday night, I listened to the daily Bible in his entirety. And then I listened to the previous week’s Homily again its entirety. Sleep was not coming at all so I thought to play Rosaries on my phone. I didn’t fall asleep till after I had said five!!!

This is so much now!!!

Terrible Reminder

I will never forget that I woke up on October 28, 2023 with both of my hips burning!!! I was diagnosed with osteoporosis in my right hip the following January. I have been on supplements for my bones since I was diagnosed. My hip is slowly feeling better. That is until yesterday!!!

Well, I woke up on November 23, 2024 with my right hip killing me!!! I already knew that I had osteoporosis and this hip but this was the first time I FELT it!!!

I will never have surgery on my hip because my body cannot handle that. But man, that was so incredibly rough!!! I know that I am going to have days like that again, but I was shocked that it hurt so badly!!! But that probably WON’T be the last time! Unfortunately!

All I could do when my Mom and I were working together was cry! Tears were just screaming down my face, and my Mom could not understand why I was crying, and I just looked at her and reminded her, “I have osteoporosis!” This pain was a TERRIBLE REMINDER and I hope it does not come back anytime soon!!! #MSsucks!!! 😒😒😒…

“Lasagna Fatty”

Sean came by today and my Mom shared some food she got from my aunt and uncle. He ate some stuffed cabbage and some sauerkraut as well. My Mom told him that she thought it best to share Polish food with a Polish person!

My Mom also told him that Leia got the last two pieces of lasagna that he bought last week for us. He did come over twice and was able to get two big pieces which was about half the lasagna.

Sean sat on my couch and called Leia, who was getting all in his face, “Get back lasagna fatty!!!” Well, she is! Lasagna is the ONLY thing I can eat now! I normally have a combination of my overnight oats, or eggs, or stovetop stuffing, and crackers. I will just have to wait until December to eat more and I hope she doesn’t get it then!!!

“Open.”

This morning, well this afternoon, I was out of my bed, and I had already drank my nutrition shake. I was squeezing my therapy putty as I do every morning as I was listening to a rosary.

Then, I had a thought. An 18-year-old thought and then from before that. The first thought I had was more than 18 years ago. Thanksgiving at our house. I am remembering my Dad carving the turkey.

My Parents tag-teamed making the turkey every year. I have never had a bad turkey! One of us kids, usually one of ‘the three little ones,’ would sit next to my Dad as he was taking the turkey off the bone. He would sit there methodically working in silence except for one word. He would stop for a moment and say, “Open” and one of us kids would open up the big roaster my Mom had to keep the 12 to 15 pounds of turkey meat in.

We would open the lid and my Dad would put hot, freshly cut hot turkey in it. We always were able to sneak a piece every time before he told us to close it! It was only when we took too much that my Dad would say, “Hey, now” or something like that.

I was thinking fondly of that, as I was squeezing my therapy putty And then I thought of my first Thanksgiving without my Dad. I remember that I was at my Mom’s house and Sean was not with me because he was with his dad because it was too sad for me!

I think it was just my oldest brother and his girlfriend at the time, my Mom, and me. I remember when it was almost time for dinner that my older brother was sitting in my Dad’s seat, kind of with a pained look at his face.

I didn’t understand why he was making that face until he took the knife and the sharpener and clicked them above his head just like my Dad did every single Thanksgiving of my life!

I remember that I started to bawl just like I did this morning and the 18 year old memory. I can still hear my Dad say, “Open.”

Low-Key

My Thanksgiving this year was low-key. I think holidays from here on out are going to be low-key for me. I had some cheesy potatoes and a soft dinner roll. I just added that to my normal dinner.

My Mom found another Netflix movie that we watched tonight, and I loved it! It was a sequel to A California Christmas. It’s called: A California Christmas: City Lights.

After we saw that one, we said that we completed a review and said that we loved it and hope for a third installation!!!

“24 Karat”

it’s starting to feel real now. In 26 days, I will have had MS for 24 years. I am reminded of my first year teaching. It was in my first year when I turned 24.

I was still a kid back then and birthdays have always been so Important to me! I had a countdown to my birthday written on the board in the front of my room!

I told my kids that I am going to be, “24 karat” with a smile! Birthdays are a big deal for me but I really don’t celebrate them very much. I mean I don’t need presents or anything! But I was thinking about that memory today but I don’t think I’m going to be smiling on December 28 and I won’t say that I’m “24 karat.”

I remember when Sean turned 17 and I played for him ABBA as he got ready for school. I was already not working. then, but I still was used to getting up super early so I would wake him up from my bed with that song for a month before his birthday.

All of that seems like a lifetime ago. I’m pretty sure that December 28 is going to be like the last 23. I am quiet on that day. I really can’t believe this is my life now…

The Little People

I have been seeing this commercial pretty much before every video I watch on my phone:

I must tell you that I really do NOT dig how clubbing songs are in commercials for Applebee’s and Kroger!!! I am so old, but when I saw this commercial, I thought of The Little People. Sean was really into them until he was about 3 1/2 I think.

I was trying to find the Aaron Neville intro song for The Little People that used to start every DVD I bought Sean. I really like that one. This was 20 years ago so it’s not there but I found this one. This was after Sean’s time but it made me think of the Kroger commercial as well (without the song from the club, by the way)