Month: March 2026

I don’t really understand how this happened but it did. My entire life is really MS. There’s no way around it. Yesterday, I had messaged my internist to request bloodwork and a referral for a specialist and lastly, I wanted my shingles shot. Well, my doctor said we will talk about the vaccine when I see her and she ordered the bloodwork and gave me the referral. I made the appointment yesterday. It’s for June.

I woke up this morning to an email stating that my payment plan for Henry Ford needed to be updated. I called today and did that. I will be paying until June 2027.

I just like that I won’t need to update my payment plan until May because I don’t need to pay extra to see my internist (which I do twice a year). In April, I am getting my teeth cleaned, which is 100% covered.

It’s not until May when I see my neural ophthalmologist. That one’s a specialty doctor! I have those now! I have 15 doctors. That’s a lot. I’m not sure how it makes me feel.

When Sean was s in middle school, I would tell him, “HMS.” And what HMS means is, “I handle my sh*t! I guess that’s what I’m doing now… It just feels different, I think…

It REALLY is exactly the same day. But at least I know what to expect. For example, I messaged my doctor’s nurse last night, and I woke today to answers.

I got the referral to vascular surgery and the bloodwork was ordered. My doctor says that I’m too young for a shingles shot. We will discuss it on the 24th.

I almost forgot to call Erin at Dr. Clark’s office to order my supplements for the month. I did so right after I was done stretching my hands. It was still kind of early.

I was able to watch last week‘s episode of The Pitt while my Mom was bathing Leia. She has been a stinky girl and she still scratching a bit… but she has lost weight since being off the prednisone. We changed her pill pockets to see if that is the culprit for itching. #MyGirlL…

Today, as my Mom was putting on my socks, I told her that I feel like Mumble at the zoo:

I don’t tap dance, but in the beginning, as he is staring downward. That’s kind of how it feels:

I am living the exact same day, day in and day out. I realized that I was homebound in December 2023. 2024 was a bit of a blur but not as terrible as 2025 when I went to the doctor 1 million times?! I still need to write about that!!!

I think that I am somewhat falling into a rhythm. I’ve accepted it. It’s an adjustment. I am messaging Dr. Chamas’ nurse tomorrow night and then on Wednesday, I am calling in my supplements for the month.

I changed Chapstick today. I think I’m still cold so I decided to open a Vanilla Bean until I leave the house in March so I’ll see what it’s like then.

Every day, upon waking, I go through my emails as I’m trying to wake up, I will check Facebook or YouTube sometimes.

This morning, I received two emails congratulating me on my birthday month. They were emails from my credit union and my MS team. So, they aren’t really important things. I did not even realize that it was March?!

After I checked my emails, I checked Facebook to address my notifications and I saw this;

This was the first time I saw this meme and sadly, it can’t be more true for me now! I think I have been telling my Mom for a couple years now that ‘I am no longer a social being.’ I also will tell her that ‘I can’t see past my pain to socialize.’

She doesn’t really get those statements but that’s the way it is. I never imagined it being this way but it is.

It’s just like having a ‘Birthday Month,’ that’s really NOT a thing anymore. Unbeknownst to me, I have entered a different realm. I don’t think I like this very much but it’s happening. I am still trying to wrap my head around getting procedures done. I remember when I would go to the neurologist once a year. I have so many doctors now and I’m going to get another one this month.

All of this is really making my head spin but I have to keep moving…