Paradigm Shift OR Serious OR 198 Pounds

Wednesday and Thursday were pretty rough days for me! It wasn’t until about 5 o’clock this morning before I had even fallen asleep from last night that I realized what’s going on. It is a complete and seismic paradigm shift!!!

This was definitely a paradigm shift that I was not fully prepared for but it’s here now and I just have to deal. I have a feeling this will be a lengthily blog post as I am currently trying to work this out in my head in real time!

I think that I just need to start out by saying that I have been weight conscious my entire life. it was at about five this morning that I realized this seismic paradigm shift it’s a lot to handle! I will say that there was a reason that my brother nicknamed me, “Chubb Rock City” when I was young.

That’s pretty much been me for my entire life! I started thinking about origins and I think ever since we moved out of my Parents’ house in 2005, when I was in charge of the groceries, I started low carbing it and I started off with the South Beach diet because that was more green than the Atkins diet and not as meaty!!!

I was told when we were living in our second apartment that I had nothing but, ”Rabbit food” in my refrigerator. I didn’t dispute it and I just shut the refrigerator door. I was the one buying the groceries and vegetables were very good for Sean when he was that young.

In 2010, I received my masters degree and became the reading specialist for my school. As I was working out my schedule with administration, we mutually agreed upon me having a working lunch to properly run both of my reading programs.

Enter the Atkins shakes. Specifically, Dark Chocolate Royale. I have been drinking Atkins shakes since 2010. Back then, it was in place of my lunch. There have always been Atkins shakes in my refrigerator for the entire time I have lived in my current home.

Now, things are starting to get serious. But it’s not like they haven’t been serious for 22 years because they definitely have been!!! I have dealt with so many losses in the past 22 years and they range so vastly! Not being able to walk for as long as I haven’t been able to has been quite difficult and the recent loss of my singing abilities it’s a blow to my soul!

But now my symptoms are so serious!!! I think I can track my new symptoms back to June 2019? That’s when one of the trifecta that I am currently dealing with begin to show its ugly head. NO! It started back when I was pregnant!

The current trifecta of symptoms I am dealing with are: my loss of vision, my difficulty with speech, and my inability to chew food. Those three things are kind of really weighing heavy on me right now and let me explain:

I was diagnosed with optic neuritis in my third trimester of pregnancy and I would say it was back in June 2019 when I told my Mom that eating is no longer easy or enjoyable. In October 2021, during my swallow test, my current speech pathologist asked me if I was losing weight without trying to. I did not take her question seriously and I answered flippantly, “There’s always weight to be lost!” But I did seriously answer her that I used to wear an extra large sweatshirt but now I wear a size medium.

I didn’t seriously think about this back when she asked me this because I’ve always been chubby. There’s always weight to be lost! but I think it’s serious now.

I met with Sarah my nutritionist virtually on Wednesday. When I get the cyst on my back looked at, she asked me to get a weight. She also wants to change my morning Atkins shake to a different nutrition shake. I am currently eating overnight oats for both lunch and dinner with protein, Chia seeds, peanut butter, and maple syrup.

I was told that chewing would eventually become difficult so I knew it was going to come but I didn’t expect it to be here now! That fact coupled with the fact that my vision is dimming so noticeably now and the fact that speaking is so difficult, it’s all taking it’s toll on me!

I am lucky that the new nutrition shakes she wants me to take are available both on Amazon and at Target. It’s good that I already place monthly orders for my medical needs on both of those sites.

Because I am a scheduler, I Will order one box of 12 shakes on Amazon when I get paid and I’ve figured out that I will just drink Atkins shakes until they are all gone and then I will start the Orgain Nutrition Shakes. And lastly, I have vowed that I would never tell anyone how much weight I gained when I was pregnant because I tipped the scales until I lost it all. Again, with this seismic paradigm shift, that all seems moot now.

At my last OB appointment before I had Sean probably about four or five days later, I weighed 198 pounds.

More Tears

After I have wrote my last blog post, I decided to listen to my Gavin DeGraw playlist because that reminds me of our apartment and Barwis. I think that I have been absent mindedly playing the 3D Tile match game, solitaire, and putzing around on Twitter and Facebook. I think I have been playing it for at least 2 1/2 hours and I have not heard this song so, I decided to watch it on YouTube!:

More tears accompanied the memories of Barwis and all that I am dealing with right now…

“Sun’s Coming Up Down on Main Street”

Yesterday was a most emotionally exhausting day! I had difficulty falling to sleep and I tried praying and sleep was still escaping me. I looked at the windows to my left and could see the sky lightening up and I said a verse in my head from a song that I could not place, “Sun’s coming up down on Main Street.”

I almost pulled my phone off of the charging dock but I knew that would keep me awake and I desperately wanted to sleep. I kept my eyes closed as I racked my brain and pretty much saying the entire song. I realized last night that it was the Dixie chicks! I knew it was some kind of dramatic high school song! I thought it was a show tune but I was wrong. This is this song that popped up in my head when the sun started coming up:

Grandmother Willow

I guess since it is a holiday today, MLK day, I will continue reeling trying to figure out what’s going on with my nutrition! I get faint and this is all a big thing! I think of grandmother willow, “…so serious!”:

I have often thought about GrandmotherWillow saying this because I saw Pocahontas so many times when I had chickenpox and my Dad was home from work because he was sick as well.

I love the story about him hiding the movie because I would watch it three times a day. He was in the bathroom and I could not find the movie to watch it after my morning game shows. I asked him through the door and he’s just sad, “Oh, I don’t know!” I looked through the papers by his chair and I found it. I called out, “I found it!… by your papers!” and then I started watching it for the day.

I am only beginning to try to figure all of this stuff out for my disease progression. I really don’t know how to put it into words how I am feeling but this is insane!!!

A Necessary Evil

Parts of both of my Amazon and Target orders arrived today. My new nutrition shakes are chilling in the refrigerator right now for consumption tomorrow with my vitamins.

Today, I had an epiphany, a realization that floored me! I have always said in all of my MS support groups to tell newly diagnosed people that carbs and sugar are not your friends!!! Because they definitely are not and have not been for me!

But now, 22 years in to this beast, I am slowly discovering that both carbs and sugar are a necessary evil for me to exist. In talking with my nutritionist, it’s necessary for me to have more calories now. It feels so strange!!!

I am grateful that my new shakes arrived today and they’re in the fridge for me to try one tomorrow. A friend told me that they think it will taste a lot better and I agreed with them because they have 29 carbs! I have to change my way of thinking about all of this. Both carbs and sugar are going to be necessary evils for my existence now…

I’m Okay with it!

The new nutrition shakes arrived yesterday to my house and my Mom put them in the fridge to get cold. When I awoke today, I had one with my vitamins. I must say that I am NOT a fan! But I want to follow up quickly by saying that I am okay with it!

I am understanding that at this point for me, nutrition is at a caloric level. I need the calories to have the energy and after drinking the nutrition shake today and getting our routine done, I am tired but I am NOT exhausted!

That’s the reason why I am okay with the nutrition shake NOT tasting good. Just because I am not a fan of it does NOT mean that I will NOT drink it because I definitely will be doing that for the next 35 days! I will order the vanilla shakes from Target when I get paid next month and those shakes will be 5% off from what I paid this month. So I guess that it is a ‘win-win’?!

Sweeter

Today, when I drank my new nutrition shake for breakfast, to my surprise, it was a little bit sweeter. So much so that I am confident that I will be able to drink this for the next 34 days without a problem.

Since I met with my nutritionist on the 11th of this month, aside from watching High School Musical 3 (because we had to finish the trilogy!) I have just been listening to my Gavin DeGraw playlist because my new nutrition needs are a lot to deal with! Listening to Gavin DeGraw reminds me of our apartments and when I was really starting to grow up and I had a three-year-old child with me and I was a little more able-bodied back then. I was still driving:

Of course, I thought (and have heard this one a number of times) of this song:

“Paste from a Tube”

I’m still not okay with what I am eating now. But this is the way it will be from here on out. I haven’t watched any TV yet because on Wednesday I will talk to my Speech Pathologist so maybe I will get a little more put into perspective regarding all of this disease progression.

I think of that movie Zathura when Dex Shepard was explaining to his younger self that he ate ‘paste from a tube for the past 15 years.’ That’s pretty much what I am eating now but I am not complaining! I think the new nutrition shake is give me a little bit more energy! This is so much to think about!!!:

*Gasp*

I think it was close to 2 o’clock in the morning this morning when I saw this picture in my phone. I was clearing out text messages and I saw this one from my cousin from Texas and when I opened it up, I had to *Gasp*!!!

This is my great aunt, Olga and great uncle, Rey. She was my grandpa‘s sister and this was my grandma‘s funeral. Both of them are passed now which makes this picture is in sweeter!