Month: February 2026

Virtual Endocrinology Appointment

it has for my virtual endocrinology appointment today, I have to have another bone scan. A little bit different than the bone density one but based on that scan, they will see if I need any treatment.

I already can tell you that I will not take treatment from them. I have been treating my Multiple Sclerosis naturally. 25 years in, I am straddled on the line between eastern and western medicine. Eastern medicine is on my left and western is on my right. I am left-handed. At this point, I’m kind of leaning on my left hip because my right hip has osteoporosis.

Mu naturopath constantly tells me to check in with my medical doctors which I regularly do. This year, I’m not going to be able to see him until July because I have appointments with different specialties each month until then.

Today, the endocrinologist told me that I need a different test because it’s a little bit iinconclusive. She told me not to rush it, but the orders are in for it.

so this is how it worked for my virtual endocrinology appointment. Now, she told me that today on February 19. I will have that scan in October. I told Sean about it and he needs to come because it needs to be performed at New Center One and they do not have a hoyer lift team there.

This year, I only had three months available without a doctor appointment. It was June, July, and October because I don’t have appointments in October because we go to the Cider Mill. This year, I am going to have an appointment in October.

Better.

Well, my face feels better. My Mom really rubbed the Egyptian Magic on my face last night and it feels better. It was already looking better last night:

The CeraVe arrived today, but I don’t think I’m going to switch horses now. I also am going to order the Jergen’s Sweet Citrus lotion as suggested by my aunt Liss because she is my Dad’s sister and I feel that my skin is going to be a thing for me now.

It really reminded me of my middle school science project by posting these pictures of my face and I’m glad that it took a village and all of your suggestions helped out!!!

I never thought my skin on my face would be so sensitive as it is now but I think this is going to work!!! Thank you, Mrs. Hutcherson and Natalie!!!

Disease Progression

My hair is cut and my eyebrows are waxed. I have to wake up tomorrow as well because I have a virtual appointment with an endocrinologist to discuss my bone density scan from last month.

I have to leave the house next week as well to see the urologist for a procedure which I think is not going to be comfortable at all! I’m a little bit nervous about that. Based on their findings, I’ll know when I need to see that doctor again. This disease regression is so much!!! I can’t even say too much because it’s happening!!!

“I Do Not Understand!” OR Heavier

So, my face hurts. High School Musical has been playing in my head and reminding me of my teaching days when I showed this video before we started reading The Outsiders.
We were talking about cliques in schools. That was a precursor lesson to discussions about the Greasers and the Socs.

What has been playing in my head is Sharpay saying that she doesn’t understand at the end of the song:

I thought that the Egyptian Magic cream/oil would make my face feel better, but it didn’t. It felt heavier than the coconut oil which felt like toner, but the Egyptian Magic felt like cream, but I think my skin is too sensitive for that now. I ordered CeraVe and it is coming tomorrow so I am wearing the Egyptian miracle tonight as well. Heavier is better. I really don’t understand what’s going on with my face!

My cheeks and my nose are not as red as they were with the coconut oil. I’m actually looking forward to the CeraVe and hopefully I’ll get a little more relief. #ItSucksToSuck!!! #MSsucks!!! 😒😒😒,..

Itchy OR “My Nerves Can’t Handle That?!”

So, last night, my Mon put fractionated coconut oil on my face. She originally bought it for Leia, but sadly, that’s not working out for my poor girl! I will use it for my face instead:

This is what my face looked like this morning:

it seems to be hydrating my skin! It was a little bit itchy upon application last night, though. My face itched a little bit today as well. My Mom read the bottle and said that I can use it, ‘as needed.’

I told her that my nerves can’t handle that because they really can’t!!! My skin is changing along with everything else. I think my smile is another thing:

I look like my brother and my eyebrows are getting waxed tomorrow. #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…

Bonded

I woke up today and my aunt had messaged and suggested a cream for me to use. I opened Facebook and two of my Facebook friends gave me suggestions as well! My brother called my Mom and he told about something also.

My Mom comes to get me out of bed and she asks me if I put my face on Facebook? I told her that I did in my blog post yesterday and I’m surprised so many people read it!!!

I posted it yesterday because my face still hurts. I was hoping someone would have something to say. This disease progression is so terrifying! I think it’s terrifying because it’s going happen and I just have to deal with it.

I never expected my feet to hurt like they do now and I don’t understand what’s going on with my face?! I think after 25 years of having MS, my skin is so sensitive!

This was my face last night and I was awake when my Mom took this picture:

My Mom has coconut oil that she put on Leia which reminds me of the time that Leia had something in her mouth and she was walking to her bed to lay on it. I didn’t know what it was, but I told her to drop it! That’s the command my Mom uses. She dropped it and then laid down in bed. I got my grabber and I picked it up only to find that it was my mouthguard?!!!! How absolutely disgusting?!!!!

I told my Mom after she washed it that we are bonded now, me and Leia. Looks like what we bonded again because of what’s going on with my face.

Just glad that it doesn’t hurt right now. I will order some CareVe with my next order.

Neosporin

I have just figured out that I wrote about sleeping with an eye mask on January 5. My mom has started using Neosporin on my face because it was feeling chapped. It is February 15 and my face is still chapped and my Mom still is putting Neosporin on my face!

My skin has gotten so sensitive now, though. I thought to just put aloe on my face because I didn’t want the medication from the Neosporin.

That burned up like the dickens and I started to cry! My Mom had to wipe it off of my face and then she went back to putting Neosporin on. Am I going to have to use this for the rest of my life?!

Dinner and a Movie

Sean came by today and I texted him probably in the beginning of February when I saw that Dairy Queen is having their red velvet cake blizzard for the month of February! This blizzard has pieces of red velvet cake and cream cheese icing?! I told Sean that I wanted one back then. I did not think there would STILL be snow on the ground, but there is but I had one anyway!!!

It was delicious!!! I told Sean that maybe this should be a Valentine’s staple because I ate it when it’s cold so I can eat it when it’s warmer!!!

We had dinner and we watched a movie. I told Sean that we’re having dinner and a movie today. My Mom and I decided on Pollyanna. Sean told me that everyone quotes that movie! (my brothers and me) As we watched it, he understood where the quotes come from.

My Mom could not understand why he has never seen that movie and I told her that that’s her movie. I watched it when I was a kid. My movies are, Across the Universe, Jesus Christ Superstar, & Ben-Hur. Sean has seen those movies.