Category: A Bit Of Randomness

This category is full of randomness that really doesn’t fit nicely into any of the categories having to do with my road to walking.

10 Pounds

I was thinking about my eye doctor appointment yesterday and it is going to take me a few more days to process, but thinking about the last time I got weighed. It was in June when I saw my PCP. That was the appointment where she told me that my weight is of no concern. Well, that’s the first time I heard that in my lifetime!

I thought of this song because based on my last weight and given my current weight, this song popped into my head because I lost ‘10 pounds’ without doing anything. But I don’t think I am in danger because I’ve been on nutrition shakes for over a year. I just thought of this song and I love her:

I think it is strange that now I am completely in the realm of the infirmed… 😒😒😒…

Every Three Years?

So, I have been thinking. It was so earth shattering to see nothing in that phoropter. I am going to search through my past love posts, but I’m pretty sure that in ‘21 my optometrist moved me to an eight.

After a day, that was too much and I went back down to a seven. The past two years have been fine with my seven contacts and I could see just fine. Well, my one letter in my right eye, and three letters in my left eye.I’m thinking it’s going to be every three years I need new contacts. My mom told me that someone she knows wears a -10.

I guess there really isn’t a way for me to gauge it with disease, progression and stuff but I’m not blind… yet… I still hear that doctor in my head, and I have been for the past 23 years but now it’s an issue.. 😒😒😒

Parachute

Because it is August now, I was listening to my Train Apple Music playlist, and I heard this song:

I have a very vivid memory of driving to work, and I was listening to this album for the first time, and this song came on just as I was making that very weird Isosceles triangle type turn off of Dix and onto Goldsmith to go to work.

This album came out in 2009 and I think I was still in our 2nd apartment so I thought I had a social life ahead of me. Well, that didn’t happen, but I love this song!!!

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Tough

Yesterday, I felt awful! It wasn’t even hot, but the rain was terrible! I told my Mom that it was ‘tough,’ because it totally was!

I was really trying to figure out how much longer I would have to handle this, but today, I think I got a glimmer of hope because when it was time for me to have my lunch, it was only 79° so I forced myself to eat food. What I eat now is completely easy to chew. But in the heat, it’s so hard to do that!

I told my Mom that when it is in the 80s, I will drink my lunch, but anything lower than that, I will eat food. It’s going to be a little chilly tonight so now we have gotten into the realm of heat at night and air in the day until it’s all heat all the time.

#MyGirlL: Hold Up, Wait a Minute!

My Mom told me a story about her walk with Leia today. My Mom walks the same route all the time, but she said that today, she walked a little further and Leia was able to see her reflection for the first time!:

My mom told me that Leia just sat down and stared at herself for a while. I laughed! I told my Mom that she looked at herself and thought, “Hold up, wait a minute!”

Are You Depressed?

I forced myself to eat lunch today as well as yesterday because I am running low on nutrition shakes, and a new box just arrived today. I had to wake up early because I had a virtual neurology appointment today.

My appointment lasted about a half hour, and my Mom held my phone so I could show my Neurologist my arm movement and she wanted to look at my eyes as I looked sideways and up and down. She asked my Mom about my transfers, if they are any different than they were last year and my Mom said they are not.

After I showed her my eyes, she had me hug myself and waive my hands over my head. My Mom told me that I did all of the movements before she asked me and I told her that I have been doing these movements for 23 years!

Toward the end of my appointment, she asked me a question. It was the first time she had asked me it in 23 years. She asked me if I was depressed. I thought for a moment and looked at her, and sort of smiled weakly and told her, “No.”

After I had ended the phone call for my appointment, I looked at my Mom and told her that Dr. Cerghet has NEVER asked me that and I’m a little bit startled. I told her that, this IS depressing! 100%!!! But I am SO grateful that I am NOT depressed, I do get down a little bit, but my Mom told me that it doesn’t last that long. It’s nothing concerning.

Rando Tune #51

I often will watch videos on YouTube about songs. I watched the Miss Mojo video on covers that ended up being more popular than the original! Of course, Hurt was on there and I’ve talked about that tons but I saw this one. And man…

I had to put this one on here! This was my jam! This is singing at the top of my lungs in the back of the bus and Washington DC in eighth grade! I remember that Ms. Duffin and Mr. Rashid were NOT happy about it because it was late so I had to stop. I listened to the entire song, and I no longer can sing along with it, but I loved it!!!

Oh, I’m BEYOND Ready!!!

I received this email today:

Screenshot

I so much appreciated getting this email because this heat is killing me! It has been killing me since the very beginning of June! I’m really not sure how much longer I can handle this.

I still have what I think is two more days in my ‘bag-o-chapstick’ of my cucumber mint before I will have gone through all four tubes of my spring/summer flavors!

A few days ago, I got a boost, where I just felt great where I almost wanted to look at my Mom and say let’s watch a movie, but then I went back to the mode I am in. This consistent 80° is killing me. I did not know that it would kill me to the extent that it is! But this is terrible!!! So, of course, oh, I am BEYOND ready for some fall flavors of chapstick! My box is all set as soon as I finish my Cucumber Mint!!!

Maybe pictures will follow when the weather gets better…?

This is MORE Difficult Now.

I got this meme from a fellow MS warrior four years ago. For me, it’s NOT antisocial it’s infirmed.

My life pretty much stayed the same. Well, I guess that’s when it changed. It started in 2021 but we did not read it until January 2023. In January 2023. because I have been disabled for so long, my insurance changed to HAP senior plus.

The last time we went to get our teeth cleaned last February, because my Mom goes with me now instead of Sean, there was no charge for cleanings and x-rays. That is the extent of my dental care! I do have a cap on the left side of my mouth because in high school, I opened a water bottle with my teeth but that is the only thing going on with my mouth.

I really can’t believe my life is like this now, but it is. I just go to the doctor, get my teeth cleaned, and get haircuts. At least I know what is expected of me 23 years into this horrible disease… this is more difficult now!!! #MSsucks… 😒😒😒…