Category: A Bit Of Randomness

This category is full of randomness that really doesn’t fit nicely into any of the categories having to do with my road to walking.

#MyGirlL: My 2nd SALTS

I was going to write about this yesterday, but I wasn’t feeling well enough to really think about it but today, as my Mom was walking into my room, I smiled broadly just thinking about it so now, I have to tell you!

This all happened on Friday but Friday was a really rough day for me, but just before I was given dinner, my Mom let Leia out and it was raining so she put her raincoat on. But, then my Mom commented on the fact that her raincoat was not properly a fixed to her and it slipped off of her shoulders!

My Mom opened the door to retrieve the raincoat just as Leia did her business and was coming back in because she does NOT like getting wet! On Friday, I smiled to myself a bit as my Mom told me about Leia’s raincoat falling off of her and her, not wanting to get wet.

I was thinking about that today is my Mom came to get me out of bed and that’s why I was smiling broadly! I do not have a daughter, so it’s fun to spoil her with silly outfits, but she seems to like them now!

Good Thing

I am sitting in my living room with a winter hat on! Seriously?! In May?! But check this out:


It’s a really good thing that I had to abandon using my spring flavored chapstick because this is straight up winter temperatures! I will see about spring time flavors on the 17th to get my eyebrows waxed, haircut, and see my naturopath.

An Influence

I was talking to Sean a few days ago and I am not sure if this is a good thing or a bad thing, but I think that I am an influence on Sean. I’m talking about being a musical influence.

Sean and I have commented on the same song when we see a movie and we listen to a lot of the same music as he was growing up because I was actually growing up as well!

I had told him that my Mom and I watched Never Been Kissed a few days ago and he commented on a song that I was going to put in my blog post I wrote about it, but I decided to go with “Cutting Crew” instead. Here is the song he was talking about:

He told me that was the first time that he heard Madonna and said this was a banger but neither of us had experiences like that in high school.

He has already told me, almost apologetically, that he is NOT into U2! I told him that it’s NOT for everyone but I love them!

My Mom and I seem to be watching older movies these days because it’s easier on my eyes! HD is too much for them and I’m not sure what I am going to do because I use soft lightbulbs in my house, because the LED are too hard for me, they hurt my eyes but the LED is more cost efficient but my eyes can’t handle them but I read that LED it’s going to be the only thing available soon…

Complicated Dance

I have been using an electric toothbrush since October 2021. I think it was not even a year after I started using it that the motor started to wear out:


By the time that happened, I could no longer use my manual toothbrush to brush my teeth. So, my brother bought me a new toothbrush! Now, I have figured out that I just glide my hand along my teeth, so the toothbrush stays lit up ‘Green’ the entire time.

I feel that I know how to brush my teeth now! But, there is a new development. Because your ears, your nose, and your throat, are all connected, I usually only get my top teeth brushed before I have to, either, blow my nose, or itch my ears!

I must tell you that blowing your nose with your top teeth, having just been brushed, but not yet fully rinsed off and flossed feels extremely weird! When I grab a Q-tip to address my itchy ears, that’s not comfortable either with toothpaste film in my mouth and before I have even flossed my teeth!

This all started to happen this year and I’m still trying to figure out what to do because I am not the one putting toothpaste on my toothbrush anymore. I don’t have that much control of my hands. So, it is sort of a complicated dance for my Mom to put toothpaste on my toothbrush, while I am either blowing my nose or using a Q-tip in my ears and she just waits.

We had the complicated dance this afternoon and I’m sure we will again this evening because we spoke to the woman who fit me for my wheelchair, and she told me that as the disease progresses, I become more sensitive to every stimulation!

Dave, has already come to my house, and he has a different seat for my new wheelchair. It’s a combination of foam and padding. I’m still working on that one in terms of a new wheelchair. There is so much red tape!!! it’s all a bit frustrating!!!

A Double Feature

I was talking with my Mom a few days ago and I don’t know how we started talking about this movie but I haven’t seen it since I was a child so I told her that we should watch it and so we did:

We actually rented it on Xfinity so we watched it twice because we had it for a 48 hour rental and then last night I told my Mom we should have a trilogy so we watched this one today:

I am really liking seeing the movies that I saw as a child as an adult and it’s quiet, illuminating! I have seen Pollyanna so many times because that’s my Mom’s favorite movie but I haven’t really watched it until today! All I remembered, was the really big pieces of cake. I hope tomorrow to complete our trilogy with Parent Trap, but if not, at least I had a double feature from yesterday and today.

I Can’t Even TOUCH 4:30!

Right now, my phone is saying that it’s 521 in the morning. I have not fallen to sleep from last night yet. My insomnia hasn’t been this bad yet and I am a bit concerned.

I was able to schedule an appointment with my PCP. They just squeezed me in to get her to write me a script for a new power chair and while I am there, I will get bloodwork done and a weight. I will discuss with her my lack of sleep, and the fact that when my Mom gets me out of bed, I lose my breath as I sit up and that’s a little scary too.

I was talking to Sean tonight and he told me that he was talking with his coworker about waking up. He told me that he is an ‘early bird’ now, and he told me that he consistently wakes up at six in the morning for work every day. He then told me that he told his coworker, “My mom used to wake up at 4:30! I can’t even touch 4:30!”

That kind of embarrassed me and I told him, “I just needed more time in the morning to get up ready, and I had to do what I had to do in order to be to work on time.” Thinking about it now I think that it really was insane! I woke up so early because I needed more time to be able to function for the day.

I was just thinking about the fact that probably for the last five or six years that I was teaching, maybe longer, I worked in chronically ill clothes. There is a reason that I wear sweats because my body is so sensitive to any other materials. I wore chucks to school from my first day teaching, and probably in about 2012, I had to change from chucks to shell toes because I needed more support for my feet.

I am hearing birds chirping now, but I think I should try to get some sleep now.

My Interrupted Trilogy

I did not watch my third Haley Mills movie yesterday but I finished my interrupted trilogy today. I watched The Parent Trap:

I really liked watching these three non-consecutive movies that I saw when I was a child, but seeing the message adult is something different! I wonder what we’ll watch next…