What was I Thinking?!

Today, this evening, I was able to stand up fully when I transferred. Finally! It has taken me five days for this! What was I thinking?!

I am getting my teeth cleaned next Tuesday and then the following week, I am going to the doctor to get my calculus removed. I may be under for two hours for this one.

They are going to call my Mom to reschedule my colonoscopy and endoscopy. Like it is not super hot outside?! Seriously, what was I thinking?!

I have been thinking and, I should just let myself cry in recovery! That probably would be better! It was crazy to wake up crying and not understand why but now I know why and I’m just going to let myself cry. And this song popped into my head that ABSOLUTELY shows my age but I don’t care:

Better

I woke up this morning feeling better. I can breathe easier. That relieved me, but let me tell you how I got there:

I could only put my finger on it this morning when I was no longer anxious. I didn’t even recognize that I was so anxious until I am not. I kind of had an inkling yesterday evening.

I put on my, “The Daddy Mix” last night and I tried to channel my Dad. That playlist will 100% make me cry every single time and I was feeling that I needed to let some tears out to make me feel better.

I put the playlist on shuffle so I would not know what song was coming until it came. Sure enough, I began to cry! I just let myself cry and let the tears roll down my cheeks.

I didn’t listen to the whole playlist, but I definitely heard a number of tearjerkers! I really like the fact that I woke up feeling better today. Now I know what I need to do in a couple of weeks.

I am getting my calculus zapped on July 15. That doctor told me that I will be under for 1 to 2 hours. I read my MIchart results and I was under aesthetic for one hour and 14 minutes this time.

So, I will be in a different clinic for this procedure, but I’m going back to gastroenterology in eight weeks to repeat my procedures. Hopefully, the colonoscopy will be a go, and I’ll be able to see what my gastritis is looking like as well. I am currently taking two prescriptions from the doctor and three prescriptions from Zerbo’s.

One of those prescriptions from the doctor is for Prilosec. I told Sean that and he asked if that was for old people and I told him that I am old now, but it’s for sick people and that’s me now too.

Crying?

I woke up crying this morning. I woke up crying from my endoscopy as well. It was different this morning, (really this afternoon) when I woke up crying because I was in my room all by myself instead of having multiple nurses (who were strangers) bustling around doing things.

Now, when I say that I was crying, it was not one glistening tear on my cheek. It was a deluge out of both eyes! With multiple tracks of tears streaming down my face. Today, I just let them fall and did not care until I needed to blow my nose.

I just don’t know why this is happening? I remember when I woke up from my last surgery, (that was my second knee surgery). There was a nurse working on a computer to my right and I just said with my eyes not even open, “My knee hurts.” And then I opened my eyes a little bit and asked if I had knee surgery. She said, “Yes” and I went back to sleep.

Waking up, crying, kind of it’s not sitting well with me. I completely understand that it is something neurologic. 24 years ain’t no joke, I am finding out and I will ask my neurologist, Dr. Cerghet in August. That’s when I have my virtual appointment.

I remember that I would used to only see my neurologist once a year, in August. That was the end of my summer and before I started work. That’s the only check-in I did medically. I just reviewed with my Mom the upcoming appointments for the year and I have multiple appointments (with different doctors) everymonth! I wasn’t ready for this.

I just see my neurologist virtually because she’s not going to cure me. Now I’m homebound. I wonder if I will wake up crying tomorrow as well? I amSTILL so shocked for my procedures that I don’t even think I have been begun recovering yet. Hopefully that can start tomorrow?

NOT a Fan, to Say the Least!!!

I had reposted a previous post that I had written that I take 42 supplements a day. I am scheduled to go back to see Dr. Clark in September. He will change them if need be then.

Okay, yesterday I had my two procedures. Leading up to that, I had to stop all of my supplements for seven days prior. Let me tell you that that was so rough! I stopped taking them on Monday night, Tuesday afternoon, it felt like I was drunk. By Friday, it felt like I had a urinary track infection. Sunday, my head was in a jar of water! I couldn’t wait for Wednesday!

So, Tuesday night, I did my preparation for the colonoscopy. I opted to take the pills. All I can say, is that I am NOT a fan to say the least!!! it didn’t even work! I have to have a repeat procedure. I threw up three times while taking the pills! Barb, my nurse said that it wouldn’t be clean. It wasn’t. That stinks!

I have said it so many times and it is a known fact that I am a ‘rule follower,’ and I followed those directions to the T but it does not work for someone who has had MS for 24 years! I know that now!

So, the colonoscopy had to be aborted, but my endoscopy showed that I have gastritis. Wait. What? So of course I Internet search!ed, something I absolutely abhor, but I did it anyway:

Screenshot

I stopped drinking in 2009 but I did start taking Motrin 800 every night in 2018 after my second knee surgery.

My Mom picked up my prescriptions from Meijer today as well as multiple supplements from Zerbo’s. I’m tackling this with both Eastern and Western medicine like I always have done with my MS.

She brought in a big bag from Meijer and four different supplements from Zerbo’s. It was a lot! It took me a minute to sort out what I need to add to my daily vitamin dosages.

Sh also picked up my new preparation for the rescheduled colonoscopy. It was 2 4 L empty jugs with powder in them. This new preparation is a two day preparation and I need to stop eating solid food two days before I start that.
they will call my Mom to reschedule. I’m not looking forward to that! So again, NOT a fan to say the least!!!

A Pet Shop Boys song popped into my head when my Mom brought the things from Zerbo’s. I didn’t even know it was a Pet Shop Boys song. It wasn’t one of my songs, but I remember hearing it. And my Mo me and I listened to it and she said that it came out in 1984. So I must have heard it somewhere, the dentist,or in the back of my Mom‘s station wagon? Anyway, it’s in my head again right now:

“Fall Risk”

I had two procedures today. One of them was successful and the other one not so much. I have to redo it in the next few months. I’m going to talk about these appointments but I’m a bit groggy today.

Barb, my nurse told me that it would be about 12 hours before I feel better after the anesthesia I had. She gave me two of those hospital bracelets that I used to LOVE when I was in high school! Well, didn’t know what the second one was, but I just went with it. It wasn’t until my Mom came back to see me in my room, I was in Bay 16. She took pictures of them:

I didn’t read it until my Mom came back and I paused when I read it. Well, I am! I told Sean about it and he said for insurance purposes, of course I am fall risk.

I just never thought this would be a bracelet that I would have on in the hospital. I need to cut them off because I’m an adult now and you don’t wear them for fashion. I thought of this movie when I was thinking about cutting them off:

Cottonwoods

well, the guy who installed our air-conditioning, took a look at it today. He found the culprit!!!: mother nature.

Paula was living next-door when Iwe moved into the house. Just before she moved out, she planted two cottonwood trees I have been without air conditioning for nine years and now that I am homebound so I’m not outside very much.

At least it’s comfortable in my house right now even though it’s 89° !

Brian’s Hands

Okay, I wanted to write about the fact that I have a medical device, but I never got around to it. I have a Guardian Medical device. I got it in 2016 or 17?

I had fallen in my house and my Mom researched the different medical device companies and we chose the one that I have now. I have decided to write about it because today, at 9:17, marked the third time that we had to use it in my house. We also had to use it once while we were at the dentist when there was snow on the ground.

My Mom used my device to call 911 and guys from Melvindale station 5 came. Brian, Mark, and Jon came in to my house. I had collapsed when my Mom was transferring me to my wheelchair. This heat ain’t no joke!!! I told them all how much I weigh and Mark told me that it was not a lot!

So, Brian was running point because he was the most seasoned. He came into my bathroom (because that’s where my Mom laid me down). Brian clasped his hands under my armpits and John took my left leg and Mark took my right and all three of them had me up pretty seamlessly and placed me into my wheelchair.

I used my joystick to put my chair all the way back so I could fall backward into it. Just like Diane told me to at RIM. Brian said that was really smart and I told him that’s what my wheelchair tech told me to do.

I have been physically lifted up by so many men, at Barwis, in medical situations, and it’s so uncomfortable! (It still is by the way!) I remember that when I used to fall at Barwis, and guys would come and pick me up, I knew all of them, so they would put their arms under mine and I would grab their thumbs with my hands. I remember the first time I did that with Adam, I think. He smirked at it. Maybe it was Michael?

I thought about that today because as three men had me in their arms in my hallway, I was quite uncomfortable! I didn’t know what to do with my hands, so I rested them on Brian’s hands.

As I was safely back in my chair, and Brian was talking to my Mom for her to sign some papers and getting a phone number for her, I looked out my window and saw red lights flashing!!! My Mom told them that we did not need all of the bells and whistles, but just needed someone to pick me up.

That’s so embarrassing! I’m wondering in this heat how many times this will happen? #MSsucks!!! 😒😒😒…

Upcoming, Sustained, 90+ Degree Weather

With this weather, I am not feeling well at all! I will ‘splain ya later about that in a bit but I am not looking forward to the upcoming, sustained, 90+ degree weather that are coming up… I have to leave my house in the middle of it…

I’m really not looking forward to that because it was warm when we left the a few days ago; coming back was really hard to come in from the heat to the air conditioning. My body was doing crazy things and it felt crazy!