Yesterday, I was absent mindedly scrolling through Facebook and I came across this post and I loved it and shared it. This is the post that I shared:
I was certainly surprised to see a picture of myself on Facebook. I need to explain this picture after over 100 people have reacted to my repost of the original post. I gave an interview to Momentum in September 2016, I think.
A woman called me and interviewed me and we talked about my diagnosis and I was still teaching at the time. I was also working out at Barwis Methods then and that is where this picture was taken. Sean and my Mom were with me for that photo shoot. After the shoot, a woman told me that these images will be owned by the NMSS (The National Multiple Sclerosis Society) for use in the future. Well, this is the future I guess!
Yep, ANOTHER bag of chapstick! Even though I am sitting in my house wearing a winter hat, I have made the executive decision that once this chapstick is finished, I will change to Pomegranate chapstick. I was going to wait until I got my haircut for this month but I got really uncomfortably warm for a while so I took my hat off. But then I got cold again so now I have my hat on but I think it’s totally acceptable to change chapsticks. Even overdue because it’s NOT winter time anymore!
I had written on Saturday that my Mom and I went to get an adjustable bed for me but I was too tired to write about it. I think I will try to do that today. We went to Ashley HomeStore:
As you can see, we rented an accessible van for me to go there in my power chair. The man who helped us was named KJ. He explained all of the Features of the bed and my Mom got on first as he was explaining it to us.
Then, it was my turn to get on the bed. It wasn’t until the end of our visit there that my Mom asked KJ what he thought about us moving around because she noticed that he was watching us. He told us that he was humbled and that he would never complain about anything ever because he watched us work together and he saw my Mom‘s strength and commented on that.
it was about halfway through our visit where I had to take my glasses off and put my sunglasses on because the fluorescent lights in the show room or too bright for me. I had to wear my sunglasses in Best Buy as well so I guess I need to get prescription sunglasses because it’s difficult to not have my glasses with the prism on the lens Because now it is at a point where my right eyeball pulls outward trying to focus. Needless to say, it does not feel good!!!
I was seated in my power chair as KJ wrote up everything. I took that time in my chair and thought about my Dad agreeing with my Mom saying that it was going to be expensive and then they needed to help me.
When it was all said and done and we were exiting the store, I was grateful that I was wearing my sunglasses because I was thinking about my Dad and I completely know the answer to Bob Marley‘s question about it being love because I completely know that yes, it is and I have a single bed now. I didn’t wipe away my tears because I didn’t want anyone knowing that I was crying but they were tears of gratitude for my parents. They love me!
I have been sleeping in my wheelchair since March 21. My bed is not coming until Friday so I will keep sleeping in it for another four days. I can handle anything for four days! At least that is what I tell myself because in addition to my ankles hurting because I have been sleeping in my wheelchair, today is the first day I have felt the weather change in my body.
This happens every year and each year it gets progressively worse but today add to that my ankles that hurt super, super badly and that puts me over the edge! It’s just a little too much angst in my body right now! Because I am sleeping in my wheelchair, my feet would be elevated over my head and my feet started to hurt a whole lot so I slept for the past two days with my shoes on. my mom would rest my feet on a pillow on the pedals of my wheelchair but because I’ve been sleeping with my shoes on, I don’t put the pillow there. I think that we will have to rethink our strategy! Put my shoes on top of the pillow?! I don’t know!
it does not help that my body is screaming right now and my ankles hurt so much!
Well, in this rain I am not feeling well at all! My Chapstick is on it’s last leg and I’m OK with that because it’s going to be time to change flavors very shortly. Here’s my Vanilla Bean’s last stand:
I am excited to change flavors because my house has just started to get warmer than the thermostat is set to. So now, it’s time for the spring flavors! I always transition from winter to spring with pomegranate which reminds me of Barwis… I am just pressing my lips onto the Chapstick because if I try to rub it on my lips, that hurts. With a few blots, I can have Chapstick on my lips. It’s so wonderful that I will get a new flavor for Holy Thursday!!!
OKay, Sean took my Mom to get her hair colored and I told them that I would like to buy Sabina’s for all of us. Sean witnessed my Chapstick ‘blotting’ and he commented on my, “Technique.”
I laughed and told him that I HAVE to finish my Chapstick! He told me that that’s a big deal because he doesn’t think that he has ever finished any Chapstick and it’s entirety.
He left and I continued to blot my lips but then it was finished. I couldn’t do it anymore! I heard the alarm both going off on the voice on the speaker saying, “Emergency! Emergency!”
Long story short, I had to switch to my pomegranate Chapstick tonight instead of tomorrow. It’s all about the simple pleasures!!!
My phone is about to die but I heard this song and was immediately transported back to driving my blue Chevy cavalier to my summer time job after high school at 7:11. It’s early in the morning and I am hung over from a graduation party last night! Time to make a coffee! And that’s why I don’t drink coffee! Disgusting!!! Never!!!
Today is Holy Thursday. That is my favorite day of the year! Holy Thursday mass is what I love! I’ve gone since I was a child, not every year but most times. I love everything it stands for and the washing of the feet ceremony makes me cry.
I remember telling a friend/colleague after I saw her at my church that Holy Thursday is my favorite day of the year! Thursdays are my favorite day of the week which stems from second grade and art class but also my ‘Daddy Daughter’ dinner days with my Dad in high school.
I looked at a whole bunch of Holy Thursday Memes to put in my blog post today and I saw the first one and I really liked it but then I saw the second one and I am also going to put this on my post because I have a completed puzzle of the exact same painting! It’s on top of my refrigerator probably full of grease and dust because I have not gotten around to gluing it together yet.
But now, I am going to watch mass with The Virtual Front Pew Who is father Mike on YouTube and I’m pretty sure that I will cry as well.
My bed was delivered yesterday and I slept in it for the first time last night. It’s going to be tricky to get in and out but the sleep was superb! Best sleep everrrr!!!
I am a little bit overwhelmed and I will try to sort my feelings out but trust me that this song was playing in my head!
I watched The Adam Project with Sean and my Mom last month and have not gotten around to writing about it yet. But, like young Adam who runs into Ray when they are both suspended for fighting and he tells him, “I have A LOT Going on.”
That’s one of my favorite scenes and just like Adam, because of recent developments, I too have a lot going on! But my mom takes excellent care of me and I have a doctor’s appointment tomorrow afternoon. Wow there, we can have my blood drawn for all the tests that my last doctor ordered.
I will know more about what is going on with me tomorrow but another development last night was that after three years of being Sean‘s fish, James Pond died! my Mom was kind of really sad about it!
