Category: A Bit Of Randomness

I think that Sean was in fifth or sixth grade when we were ‘back to school’ shopping and I looked at him and told him that back to school is my favorite time of year, and it will be for the rest of my life!!!

I also remember that year that I had him bring his school list and I had a yellow highlighter to highlight everything we got. I remember a man looked at me and said that that was a really good idea! I told that I was a teacher. I also told him that I usually get two of everything because in January, he’s going to need new supplies!

I remember feeling so helpful back then in this instance. Let’s fast forward to now where I am homebound and stopped working eight years ago. When I woke today, I was cleaning out my emails and I saw a back-to-school Target email. I have seen Kohl’s back to school and a bunch of others. I just delete them. That part is sad but teaching is not part of my life anymore. My certificate expired a few years back anyway.

So, this afternoon, when I was deleting my emails, Back to School shopping was just a passing thought. I remembered that used to love it but the things are different now! I seriously used to think about throwing my manual wheelchair in the trunk of my car before getting into the disabled parking spot at my work when I was 65! It’s crazy that I had to stop at 35 because #MSsucks!!! 😒😒😒 Things are so different for me now…

Today was the first day that I used my -7.5 contacts. I had been in -7 for the past three years. At my last appointment, I couldn’t see ANYTHING so he raised my prescription. I used up my -7.0 contacts and today I git my -7.5.

I could definitely see a lot clearer as soon as I put them in! However, watching mass today was a little bit tricky. Oh yeah, I do that now because I’m homebound. But I couldn’t see mass as clearly but I think because it was raining on and off today. This weather is terrible! Still!!!

I still hear that doctor all the time telling me that I will go blind before I die but to go up a half step every few years It’s OK by me I guess. My Mom says that she knows of people who have -10 contacts. I got a little ways to go I guess…

Today was ‘go time,’ but it was different. I was not leaving the house at all but my chair did so that’s why we needed the van rental. My Mom took my chair out to Troy today and it’s probably going to take three weeks to order the part. it’s very helpful that my Mom records technicians when they are explaining so I can hear them in the recording when she gets back home. I understood what he was talking about as well.

She picked up my ibuprofen prescription from Meijer and she is at Zerbo’s getting supplements. My orders start coming in tomorrow. Amazon is going to be in two deliveries as well as Target. I seriously NEVER thought that my life would be like this in 1 million years!!! But it is! ‘Startling’ is STILL the word I prefer to use.

I pillaged today and it still took four rosaries. I think I’m just getting slower and the fact that I have more pills to distribute adds to the length I think. I have been breathing easier the past few days and I thought Fall was coming, but then today happened. And this 85° is insane!!! But I received a package probably in the beginning of July before I was unable to function. I asked two people who I thought sent it but they said that they didn’t, but wish they did.

My Mom took a picture of me right when we received it. So message me so I can thank you properly!:

I am still drinking the cinnamon-y mouthful of dirt every morning and I have just added the silver to my morning Yeti of water. Tomorrow. We are slated to start yet another preventative. At least that’s what we’re saying right now. Maybe it won’t happen tomorrow because I’m tired today and this heat is insane!!! I can’t believe this?! STILL?!!!!

Well, it looks like we need to do that third preventative for my urinary tract health. I just got the lab work back today. But I am most startled by the heat right now. STILL?! It hot as hell!!! I say that only because in the heat, my body cannot function at all!!! I sat here at 92° and did not move. Even though I am sitting in air-conditioning, my body can feel the heat outside because I need new windows. I drank my lunch. I really don’t think that I can afford to drink my lunch, but it was too hot so I cannot force myself to eat food.

I have NOT left my house for all of August! I had a virtual appointment with my neurologist on the 9th and I forwent my haircut/eyebrow wax to get my chair assessed. I did receive the bill from NSM and the actuator and pelvis stabilizer replacements should be in sometime next month. I will have to coordinate the van rentals. Maybe we can do it on one of the days we’re already getting the van. For September, I am getting a haircut, going to the dentist to get our teeth cleaned, and going to the pain clinic regarding my knee.

Then, I have a Visual Field Test on October 1. It’s been a while since I have had a Visual Field Test. And now, my Mom will accompany me to my appointment. My insurance changed while I was working so I had to leave my normal eye doctor and I went to a different place in Lincoln Park. I had two Visual Field Tests there, but I did not see the results. The doctor did not show me the paper like Dr. Skarf did. I was not notified when I was diagnosed with abatis in BOTH of my eyes.

I remember when I saw Dr. Skarf for the first time. It was at Henry Ford Fairlane and I was about five months pregnant at the time. It was the first time that I put my face into this ‘dog cone’ dome thing and I had a little clicker in my hand. (each test I have had, they always hand me the clicker to my right hand, and then I move it to my left and tell them that I am left-handed) I was told that each time I saw a light blink, I should press the clicker.

I remember that Dr. Skarf showed me my results. It was a picture of two circles that were my eyeballs. On the right eye, like a crescent on the outside of it and it was just a little bit gray. I asked him about that, and I was diagnosed with the optic neuritis in my right eye that day. He told me that I am ‘super pregnant’ and there is nothing he can do for me. He told me to come back after I had the baby and he will help me. He also told me that I shouldn’t be really concerned because he has seen people with full black parts in both eyes.

I’ve been thinking about my impending Visual Field Test (with Dr. Bansal because Dr. Skarf has retired) in this miserable heat! My vision gets a little wonky in the heat, but I do wonder what my eyeballs will look like!?! I have already told my Mom the story about what my eyes looked like the only time I saw it. I am concerned about black spots in both of my eyes mostly my right eye! It’s been 23 years?!

I am back to my original eye doctor through Henry Ford now that I have HAP Senior Plus insurance because I have been disabled for so long. Which is a little bit crazy because I am only 42 but being on HAP Senior Plus pays 100% for my cleanings and x-rays, which is the extent of my dental work! That’s a first!