I thought to change the title page of my blog to ‘Hangin’ In’ because that’s pretty much what I do now. It pains me to say it, but, I absolutely am spinning my wheels at this point.
I started my blog in November 2013, with disease progression and everything, I can’t even remember how to change it!?! I was going to change the picture that had me in my manual wheelchair back when I was still working:
That’s not me anymore. I am homebound now and I just exist between doctor appointments. I have been saying that a bunch and I’m trying to get used to it. Just like it is easy for me to say, “Eating is no longer easy or enjoyable” now. Here’s the picture I should change it to:
I changed the Bio on my title page on January 10. I took this picture on January 1. My Christmas tree was still up! I tried to smile a little bit, but I think that it’s gone now for the most part.
#ItSucksToSuck!!! #MSsucksAfterTwentyFiveYears!!! 😒😒😒…