My ‘Forever Home’

I got my garage door fixed today. For the first time living in this house, I have a working garage door. It only took 16 years.

But, let me back up a little and ‘splain ya a little bit. I got my settlement earlier this year and it was for a lot less than I thought it would be. I thought about it and talked to God and decided to invest in my ‘Forever Home’ because that’s what this is:

I was able to get my very first washer and dryer that I bought NEW myself! I got the air-conditioning fixed, (I was without central air for nine years and depended on the window air conditioners that my brother bought me and Sean in 2016), and my ducts cleaned.

Because of that huge Wallside sale, I got windows for my house and I was able to get my Mom attic windows as well. She IS my caregiver! I can’t exist comfortably without her!!!

garage door is the last of my improvements for now. I’m out of money for that. My Mom took a video to show the garage door operating and I gasped when I saw it and told that that is the first time I have ever seen a working garage door in my house! I still have 313 payments until I own it, free and clear. Maybe that will be Sean’s job in the future…

Sluggish

So, I had just written about the fact that it’s strange for me to dole out my pills in my oddly-shaped pill box. I just think that I’m going to get the days pills in so it doesn’t matter. That is until today. I’ve have felt sluggish all day long! I did not realize that I did not take my lunch until I took my nighttime vitamins. That’s why I was so sluggish. I will try to NOT do this again!:

And you know that I can’t not hear Bone Thugs-n-Harmony?!:

I’m getting so old!!! 😂😂😂

Sad.

I taught seventh grade English from 2005 to 2010. I think it was 2008 when we had ‘a moment of silence for 9/11 victims. We were doing that my first year teaching because my first year teaching was 2005.

I think that it was 2008 right after the ‘moment of silence’ were a student asked me, “Miss, what was that like?” I could feel my demeanor change. In a completely sober tone, I said, “Sad.”

With a straight face, I said, “I was in college and six months pregnant. I had an auditorium class where we were cut off from the world as we were we’re going over art history slides. That’s the class I was in when it happened.

So, we leave class and I’m headed to my second class of the day which was women’s history and I get seated in my desk when a guy walks into the door and announces that the second tower fell. The woman who sat next to me, used to work in that building, and she began to cry. Hysterically cry, just as the professor comes in and cancels class and tells us to find a TV somewhere. It was scary and we did not know what was going to happen next.”

I don’t know that my seventh grade students were anticipating that answer but that’s what I said. Today, I didn’t realize it was September 11 until I got on Facebook:

I’d see something like that and I would feel a catch in my throat. And I continued to scroll:

A Facebook friend posted this, and I started to cry:

Screenshot

All day long I have thought about a writing class I had that was in session on September 12, 2002. She assigned a ‘free writing’ assignment and said that we could write about something that I don’t remember, but the last thing she said is what I wrote about. She said,“Of course, to commemorate yesterday’s events you could write about ‘loss.’”

My Mom and I had just watched a 20/20 and the babies were born after 9/11. Their mothers were pregnant or did not find out until AFTER their husbands died.

I remember at me and my Mom watched that pretty much without talking. It was sad. I remember that my professor commented for 20 minute free write, the fact that I could write four pages was impressive.

I know I have that paper in the box with all my notes from college. Maybe one day I will look for it. But this one made me cry the most! I actually sobbed:

I’m surprised that I’m so emotional this year. But, with disease progression, I guess that’s not all that surprising…

Ninja Stars

Tonight, while taking my night supplements, I noticed that I mixed up the times I take the certain supplement. I noticed this yesterday and today confirmed it.

I think I have been using this new pill box for a little over a month now. It’s strange because they are shaped differently. Instead of four squares, it’s got six sides so they’re shaped funny to put more pills in them. I feel like they are ninja stars. I kind of thought of the Teenage Mutant Ninja Turtles the first time I put my pills in them!

I’m still getting used to the icons to show me which time I’m supposed to take the pills. When I put my pills into the box, I’m wearing my contacts. I can’t see the pictures on the box. But thinking about it, I still get the same amount of pills every day! I just took them at the wrong time of the day.

No big deal. We get haircuts next week and I see Dr. Clark the week after that. That’s it for September but October and November are full already!!! At least I will be able to breathe a little better this time, I still haven’t talked about the appointments that I had during the summer months because that was really difficult!!!

Rando Tune #62

This song started to play after I was listening to Sara Bareilles a few days ago:

I completely remembered this song, but I couldn’t remember the year it came out. I looked it up, it’s 2002. I know exactly what I was doing back then!!

I was still an undergrad, living with my Parents, and Sean was 1. I remember that I was still driving and I would listen to the CD on my way to a doctor appointment in West Bloomfield. I hadn’t taken the summer semester with 23 credits yet and I was still working at dfcu.

I wasn’t even on crutches yet, back then. It seems like a lifetime ago, but it’s fitting to listen to this song in the Fall!!!

Just Exist.

I didn’t finish pillaging until 12:43 a.m. yesterday. My Mom was laying down and I let her sleep until 1:00. We are on the opposite side of the clock and I don’t know what to do about it!!!

I hear Sara Bareilles saying that, “Sometimes life just slips in through the back door and carves out a person and makes you believe it’s all true…”

https://youtu.be/53GIADHxVzM?si=cCKZXHgsI3yvxfoc

I really can’t believe that this is my life now!!! I never thought it would be this bad. I’m still trying to piece together this past summer. I can’t get Anne Hathaway’s song out of my head because that’s exactly how I felt for the entire summer!!! I cried just like she did!!!

There’s something haunting in her eyes and that’s exactly how my eyes felt!!! I like that the weather is better for me to think. I am getting two companies coming tomorrow to look at my garage door and give me an estimate for a replacement. A third one is coming on Friday.

In the meantime, I will just exist. I first told my Mom that a few weeks ago and she didn’t agree with me, but I think she might be seeing that I just exist. I just exist between doctor appointments. We are getting our haircut on the 17th and the following Tuesday. I’m going to see Dr. Clark.

I like that I know what is expected of me, but I never thought this would be my entire life, which is what it is right now. I apologized to my Mom that it’s her life now, too.

At a Loss

I’m glad that the weather has finally broken even though it’s supposed to be a little warm next week. I’m still trying to figure out how to explain how I have felt with all of these appointments in this weather! This song keeps popping up in my head and I think this is kind of how I have felt about these past eight months:

I didn’t know that MS was going to be this terrible, but it is. I’m trying to get my thoughts together about this, but I just keep hearing her say, “ I didn’t know.” I really didn’t know that it was going to be like this and I think I’m at a loss…