Month: May 2025

Yesterday was rough and I did not even post about my lip! I could feel it healing, but after having MS for 24 years, my body takes a long time to heal from anything!!!

Yesterday, I still had to just put Chapstick on 3/4 of my lips because it was tender and still flaking a little bit. But this morning, I decided to push it a little bit!

I think it was the first two applications today where I blotted my upper lip because it was so painful for the last couple days; but then I decided to bite the bullet and I just smeared chapstick on both of my lips! ‘It hurt so good!’

I called to my mom, that I can normally apply my chapstick because my lips aren’t flaky anymore, it hurts so good! I actually said that as she was in the kitchen, “It hurts so good!”

My Mom actually asked me if I really said, ‘it hurts so good’? I told her,‘yes’ and she continued washing dishes and said almost under her breath, “That’s your father’s line!” And she chuckled. That chuckle warmed my heart!

I responded by calling, “Yes, it is, and I have adopted it! I can hear Daddy saying it, I can actually SEE him sitting at the table in the dining room, saying it!!!

Because my upper lip is no longer flaking away. I can just smear chapstick on the whole lip. The reason that it ‘hurts so good’ is because there is still a slight cut on the inside of my mouth by my teeth. That hurts just a little bit. and so ‘it hurts so good’! But my Mom‘s chuckle warmed my heart because I had so many fond memories that I’ve thought about it since my Mom chuckled this afternoon.

I thought that it was familiar that mouth sores heal quickly. I must tell you that my mouth sore is not healed, but it is healing. It’s flaky, flaking, and flaking off.

I must tell you that when it happened, I did not swear, surprisingly. Instead, I gave a very unflattering, “Ugh!” it was too loud in the silent room that I was in. It was still dark, and I could feel a ‘goose egg’ on my lip, and I thought that I tasted hint of blood for a moment.

My Mom took a picture of my mouth last night and the blister had popped, and it looked bruised:

I snapped this picture right when I woke up this morning:

There was no ‘goose egg’ so it seemed promising to me! As my Mom and I were completing our routine, skin started flaking off and it was brown. That’s so gross! Dried blood! I took this picture just before I ate dinner today:

You can see my Mother’s Day balloon in the background of this picture and you can see the prism in front of my left eye. The inside of my mouth is looking a lot better! It’s actually feeling a lot better! I’ve transitioned fully to my cucumber mint chapstick, even though it’s freezing outside. It will eventually be super warm and unbearable for me.

My Mom is picking up the van for our haircuts tomorrow so it’s ‘go time.’I am already gearing up. Once I leave the house tomorrow, I will not need to leave again until June 18. The past three months have been totally brutal but now they are over and I am relieved that we were able to get it all done!

So, this morning, I dropped my phone on my face. On my mouth!!! I snapped this picture once I got into my living room:

This one hurt a WHOLE LOT!!!

I waited until I had taken my detox and Ceylon cinnamon and had my Mom take a picture so I could see the inside of my mouth because that was really hurting!!!!:

It took a bit to even think about putting chapstick on. I tried to just smear it on my lips like I always do. Yeah, that wasn’t happening!!!

DO NOT SMEAR!!! BLOT ONLY!!! I could put chapstick on my lower lip with no problem. I could only do to left side of my upper lip and then the right corner. I blotted the puffy part of my lip:

I wonder how long it will take to heal?

When my Mom was putting my legs up in my chair, I was just sitting in my chair and then I tasted a mouthful of rust. I still remember reading about the young boy protagonist who was concentrating really hard and he bit his lower lip until he tasted rust. I wonder what book that was?! It seems as if the blister popped.

As a rule, mouth sores usually heal pretty quickly! Let’s hope because I have a new chapstick to use but NOT on my hurt lip! I want to just smear it on!!!

Yesterday, I noticed a greenish bruise on the inside of my right arm, I couldn’t for the life of me remember where it came from?!

Oh yeah, Janette (the CT scanner tech) searched both of my arms for a good vein to put the contrast in. It was the CRAZIEST feeling!!!

I remembered my first blood drive at my high school that I was eligible to donate. I made the signs. I was very excited!

The woman drawing the blood that day took one look at my veins and just said, “No!” She told me that if she can’t see my veins, I can’t donate.

I got an, “I Tried” sticker. I was SO BUMMED but fast forward less than a year and they don’t WANT my blood anyway! I get blood drawn often at the hospital but I can’t donate having MS.

I pillaged in silence again today. I’m really diggin’ it!!!

I didn’t drop any pills. It’s technically ‘go time’ on Wednesday but I’ve already had so many appointments this year so far so this feels weird!!!

Right now, I just have to scheduled appointments for June but I have a virtual appointment scheduled this Friday, so that might change…

Ok, I had my 8 am CT. That was rough on me to wake up so early, so I just did NOT go to bed. I remained sitting in my chair all night. That was a little bit brutal but I know I wouldn’t be able to leave the house if I had slept my bed because waking up would be too difficult!

Right when I got home from the CT, results started showing up in my MyChart and stupidly, I begin reading them as if I could understand what they said?!

This is all getting to be a bit much with having MS for 24 years so I googled the words I could not understand. I think that I am startled at how different a CT was and the fact that I have never had one before.

Halfway through the CT, she injected me with contrast. It was hot?! Jeanette (the CT tech) told me that it would feel warm. And it was shocking to feel said warmness INSIDE my veins?!

After reading the definitions of the couple words that I looked up, that Slim Fast jingle popped into my head:

I’ve decided that I am going to ‘give it a week’ and wait for my virtual appointment with my urologist and have her explain what’s going to happen now. Because things will have to start to happen now… #MSsucks 😒😒😒…

I woke up this morning and looked at my phone. It was 9:48 an.m. and my Mom had come into my room to move my wedge. Apparently, I looked at her and I taught her that I needed to get out of bed at 10 o’clock. I did not even know that I did that until about 5 o’clock this evening. My Mom reminded me of it. It sounded kind of familiar.

Delirium has sat in. It was AN EXTREMELY DIFFICULT appointment so early in the morning!

I have one more appointment on Wednesday. It is for a haircut. And my Mom is also picking up my supplements for the month.

Today was recovery day #1. I am not sure how many days I will need, but I definitely needed it today!

I cannot speak about my CT scan yet because I’m still processing it. It was a whole bunch of new stuff for me and I can’t help but be nervous about what will be coming down the pike in the future?

I am still rocking my pomegranate chapstick because was cold again yesterday. However, I have made the executive decision that once this ‘bag-o-chapstick’ is completed, (which I started today) then I will use my Cucumber Mint! That’s something exciting to think about!

I pillaged in silence again today. That really helps me to concentrate and keeps my mind clear. This weather is completely killing me! I am looking at my appointment for Tuesday morning. It is for a CT scan and it is at 8 o’clock in the morning.

I’ve looked at the directions and I think I am NOT going to go to sleep. I will just hang out in my chair and then my Mom will get up at about three in the morning to get me ready to leave the house by 7. Sean will meet us because my appointment is at 7:45 downtown in case he has to transfer me.

I am a little bit concerned about my chapstick? It’s supposed to be warm that day, but I’m leaving the house super early so I think I can continue wearing my Pomegranate. My Spring/Summer chapstick is all ready and it has been since March but it has not been warm enough for me to wear it yet. This weather is crazy!

This is the earliest appointment I have had to date. I went to the dermatologist at 10:45 in the morning. We made it. I hope that we will make this one as well! I have never had a CT scan before.

I have been thinking about my last neurologist. He retired in 2016 and he had the best and warmest handshake because his hands were so big compared to mine! He always reminded me of Lex Luthor:

I remember the first time I saw him, he got his little handheldlight and got all up in my face! I remember the first time, I kind of laughed like, is he for real?!

I was telling my Mom that after I just saw my new neural ophthalmologist. I told her that I was caught off guard by Dr. Elias getting all up in my face and I kind of chuckled a little bit. Then I told her that he did it 16 more times. She was confused by that statement and she asked why he did it 16 times. I told her that he was my neurologist until 2016.

My Mom took pictures of my appointment with my new doctor:

I did not chuckle when she got all up in my face because I didn’t have to ask myself if she was for real because she was and that’s how it is now. I’ve been having these exams for a long time!