I have been trying to wrap my head around this since I had my cystoscopy. Today was day four and I think it’s gotten better. The first two days were rough for sure! I really felt like I was on fire!
Yesterday, my nose was cold. All day long. Like a dog. The sides of my forehead felt a little bit flushed but today I feel okay, I think. As okay as I will ever get.
I see my neurologist virtually on August 1. I have so much to talk to her about! A couple days ago, my Mom was walking by and I looked at her in quizzically, I said, “So, this is a thing now?! my Mom just kind of nodded her head.
She’s trying to help me figure this out. I had an appointment in January that I discovered my calculus in my bladder. I made a March appointment for my urogram (that I am still paying for). I had my endoscopy and colonoscopy (which failed – I’m going to try to make an October appointment) in June and I had my cystoscopy last Tuesday.
I go see my surgeon, who is my urologist, on August 13 to discuss the next steps. I think that given the length of time that I’ve had MS and my immobility, these are going to be a thing now!
It took me 24 years to get this procedure/surgery and Dr. K says that she she wants to give me more frequent scans so this IS a thing now…
At least I know to expect now. These last four days have been brutal, but I think I’m okay now. I do wonder when my next round will be? #MSsucks!!! 😒😒😒…