Month: September 2025

So, check this out: I called endocrinology because I knew that I was ready for another bone density scan, but my MyChart is so congested with all my appointments that I couldn’t see my last endocrinology appointment, which was in 2024.

This is all a thing because my bones have started hurting. That’s a little bit concerning. Actually, it’s A LOT concerning!!! I think that ‘aching’ is a better term. Neither one are good, but I’m seeing Dr. Clark tomorrow to talk about it,

I think that I called them on Friday and the woman I spoke to told me that they would call me back in the next one to two business days. I always leave my Mom’s phone number now because I cannot speak to a stranger. My brain gets jumbled up!

Well, they called my Mom today just as I was finishing ordering a disabled remote control because I cannot see it at all anymore. Unfortunately!!! I already got an email that it was shipped and it will be here on Wednesday. That kind of makes me sad I think. But it’s necessary now.

So, I’m hanging up with Xfinity just as my Mom finished with endocrinology and I told her that they will be calling her in 10 minutes to update my Xfinity account. John flagged my account and he saw that my Mom is also on my account because she talks for me sometimes.

I really cannot believe all of these transactions took place in a matter of minutes today. My Mom told me to, “Know that it was all [my] business?!” I told her that, “I know and my head is spinning!!! It really is! But I am talking about appointments that need to be made for February.

I need to make a bone density scan appointment BEFORE I make an endocrinology appointment. I have to see them but the woman I saw two years ago is no longer with Henry Ford.

I will make those phone calls on Wednesday or Thursday. This is all so much!!!

My Mom is picking up the van tomorrow. I’m going to see Dr. Clark on Tuesday and I have A LOT to talk to him about!!! I’ve also added ANOTHER doctor who I will see twice a year addition to seeing my internist twice a year (for bloodwork. and to get weighed) and I see my two eye doctors once a year as well. I also see the dentist THREE times a year. This is A LOT!!! #MSsucks!!! 😒😒😒…

This transition to cold weather is terrible! I feel terrible! I like that it will firmly be in the 70s next week but it will rain when I leave the house and I’m not looking forward to that at all!

This morning, I did not feel well and as my Mom was arranging my legs. (because my heels are healed from the pressure sores, but that does NOT mean that I can EVER put pressure on them again). I just said, not even exasperated, I just make statements now. I said, “Man, this sucks!”

Because it does! This weather transition back to cold is killing me! As an adult, I don’t even use the word, ‘suck,’ but this afternoon, I totally did!

My Health food store no longer carries Standard Process, which is the brand of supplements that I get so I decided to just order them from my doctor’s office.

It really worked out for me! Erin is the girl who places the orders. I say she’s a girl because she is a lot younger than me and I have spoken with her on the phone many times. So much so, a few times ago when I was actually in-clinic, she saw my name on the roster and she had to come see me because we’ve spoken on the phone so much but she didn’t know who I was.

I called her the morning I got my Social Security check after I had my detox and cinnamon. I was nervous about that order arriving on time but it came today:

I really can’t believe that this is my life now. My Mom hates it when I say that, but I really can’t!

My ENTIRE life is on the schedule now. At least I know what to expect. That’s what I tell myself to make myself feel better about this because, man, this sucks and all of those bottles of vitamins will be gone by the time I get paid again. I never expected this, but this is what it is! Man, this sucks!!! #MSsucks!!! 😒😒😒…

I think that the reality of my current situation is starting to sink in. I just exist between appointments. We are going to see Dr. Clark on Tuesday.

I have 4 appointments in October, but that is because we are going to the cider Mill! And I am super excited! But yeah, I just exist.

So, I have a new sensation. Well, I guess it’s not so new…

bottom line = my bones hurt.

This fact is so alarming to me because a couple things went on before my hurting bones right now.

• I woke up on October 28, 2023 with both of my hips burning!!! I started sleeping with a wedge October 29, 2023. I still do that today! My Mom puts it in on my right side and changes it about six hours later while I am still sleeping. I am still sleeping when she does this and when.I wake up, the wedge on my left side.

• I was told that I had osteoporosis in my right hip in January 2024 after my bone density scan showed that I had it. I saw Dr. Clark, maybe a couple months later he prescribed me wafers that I have been taking daily morning and night. Shortly after I started taking those, my hip stopped feeling like it was sliding out of its socket and now it just pops a few times a day. I will never do anything about this. My body cannot handle surgery at all… again.

But now, my bones just ache! While I am sitting in my wheelchair, They ache! I am so glad that I am going to the doctor on Tuesday to talk to Dr. Clark about this.

I don’t remember this movie clip being so sad!!!

I have inadvertently watched SpongeBob for the last 20 years!!! Sean and my dad loved it and sang the opening song ALL OF THE TIME!!! somehow, I thought of this movie clip and I watched it. It’s so sad?!

So, that’s a thing now. My tear-streaked face. It first started happening in May when it started to get warm. I have to tell you that it’s not Anne Hathaway in Les Mis but I will NEVER forget that feeling! It’s NOT that far in the past! I groaned when I brushing my teeth this afternoon. It’s because it’s a little bit warm right now. I’m leaving the house tomorrow and I think I might have my T-shirt and zippy because I think it’s too hot for a hoodie.

I was extremely interested when I read this article and lupus is MS‘s cousin. The feelings are the same! I’m thinking that my tear-streaked face is a summer thing. I NEVER have experienced it before but man, do these tears come with the quickness?!!!!

https://themighty.com/topic/lupus/embracing-darkness-depression-that-accompany-lupus

My Mom is picking up the van tomorrow for haircuts on Wednesday. Next week, I have an appointment with Dr. Clark.

Sean came by today and he asked if he could watch the Lions. I agreed and they won today. But, I must tell you that I listened to the game more than I watched it. A lot is going on!!!

I wasn’t so interested in players, but I did like seeing the plays. I paid attention when a big play was going on so it was like watching the highlight reel on Twitter.

I told Sean that the last full football game that I watched was when the Rams won the Super Bowl. I just wore that shirt the other day. But, sadly, I think watching and enjoying football is behind me now…

Before the game started, Sean said that he missed cable commercials. We watched this one and we laughed!!! He said that he’d like the fist bump high five at the end. I told him that I have been trying to get him to come over to my credit union since he was 16 years old. He opted for the big bank convenience! My credit union, which I used to work at 23 years ago when I was in college, has better rates! Maybe I will get them to switch over soon but here’s the commercial: