Winced

I went from taking my supplements three times a day to taking it four times a day. But then, my pills were not fitting into the container very well, so I decided to change to a ‘ninja star’ pill box put that ended up not working either after a little bit..

That pill box was pretty short-lived because it only lasted a few months and now I got this one:

I am not going to lie because seeing this made me wince a little bit. Sean came by today to bring up the Christmas tree and I showed him my newest pill box.

I first showed him the three pill day because that’s what my pills used to be. Now, I use that to store my Saturday night vitamins because that’s when I pillage so all of my pill containers need to be empty.

Then, I showed him my newest box. It is so big!!! I told him it looks like a laptop! He kind of chuckled and said that it looks exactly like that! I opened up the lid and he said that it looked so organized. That it does, but I still winced because it’s so big?!!!!

This just feels like a culmination of me getting sicker and sicker… I see my naturopath on December 16th.

“My Lips Taste Good”

Today is the day after Thanksgiving, which means it’s ‘changing of the guard’ for my chapstick. To my dismay, Burt’s Bees has discontinued the flavor, Ginger Spice.

That’s my, “Abuela Chapstick”?!!!! So I thought this would be the last season I will use it so I will just finish it. I was supposed to start something new on December 1, but I won’t this time.

I wanted to see how much Chapstick I had left so I pushed it all out and thought to push it back in, but it won’t go back in so I have a “Bag-o-Chapstick”

That’s all that’s left of my Chapstick that reminds me of my Abuela. I can still see and smell her house! I can hear her chanclas shuffling across the kitchen floor.

I think that house has been gone since I was in middle school. When I put my Chapstick on this morning, I smiled to myself and told my Mom, “My lips taste good” I thought of her and Montgomery Wards and the show Alf with fondness…

Well Worth it

Today was Thanksgiving leftovers for dinner. My dinner consisted of a protein shake, corn casserole, cheesy potatoes, stuffing, and to finish it off, strong with pumpkin pie!

My Mom looked at me and said that I don’t look like I am feeling well. I looked at her kind of exasperated and I said, “Of course! We left the house and I’m still trying to get okay from that and I just ate a bunch of carbs and sugar and NEITHER one of those are my friend!!! But, I ate them anyway!!! They were so good!!!

it was well worth how I am feeling right now! I won’t eat like this again until Christmas.

Enough of a Taste

My Thanksgiving meals are modified now. I can no longer eat turkey and that wasn’t a really big deal for me anyway. Now, sides are made for me and they are delicious!

My Thanksgiving meal first and foremost consists of a nutrition shake because I need the protein before I can enjoy any food. I had cheesy potatoes, sweet potatoes, and stuffing.

MY Mom hasn’t been making her pies for a while, and that was a staple for me for my entire life! Well, turns out that my brother, Ray, has taken up that mantle and I had the MOST delicious piece of pie tonight!!!

I only ate half of what was given to us for my dinner. I have leftovers! That’s what I’ll be eating tomorrow. As I was eating my pie, I told my Mom that, “It feels like I’ve had Thanksgiving dinner!”

I haven’t been able to gorge myself for years as a power chair user. I just got enough of a taste today and I am content most definitely content!

Gorging Myself

I saw this meme on Facebook and it made me laugh so much because this SERIOUSLY was me in 2001:

I was pregnant and was not due until December 27. I was hoping to eat my fill on Thanksgiving and maybe even Christmas as well!

Turns out that God had a different plan because I gave birth to him via emergency C-section on November 2, before Thanksgiving! I didn’t even have Thanksgiving dinner that year because I was at the hospital to see him in NICU. he was there until December 3.

I put him in his portable bassinet under the Christmas tree and whispered in his ear for him to grow! He slept for all but 20 minutes for two weeks when he came home. I had to wake him up to feed him.

I have recently been seeing so many March of Dimes fundraisers on Facebook and they show a picture of a preemie baby with a breathing tube in their nose. Seeing those makes me wince a little bit that was such a painful time and I only now am realizing it. Sean was on oxygen the first 24 hours and they told me that was really good for his eyes. Being on oxygen for multiple days can make them blind.

I can’t eat turkey anymore, but seeing this meme made me laugh and remember my plans of gorging myself on Thanksgiving. That didn’t work out.

I Remember EXACTLY How this Feels!!!

This is not a new random tune, but I heard it today and we talked about this not too long ago:

My Mom had recently watched videos about Linda Ronstadt. She wanted to listen to the mariachi concert she gave.

I declined. I told her that listening to women sing is painful for me! It’s painful because I still remember crystal clearly how that feels to sing!!! I have been missing it so much right now!!!

I think that I am really feeling vulnerable right now! We had a great day today and I did not even cry for my mammogram which that is the first! I will sing praises for Lauren and Tammy my techs! I think I exclaimed in the room five or six times, “I didn’t even cry?!!!!”

We are going to handle my shoe situation on December 9 when I get my teeth cleaned. This disease progression is brutal! I was not ready for it, but I guess I was?! This stinks!!!