I have been thinking about this for a pretty long time. I guess it was always going to be this way, and staring at 25 years of having MS. Okay, it’s starting to happen now.
We watched The Emporer’s Groove not too long ago, and there was a specific reason I wanted to watch it! Aside from being hilarious, this was what I wanted to see:
I remember them doing this when they went to their Secret Lair. I wear goggles like that every night when I sleep now. I started wearing them the night before Thanksgiving. I woke up on Thanksgiving with my eyes NOT dry and uncontrollably itching.
I read an article that talked about ‘leaning in the gray area of MS’ and the woman who wrote the article talked about her eye mask and she said, just like this, “(I kind of love it!)”.
Reading that reminded me of 2003? After I saw an episode of ER at my Parents’ house because that’s where I was living at the time.
There was a young doctor and he had a sister and the sister hooked up with an older doctor. His sister had MS and she had Canadian crutches. That’s what gave me the idea to get mine! I clicked on the hot link in the article and they had it available onAmazon for $80. Wait. What?!
I also remember the wheelchair tech who worked on my chair because I needed something and he told my Mom to get it on Amazon and to not order it from the company! He told her that ordering from the company is too expensive!
I got my goggles on Amazon and they cost me $12.99. (normally $14.99 but as a Prime member, I got two dollars off) They arrived on November 23. it took me a moment. I knew that this was a big deal! I put them on on Wednesday night so I could wake up on Thursday feeling better!
My eyes did not itch or hurt as much! It took a week for it to mold to my face. And once I put it on now, it is completely black. Now it’s comfortable!
My Mom helps me because she keeps it on my nightstand so when I’m in bed, she can give it to me while I am already at zero gravity with my pillow under my head.
I think it took about five days for me to sleep through the night with it on. It does feel a little foreign.
With the change of my contact lenses, Dr. Harris said that I would not need to use re-wetting drops. I STILL use them because my eyes are sick so I NEED them!
I am rolling with all these changes and I don’t like them and it does not feel good at all! I’m scared! Next week we are going to see about my shoes. That’s different now too… #ItSucksToSuck!!! #MSsucks!!! 😒😒😒…